| Author | Message | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1593 Registered: 05-2014 Posted From: 68.134.132.38 Rating: N/A |
i forgot to mention, madi menarikame.. na cousin sister kooture ma wife.. direct sister kakapoyina, cousin sister. ma mother, big sister - daughter ki daughter | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 39 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
Piracetam is the tonic I mentioned.brand for other mineralside is pharmed by kidcare | ||
Urumi Side Hero Username: Urumi Post Number: 4184 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
close relatives lo Down syndrome ekuva ani vinna ma neurologist daggara. Family lo vundi vundavachhu already. As someone said earlier, autism eppati nuncho vundi. Mana daggara maatalu late aithe maaku leva, maa taata leva, ma muttataki leva antaaru. Sensory issues asalu address cheyyaru. Maa. Aadiki siggu ekkuva, kalavadu ani goppaga cheptaaru. Mana daggara autism ante, extreme cases ni consider chestaaru. Vidiga vetikite bochedu mandi vuntaaru. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 38 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
courtagen life sciences saliva test.I will send a snippet of the test to your email id since it's not clear what the name of the test is. | ||
Ishan Side Hero Username: Ishan Post Number: 9871 Registered: 01-2009 Posted From: 76.30.50.54 Rating: N/A |
Tell me about it, he wants to say things but he cant...poor fella...gut wrenching ordeal. Which test exactly did you go for? The one at bcm is $6000 and no insurance coverage ani cheppar naaku...I probably will have to fight for it. Which test? OAT panel includes vitamins (b6,b12,c,b2 etc) and serotonin, the levels of which I really want to know...this will help us to give appropriate biomed interventions. Stool analysis might be bit redundant, but gut microbiome has direct correlation with neurological inflammation (even without gut related problems)... Don't text and drive ! | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 37 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Don't know much about it. In general, menarikams manchidhi kaadhu antaaru kada.US lo basic research ledhu, and veellaki menarikam problem ledhu, so doubt if that angle will be covered anytime soon | ||
Speaker Side Hero Username: Speaker Post Number: 4231 Registered: 06-2016 Posted From: 72.143.210.241 Rating: N/A |
Autistic kids unna Parents andariki....cheyyetthi Namaskaaram. Mee opika ki paadabhivandanam Oka aalochana medilindi..aa aalochane nannu ennukundi..kaabatte ee post padindi. | ||
Gandhiguevara Legend Username: Gandhiguevara Post Number: 62943 Registered: 10-2009 Posted From: 67.191.221.7 Rating: N/A |
Inkokka gootle kochen...menarikam impact vuntundhaa? maa relatives lo 2 cases....okati mena mama and mena kodalu....inko case bava maradallu...vaalla kids autistic...but oka couple ki 3 kids aithe first kid ke ye issue | ||
Urumi Side Hero Username: Urumi Post Number: 4183 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
70% cover chesesaamu already  . memu 23andme cheyinchaledu. Ma neurologist genetic testing order chesindi beginning lone, insurance covered. expensive test. anni labs lo blood kooda draw cheyyaru. special kit vuntundi. @AM, mee other liquid, is it combination of chromium,molybdenum..etc kadaa ? nutri something edo ...adena ? @ishan , mee kid ki gut issues lenappudu , why do you need OAT test , stool analysis and other gut related tests ? @jalsa, proper guidance lekunda e supplements kids ki ivvaddu. zinc is not easy to handle. kadupulo tippestadi, nidra magata vastadi. mag anni forms andariki set kaavu. and fish oil..it's a fermented liquid..check if your kid can tolerate it or not. @only movies, slides and jumping is fine. he is verbal, but not functional . super simple songs choopinchandi. baaga pick chestaaru chaala vishayalu. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 36 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Will do once I'm home. | ||
Jalsa Legend Username: Jalsa Post Number: 35693 Registered: 02-2008 Posted From: 159.53.78.142 Rating: N/A |
I'll look up the ones Ishan posted. If you don't mind can you share the exact brands? | ||
Risingstar Legend Username: Risingstar Post Number: 38837 Registered: 08-2008 Posted From: 12.91.218.206 Rating: N/A |
God Bless bro... He will rock one fine day.. CNKV | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1591 Registered: 05-2014 Posted From: 137.200.32.54 Rating: N/A |
@urumi: @ Only movies, mee vaadu verbal . since he likes music, focus on that side. meeru songs nerchukuni paadandi . chaala improvement vuntundi . Does he have anxiety issues ? nidra sarigga potaada ? check his allergies if you can. swing him as needed. that will calm his vestibular system and he can stop singing and can tolerate sounds better and focus on what you are saying. Thanks for the suggestion. yeah songs paadutoone vuntaamu.. he likes it.. Nidra ante padukopettadam kashtam. afternoon nap ee Madhya skip kodutunnadu.. night vaadi room loki teesuku velli good night cheppi door daggaraki close chesesi vastamu, most of the time padukundi potaadu.. appdappudu madhyalo ma room ki vastaadu.. malli teesuku velli paduko pedithe padukundi potaadu.. allergies check cheyinchaamu.. he doesn't have any.. Swinging ekkuva cheyyadu.. he likes slides and jumping most.. next time nunchi swinging kooda try chestam | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 35 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
We used calcium, zing, magnesium, omega 3 and another memory tonic (don't remember the name but this was the only one we were not comfortable using). | ||
Tweety Comedian Username: Tweety Post Number: 1981 Registered: 04-2008 Posted From: 173.225.160.178 Rating: N/A |
Jalsa.. I have been told get the genes test/done 3 years back..but somehow never felt convinced what would I do with that test after knowing if there is no fix........ coming to communication looks our daughter and yours are very similar..} | ||
Jalsa Legend Username: Jalsa Post Number: 35692 Registered: 02-2008 Posted From: 159.53.174.142 Rating: N/A |
Same here. She went to India for 2-3 months and when she came back, she wouldn't come to me or go out of the house. Swing/Slide took a while for her to get used to. We used to do it with her.
We didn't try medications due to same reasons. But looks like I have to try them now. At least B12 and Magnesium. | ||
Sri_anji Hero Username: Sri_anji Post Number: 12811 Registered: 02-2008 Posted From: 100.0.10.19 Rating: N/A |
Pedda vishayam kaadu.....Stranger anxiety is common. As he grows and interacts with others it will reduce. my circle lo oka kid same thing when he was 1-3 years....now he is perfect.... The best Odarpu | ||
Jaguar Junior Artist Username: Jaguar Post Number: 7 Registered: 01-2017 Posted From: 12.180.115.102 Rating: N/A |
maa friend kid ithe just runs away in random direction....door open chesthe he would just run away...asalu emi chesthunnado kooda thanaku thelavadhu....cousin was telling about another kid they came across with this issue....strangers choosthe vipareetham arusthundanta.... Normal kids penchadanike thala pranam thokaki vasthundhi.... imagine the life of parents with these issues... | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 34 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
We got an insurance covered dna test done but the doctor didn't even call back to discuss the results even after leaving multiple voicemails. This guys name is Charles Schubb. Insurance paid $8000 for this test ! bloodsuckers. The report itself looked benign to me with no risk factors ! | ||
Jalsa Legend Username: Jalsa Post Number: 35691 Registered: 02-2008 Posted From: 159.53.46.141 Rating: N/A |
We have gotten this done. Geneticist (not sure if it's right word ;-) ) told us everything looks normal except one chromosome which would make her tongue longer or something. Look at this thread, we might have to revisit this. All blood tests, urine tests, stool tests were done and we were told she didn't have any allergy. I wish she can talk and let us know what she wants. Even though she takes us to what she wants, it's gotta be frustrating. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 33 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Per my wife when she was going around these hospitals 2 yrs back, there were lot of kids with these issues. Until then I thought the same as well. There are speech therapy centers even in tier 2 & 3 towns, that tells you the extent of the problem in India. Coming to factors that lead to autism, there is no conclusive reasons. According this book, which I highly suggest reading, http://stevesilberman.com/book/neurotribes/ Autism was always present even in old times. Most of the scientists were autistic to some extent anta. Autistics excell in science areas due to their tremendous concentration in the subject of their interest. It was how it was diagnosed. In the 40's it was misdiagnosed here in USA. It was diagnosed as rich white kids problem, mostly moms not taking care of the kids - refrigerator moms ani peru kuuda coin chesadu Leo Kanner mahaanubaavudu. Only recently they changed the diagnosis criteria. What's unfortunate is Asperger's researched 200 kids during 1930's in Austria with this issue. He recommended early interventions and therapies but that research got lost in WW-II & Leo Kanner hid Asperger's German paper on autism and started his own theory in USA... Effing sad. So parents here fought for services for their kids at every step including schooling for all. Thanks to them, now the medical community is recommending early intervention services where possible. Autism is natures way of evolving our species anukuntaa appudappudu. If not for all the past autistic minds, our science wouldn't be where it is. Silicon Valley has large number of autistics ani inko theory. If interested please read the book above. | ||
Ishan Side Hero Username: Ishan Post Number: 9870 Registered: 01-2009 Posted From: 76.30.50.54 Rating: N/A |
Yes, here are the links: https://www.gdx.net/product/nutreval-fmv-nutritional-test-bl ood-urine Another: https://www.greatplainslaboratory.com/autism-panel/ These two labs test the actual substances in the blood. If you want mutation analysis, gene and genetic test, I would start here: https://www.23andme.com/dna-health-ancestry/ and another more specific for autism: https://www.bcm.edu/research/medical-genetics-labs/test_deta il.cfm?testcode=4000 *I believe that every autistic kid should have these tests done. Except for 23andme, you need doctor's referral for all. We havent been able to do these for the past 2 years because of financial reasons (they are expensive and insurance most likely wont cover, but check with your insurance), but we will definitely do them this year. Don't text and drive ! | ||
Urumi Side Hero Username: Urumi Post Number: 4182 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
Camel milk >> you can get it here..millersorganicfarm.com and uddermilk.com | ||
Rajusk Legend Username: Rajusk Post Number: 53780 Registered: 02-2008 Posted From: 170.74.231.5 Rating: N/A |
me too..surprised that it is available in vomerica.. gulf lo kooda dorukuthunda anedi doubting.. | ||
Urumi Side Hero Username: Urumi Post Number: 4181 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
hmm.. maa vaadiki slides,tunnels, rocking horse anni bhayam appatlo. nenu vallo koorcho pettukuni sliding chepinchedanni. .same with tunnels , migilina equipment. back nunchi pressure iste, they can feel their body in space and can be more confident in the beginning. slow ga adi dangerous kaadu something fun ani brain lo register chesukunnaka, he is playing on his own now. ippatiki indoor play areas lo big slides ante koncham bhapadataadu. nenu vuntaanu venta. | ||
Ishan Side Hero Username: Ishan Post Number: 9869 Registered: 01-2009 Posted From: 76.30.50.54 Rating: N/A |
Doctor gave green signal long time ago, but we are holding off because of the reasons you mentioned. Its a tricky situation, because he wont learn anything with stimming and anxiety interfering with learning process, and side effects on the other side of the coin. I know many telugu parents here with autism who put their sons on medicines who are doing fine. Pediatrics lo chala care teeskuntaru to prevent addiction...they gave the lowest dose possible of the drugs with lowest rate of dependency issues...choodali. We will try some other biomed approaches before strongly thinking about this route. I don't have much faith in alternative medical systems at this point, particularly homeopathy. Yes, but it sounds like he has only minor issues with them. We haven't. You can definitely give it a try. I only read about this on some forums, but never tried...I dont even know where you can get camel milk here  .they have been doing that at OT and his anxiety levels have definitely decreased...he is actually much better than he was last year..but still a way to go. It didnt help with the vocal stimming however. Thats a good insight, thanks for sharing. Riding lo ayithe memu koorchovachu, but for sliding and other basic children's stuff he needs to do them on his own...so for him, if you leave him alone for a looong time, he eventually starts playing on his own, but takes a long time to warm himself up...starting trouble chala vundi vaadki... I never had good faith in Homeopathy, but I guess if everything else fails, we will have to go there. Don't text and drive ! | ||
Urumi Side Hero Username: Urumi Post Number: 4180 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
blood/urine - list ivvandi. metal testing , metabolic testing aa ? genetic testing ante , are you talking a bout MTHFR ? We can even call them if we have any questions. They are very helpful. nenu last year call chesaanu. NJ schedule - http://www.tacanow.org/local-chapters/northeast/new-jersey/ maadi NJ ne sis. urumi.cc@gmail.com ki mail cheyyandi. maa homeopath peru 'paul herscu'. google paul herscu autism ani. but, mee vaadiki health issues vere emanna vunnayya ? gut issues aithe vere inko aavida vundi. nenu 2 years tarwata monne chaala strong ga cheppa ma doctor to. autism issues meeda concentration vaddu ippudu, first on going issues and gut issues then only autism issues ani request chesa. MAPS for autism is another good group.' homeopath cafe' is ok . gut issues ki chaala manchi groups vunnay. @anthamidhya, fb groups lo kontamandi mothers camel mil k try chestunnaru. But their kids have severe gut issues. Don't think it was helpful for them.meeru chadivina books and good links share cheyyandi. | ||
Rajusk Legend Username: Rajusk Post Number: 53779 Registered: 02-2008 Posted From: 172.56.37.216 Rating: N/A |
My daughter was diagnosed borderline in the Autism band...appudu edo immigration twist valana we ended up in India around 2007.. That changed everything..in 6 months..she was talking like never before.. | ||
Rajusk Legend Username: Rajusk Post Number: 53779 Registered: 02-2008 Posted From: 172.56.37.216 Rating: N/A |
My daughter was diagnosed borderline in the Autism band...appudu edo immigration twist valana we ended up in India around 2007.. That changed everything..in 6 months..she was talking like never before.. | ||
Chillarodu Side Hero Username: Chillarodu Post Number: 9097 Registered: 03-2008 Posted From: 106.220.145.141 Rating: N/A |
I wonder if they have breakdown based on race. Somehow I feel that we are seeing these cases more with immigrants. | ||
Rajusk Legend Username: Rajusk Post Number: 53778 Registered: 02-2008 Posted From: 170.74.231.5 Rating: N/A |
The Centers for Disease Control and Prevention (CDC) released a report today showing the rate of children identified with an autism spectrum disorder remains at 1 in 68 children nationally. This statistic is based on the CDC's evaluation of health and educational records of 8-year-old children in 2012 in 11 states, including New Jersey. New Jersey again has the highest rates of those states evaluated: with 1 in 41 children (2.5% of children). | ||
Nihil Comedian Username: Nihil Post Number: 1948 Registered: 03-2008 Posted From: 183.82.194.104 Rating: |
Anthamidhya and other parents- hats off. I can understand what efforts and pain you go through My take: Somehow I do not see that many autistic kids in India, but at the same time I am hearing a lot about in US from my friends as well as in this DB (in particular in the state of NJ). One might argue that India nobody diagnose it early or not at all..but i dont think so, and i think genuinely the incidence is low. May be some kind of enviromental factors are the reason for this. I have heard of cases where kids improved once they broght back to india. Not for all, but heard many kids. God bless you all | ||
Cinejeevi Side Hero Username: Cinejeevi Post Number: 5122 Registered: 10-2014 Posted From: 72.166.89.74 Rating: |
Again Not sure what to say and how to say but saluting all those parents, one concern that always lingering in my mind (expressed once in this DB itself) is 1) Please take care of your health which is utmost important for your kid's future. Don't neglect. If you are out of action even for a day means double stress to your spouse. Since many of you are I assume are in early 30s this is very critical in the long run. 2) What type of secured future in terms of financial, emotional support ur child will get in long run? If you have two kids and second one is special then u should train the first one to support the special. If your first one is diagnosed as special and u concentrate only on him/her, how his/her life would be after a decade from now? I don't want any answers on DB's face but this is something that needs to be planned anipinchi cheppa. tappu gaa matladite manninchandi, asalu ardhame ledu anukunte kshaminchanDi. brahmaghnE cha eva suraapEcha chOrE bhagnavratE tadhaa! nishkrutir vihitaa sadbhihi, kRutaghne na asthi nishkruthi!! | ||
Kusuma Junior Artist Username: Kusuma Post Number: 2 Registered: 01-2016 Posted From: 173.3.237.3 Rating: N/A |
Recovering kids in fb is a great group. I was going to suggest the same. You can post your kid's situation and ask question, other parents will try to answer. Also, what i understood from posts from parents is, what works for one kid does not, for other kid. B12 shots, GFCF diet, Probiotics, Zinc, magnesium supplements, homeopathy, raw diet, HBOT and there are some more, are all game changers either by themselves or/and in combination with others. But, parents are doing lot of research and trying what works for their kids. One good thing about these fb groups is, they share links to research papers too. There is one set of parents who believe Autism is due to vaccines so, they say, Homeopathy helps in detoxing the injury done by vaccines. Someone mentioned about Magnesium right, i will share a link to a research paper about how important Mag is. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4379450/ Urumi garu, can you share your homeopath's name?? I live in NJ. | ||
Jalsa Legend Username: Jalsa Post Number: 35690 Registered: 02-2008 Posted From: 73.197.109.142 Rating: N/A |
Not necessarily. My kid was also talking till 18-20 months. Since her sis was admitted to hospital and we were shuttling back and forth from hospital and home, we had our mil come to help with her. After she left, we hired a nanny at home as I had to go to work after one year. That's when she lost everything. Earlier when I used to take her to park or store, she used to go play with other kids but after that she stopped. She would go randomly to some lady in the park. There was not hospitalized nor was she on antibiotics etc. Doctors have no clue. EEG cheyinchamu staying overnight at hospital and they said brain scans look like a normal kid yet she was diagnosed as autistic | ||
Starbucks Side Hero Username: Starbucks Post Number: 4795 Registered: 08-2011 Posted From: 222.228.157.98 Rating: N/A |
Also, there are few closed/secret facebook groups, where parents connect and share what worked for their kids. There are some amazing moms and dads in those groups. I don't know if i can share the names of them here, but if u PM, i will share. Did not go through all msgs thoroughly, but, some parent mentioned about non verbal kid. Fish oil( nordic naturals ) helps with speech, if not tried already. Posting in a rush, before i forget and this thread goes lost. ---------------------------------------------------- i follow some group called Recoveringkids.com in facebook, get to see lot of posts there everyday... most of the talk about mb12 shots for speech... still not sure if it really works When "i" is replaced with "we", even "illness" becomes "wellness" | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 32 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
Ala sick ayinappudu meds vada ledhu but later yee doc daggaraki vellina severe ga sick ayyada ani adigaru. 18 months time lo anti-biotics vadamu for high fever. Usually if you are a marginal kid all these issues can push you off the cliff emo anukuntamu . But we are not docs and medical community nundi no support. It's like becoming blind all of a sudden in the middle of a chowrastha called chaotic life. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 31 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
Yes, we take this scenario than what we had 2yrs back. Problem is how he is in between doing such things. | ||
Gandhiguevara Legend Username: Gandhiguevara Post Number: 62932 Registered: 10-2009 Posted From: 67.191.221.7 Rating: N/A |
Could it be hospital induced? like some medication error? Do you attribute a particular illness related diarrhea and vomiting to autism? pardon my ignorance...meeru paina cheppina statement very scary | ||
Kantha_rao Side Hero Username: Kantha_rao Post Number: 3431 Registered: 11-2013 Posted From: 67.252.24.56 Rating: N/A |
I am still confused brother...how come kids doing all these are special kids, this really amuses me all the time....what he is doing is perfect, though after your countless efforts...please don't get me wrong, I am now worried about my kid now  | ||
Nakhral Junior Artist Username: Nakhral Post Number: 154 Registered: 11-2012 Posted From: 73.73.90.2 Rating: N/A |
it really hurts just by hearing autism..bcoz my nephew died 6months ago..he also had autism. Doctors really screwed (I hate indian docs..may be not all) ..My sister really having tough time to recover | ||
Kingaa_bongaa Megastar Username: Kingaa_bongaa Post Number: 20510 Registered: 02-2008 Posted From: 98.222.242.199 Rating: N/A |
to All Parents here , a big Salute.
why dont u start one with DB group. Ofcourse the existing bigger group is better, but another group with just DB people wouldn't hurt. Manaki Manam Kingu, Choosevallaki Bongu. | ||
Kusuma Junior Artist Username: Kusuma Post Number: 1 Registered: 01-2016 Posted From: 173.3.237.3 Rating: N/A |
Hi All, Been a silent reader all these until this post. I have a toddler with Autism. I am glad, the OP started this thread. For parents, who don't know about it already, there is a website called www.tacanow.org. They conduct conferences in CA and PA i think. One is coming up in May in PA. One of teh parents in my son's school gave us the info about TACA. We did not use for our son,as he has other complex issues, but, i am just passing information. Also, there are few closed/secret facebook groups, where parents connect and share what worked for their kids. There are some amazing moms and dads in those groups. I don't know if i can share the names of them here, but if u PM, i will share. Did not go through all msgs thoroughly, but, some parent mentioned about non verbal kid. Fish oil( nordic naturals ) helps with speech, if not tried already. Posting in a rush, before i forget and this thread goes lost. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 30 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
My wife did the same with our kiddo. Now he tries to cook jaava, egg toast by himself. puts clothes in washer and turns on the washer, helps mommy in unfolding folded clothes. There is no end to his kelukudu in the house. Eppudu yee accident avvudho ani bhayam, intlo enni ani daayagalam. | ||
Urumi Side Hero Username: Urumi Post Number: 4179 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
ok sis. Meeru ? Veelunte repu call chestaanu Meeku @ishan, raising a sensory smart child, out of sync child chadivaara ? Vestibular input sarigga register chesukovatledu emo. Vocal stimming Ki primary Reasons lo adokati. Anxiety ki kooda one of the reasons proper ga VI lekapovatam. Mee OT, or meeeru e swing use chestaaru? Open swing aa ? Did you ever try using cuddle swing in a dark room ? Maaku EI team lo oka OT professor vudedi. She told me some good points. Many of these kids will not be able to register VI even though we try to help him. Usual ga babies appudu visual input strong ga vuntundi. Over the time, every kid learns. Most of these kids, use their visual input and block vestibular input. So, cuddle swing in a dark room lo swing cheste , they can slowly learn how to handle vestibular input. That will help with anxiety and stimming. Try this, swing him at his comfort level and notice if he still has vocal stimming. Park lo Bhayam ante, maa vaadiki at 2 same problem. Ippudu ledu. Prati ride, mee vallo koorcho pettukondi.hug him tightly and take slide and Anni Alana cheyyandi konni days. Hugging will give him proprioceptive input which will help Him feel his body in the space and reduce some of his anxiety issues. Once he is confident, he will play on his own. Meeru already island chestu vundi vuntaaru. But small things make lot of diff sometimes. Homeopathy try chesi choodandi. Nenu chalaa difference choosaanu maa vaadilo. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 29 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
When my son was diagnosed at 2, pedi said he had abnormal head size but 3yr check up lo it's back to normal andhi ): | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 28 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
Thanks for the info on NAC. Looks like it is good for stimming. My kid doesn't stim by flapping hands ( this came back when he went off diet for few days) doesn't rock or spin. But he does quick runs attimes, use repeat phrases and clinches both hands and teeth once in a while. Are these stimming behaviors ? Did you notice any side effects with using NAC ? Tempted to try this one. On another note, another desi mom ( who my wife met at therapy) went all-in to stuff we did. She said that they will be trying camel milk as well. Apparently camel milk helps with oxidative stress , similar to NAC. I found this study with good sample size of 60 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3773435/ Another anectodal paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3698662/ Do you know of anyone who tried camel milk ? Above studies are encouraging. I'm waiting on the feedback from my wife's friend before trying it/ | ||
Analog Side Hero Username: Analog Post Number: 4595 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
Interesting link http://www.cnn.com/2017/02/15/health/autism-brain-changes-mr i-early-diagnosis-study/index.html How r u urumi? | ||
Urumi Side Hero Username: Urumi Post Number: 4178 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
Sorry Sariigga quote cheyyaledu Ma Vaadu ditto. Ekadanna edanna item kanipiste , for ex: clock, flash card app lo next vachhe words Anni cheppestaadu. Ippudu taggindi. DVD mottam cheppestaadu. Words chadivestaadu evaru cheppakundaane. Rhymes subtitles vastay Kada avi gurtu pettukuntaadu. Aa words vidiga kanapadite avi chadivestaadu. Artham kaakapote, rhymes paadestaadu. Edupochhina, evo oak words cheptaadu. Songs aithe violin sound aithe same, guitar sound aithe same repeat chestaadu. Only instrument music play cheste, adi Ee instrument anedi cheppestaadu. Velle Prati route Telusu. Dev ped 2 yrs ago skill set scatter ayyindi 2-6 yrs age and I. Ippudu Inka range perigindi ani Anipistundi. He knows all fruits, veggies, grains, seeds names Anni. Shapes draw cheste octagon,pentagon, hexagon Anni cheppevaadu by3.. Easter eggs idea epudu Raaledu to teach open. Share more ideas please. @anthamidhya, I do the same. Kitchen counter top Meeda koorcho pedata. Laundry , vacuum cheyista sometimes hand over hand. | ||
Urumi Side Hero Username: Urumi Post Number: 4177 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
after trying various ways to teach my son to speak in context, we realized he uses visual memory alot more than other types of way to recollect things. instance, if there is a baby crying around him, he would recollect a scene from ice age, and speak the dailog from all the characters in the scene. . I let him continue with what he was doing, and he said the dailogs from the movie for all characters for about 45 mins, including musical instruments that are part of the scene. another example is "laali laali" song from swathimuthyam. he was familiar with the song as i used to sing to him... and then he watched the video a few times, and one day he sang the whole sang with sounds from musical instruments. after talking to developmental pediatricians and speech therapists, we stopped videos, and started using picture boards, with small words. with nouns, verbs and other types of commonly used words.when he starts to use scripted text to communicate something, we started showing the pictures, with words written depending on the context. slowly he started to realize to manipulate the words he knows to suit to the context. he is very vocal now, he knows more words and spellings than most kids of his age, but he struggles with contexts, but he has improved considerably from where he was six months back. he is trouble interacting with peers though, as he cannot stick to a context for long, and cannot understand some of the things they do. once he doesnt know how to respond, he turns to scripted text and starts using sentences from books he reads(as he is completely off videos now). Ma Vaadu ditto. Ekadanna edanna item kanipiste , for ex: clock, flash card app lo next vachhe words Anni cheppestaadu. Ippudu taggindi. DVD mottam cheppestaadu. Words chadivestaadu evaru cheppakundaane. Rhymes subtitles vastay Kada avi gurtu pettukuntaadu. Aa words vidiga kanapadite avi chadivestaadu. Artham kaakapote, rhymes paadestaadu. Edupochhina, evo oak words cheptaadu. Songs aithe violin sound aithe same, guitar sound aithe same repeat chestaadu. Only instrument music play cheste, adi Ee instrument anedi cheppestaadu. Velle Prati route Telusu. Dev ped 2 yrs ago skill set scatter ayyindi 2-6 yrs age and I. Ippudu Inka range perigindi ani Anipistundi. He knows all fruits, veggies, grains, seeds names Anni. Shapes draw cheste octagon,pentagon, hexagon Anni cheppevaadu by3.. Easter eggs idea epudu Raaledu to teach open. Share more ideas please. @anthamidhya, I do the same. Kitchen counter top Meeda koorcho pedata. Laundry , vacuum cheyista sometimes hand over hand. | ||
Senapathy Hero Username: Senapathy Post Number: 18642 Registered: 01-2009 Posted From: 137.131.180.12 Rating: N/A |
Hello annai and ALL. Just saw this thread and my admiration for all the parents who deal with awesome kids. I hope and pray for strength courage and motivation. We will make sure DB stays alive and active for only such needs where we share important information and help each other Ishan - I did have speech problems early in life. It took me 6 years to start talking and making meaningful sentences. And start walking as well. Some physical development problems early in life.. My parents never had a clue what was wrong with me and never did their research at that time. Luckily with time I picked up learning and congnitive behaviour. The shyness and anxiety persisted with me for a long time and of course has residual effects even till now. I do understand that social anxiety plays a big role from my own life. The concept of freezing was there in my child hood - is more of a panic attack syndrome. It was devastating as well. Did you discuss with a doctor on meds or is it your own call. These meds have a myriad of side effects changing the chemical balance of the brain and might work either way and there is the withdrawal effects in future as well. It is a tight balance especially considering the age of the kid. There are multiple anti anxiety meds in other health systems as well. Did you think about those? Ayurveda especially.. I am struck by the lightning of love and burnt beyond repair - Florentino Ariza | ||
Ishan Side Hero Username: Ishan Post Number: 9868 Registered: 01-2009 Posted From: 12.130.196.253 Rating: N/A |
Sounds like your kid is in high functional asperger's range -was he officially diagnosed with any such? SO basically you used home version of PECS system to teach him communication and looks like it has worked great and he is actually using vocal methods of communication...thats a milestone man... not much luck for us though ..The four main issues we are having are 1. He is 6 and cant speak a single word, absolutely none. He is using PECS and responding slowly though; 2. We are having hell of a time in potty training - he is simply not getting it no matter what we do, 3. Fear/anxiety - he has very high levels of them which actually is precluding him from learning anything. He wants to play in the park, but he freezes coz of the fear..he wants to do many things but again freezes...though OT has been helping him overcoming some fears, he is still largely very anxious...we are thinking of putting him under anti-anxiety medications which we really didnt want to do, but I think we have to do at this point. 4. Lots and lots of vocal stimming -to unbearable levels at times. It has direct relationship with anxiety as per my research...so we are hoping those medicine might help with this problem too. And another issue is that he never watches TV or Ipad at all...I know it may sound like an opposite problem like you guys are having, but I want him to sit and watch some cartoons man...he just wont get the concept of watching anything...He engages me in his plays which is very good, but he needs to learn using electronic media which could be of immense help for him in learning stuff. He listens to music and songs though... How does he know he doesnt need them? have you done any blood/urine panels or genetic testing or sequencing? No shit. If only we can fathom 1% of what goes on inside their minds.... @urimi - I think its Mg oxide, have to check...thanks for the tips Don't text and drive ! | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 27 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
When trying to teach him new concept it will be only one at a time. show a card and repeat n times. This is during sit-in for teaching time. Once he gets a hang of the concept, then translate to multiple things followed by real life examples.But other times, we just talk loudly about everything we do in our daily life i.e Nanna wearing shirt, wearing socks, belt, amma cooking food, cutting vegetables, drinking coffee etc. In the beginnning it sounded very silly for us to do this. But a child needs to hear some 1000 words per minute or hr to increase his vocabulary. US lo antha scene ledhu kada, so we just literally speak everything out LOUD. Of late we haven't been doing this religiously. Time to revisit our basics again. | ||
Mental_sachinodu Hero Username: Mental_sachinodu Post Number: 19440 Registered: 10-2008 Posted From: 24.125.46.70 Rating: N/A |
i think concentrating on things that are directly infront of the kid works better than using multiple examples. one way you can try is, lay out 5 to 6 objects in front of him that can be opened in various ways a box, a book, a pen, a lollipop, and so on and finally one object that he really likes. try using the word, goign through each object and by the time you reach the object he likes, wait for him to say even if it takes more than a min. you can start mouthing without sound so he can try to immitate. it may or may not work and might have to change approach. dont get frustrate infront of kid if it does not work. we worked with easter eggs that can be opened, and we had different objects inside it. so it got him to be interested in the activity. | ||
Urumi Side Hero Username: Urumi Post Number: 4176 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
meeru verbs or prepositions teach chesetappudu, multiple things example ga teesukuntaara ? for ex : to teach him open..open the door, open the bottle , open the box ..alaa diffeent examples teesukuntaara ? mee approach cheppandi. | ||
Mental_sachinodu Hero Username: Mental_sachinodu Post Number: 19439 Registered: 10-2008 Posted From: 24.125.46.70 Rating: N/A |
this is very accurate ishan saab. after trying various ways to teach my son to speak in context, we realized he uses visual memory alot more than other types of way to recollect things. My son does not have physical issues per se, but he had significant delays in speech and finally when he did start using words, it was entirely scripted, based on what he has seen on tv or others used. instance, if there is a baby crying around him, he would recollect a scene from ice age, and speak the dailog from all the characters in the scene. we stopped showing any videos after noticing that he is memorizing everything he is seeing rather than trying to understand the context. One day, he started a scene from "Home" movie that he watched a four or five times. I let him continue with what he was doing, and he said the dailogs from the movie for all characters for about 45 mins, including musical instruments that are part of the scene. another example is "laali laali" song from swathimuthyam. he was familiar with the song as i used to sing to him... and then he watched the video a few times, and one day he sang the whole sang with sounds from musical instruments. after talking to developmental pediatricians and speech therapists, we stopped videos, and started using picture boards, with small words. with nouns, verbs and other types of commonly used words.when he starts to use scripted text to communicate something, we started showing the pictures, with words written depending on the context. slowly he started to realize to manipulate the words he knows to suit to the context. he is very vocal now, he knows more words and spellings than most kids of his age, but he struggles with contexts, but he has improved considerably from where he was six months back. he is trouble interacting with peers though, as he cannot stick to a context for long, and cannot understand some of the things they do. once he doesnt know how to respond, he turns to scripted text and starts using sentences from books he reads(as he is completely off videos now). we have not tried any supplements yet, as our doc says, he doesnt need them, as he has the capability to learn although in different way than most other kids. he has memorized all the books he has now. but lately he is getting the point to understand what he is reading, rather just memorizing. to get an understanding, we started to potty train around 3.5 years, we would repeat the excercise of verbally instructing him the steps that need to be taken for him. after trying for weeks, we came across a youtube video, a cartoon with potty song. after watching it couple of times, he would repeat the song and go through the steps. never had to instruct again. strange minds these kids have. | ||
Jalsa Legend Username: Jalsa Post Number: 35689 Registered: 02-2008 Posted From: 159.53.78.143 Rating: N/A |
she never had gut issues. her sleep was off when she was on milk. that has gotten better. Having said that, we don't know if it's exactly due to milk or other stuff we have been trying, making her work. | ||
Kaisersooze Moderator Username: Kaisersooze Post Number: 15285 Registered: 04-2009 Rating: N/A |
any improvement?? | ||
Jalsa Legend Username: Jalsa Post Number: 35688 Registered: 02-2008 Posted From: 159.53.78.143 Rating: N/A |
memu milk aapi 3 years ayindhi. | ||
Kaisersooze Moderator Username: Kaisersooze Post Number: 15283 Registered: 04-2009 Rating: N/A |
one of the doctor said...cow milk could be the main problem in autism...don't know how far it is true...but gut related issues vunavalaki..milk stop chesthae better..anything related to diary....and get tested for candida.... | ||
Jaguar Junior Artist Username: Jaguar Post Number: 6 Registered: 01-2017 Posted From: 12.180.115.102 Rating: N/A |
He will be 6 years by May. | ||
Jogibabu Junior Artist Username: Jogibabu Post Number: 21 Registered: 05-2016 Posted From: 192.234.111.8 Rating: N/A |
Me parents andarini chustunte jevitam meda positive outlook perugutondi. All the best guys. | ||
Jalsa Legend Username: Jalsa Post Number: 35687 Registered: 02-2008 Posted From: 159.53.46.140 Rating: |
mods, please ban this guy | ||
Kantha_rao Side Hero Username: Kantha_rao Post Number: 3429 Registered: 11-2013 Posted From: 12.218.0.70 Rating: N/A |
just curious...why is this a concern ? how old is the kid ? | ||
Bunty717 Moderator Username: Bunty717 Post Number: 51643 Registered: 02-2008 Rating: N/A |
meeru ee state lo untaaru.. | ||
Jaguar Junior Artist Username: Jaguar Post Number: 5 Registered: 01-2017 Posted From: 12.180.115.102 Rating: N/A |
maa friend kid kooda good at solving puzzles but doesn't talk yet...he will show at things if he wants something... If someone responds to the treatments then they are misdiagnosed I think.... maa cousin kid lo little improvements....if wants to eat something he will open fridge, grabs it and give to parents to feed...Not potty trained yet... | ||
Urumi Side Hero Username: Urumi Post Number: 4175 Registered: 12-2011 Posted From: 173.70.23.200 Rating: |
not at all. na situation chepta. last 2 months lo ma vaadu full sick. for many reasons, dad was not in a situation where he can spend few minutes with us every day. HE was really busy. naaku 2 months lo nidra ledu. and i have to drive 90+ miles every day to drop him at school. last week chinna car accident , within the complex . we are safe. ela ayyindo kooda gurtu ledu kallu tirigay.anduke spend more time, help us and after work, be patient and maaku vere tensions em pettaddu anni in general ga cheppaanu endukante, we(moms) are already having more than enough anni. | ||
Tweety Comedian Username: Tweety Post Number: 1979 Registered: 04-2008 Posted From: 173.225.160.178 Rating: N/A |
Jalsa ----------------------------------------- It's great to know these kids talk!!!! Em chesina okka maata matladatledhu maa ammai. PECS chestundhi, mammalni teesukelli em kaavaalo choopistundhi but no words. Alright, we'll keep trying new stuff. -------------------------------------- Ikkada maa Ammayi kooda anthey | ||
Jalsa Legend Username: Jalsa Post Number: 35686 Registered: 02-2008 Posted From: 159.53.110.140 Rating: N/A |
adhey mari....chanuvichaamu kadhaa ani dads paiki rudhestunnaru I hope moms do realize how much dads also think/do for their kids | ||
Jalsa Legend Username: Jalsa Post Number: 35685 Registered: 02-2008 Posted From: 159.53.78.140 Rating: N/A |
It's great to know these kids talk!!!! Em chesina okka maata matladatledhu maa ammai. PECS chestundhi, mammalni teesukelli em kaavaalo choopistundhi but no words. Alright, we'll keep trying new stuff. | ||
Urumi Side Hero Username: Urumi Post Number: 4173 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
@anthamidhya, meeru comb enduku use chesaaru. it will actually hurt him. instead get a surgical brush. 3 hrs excited ayyaadu nidra poledu ante, meeru, give him deep pressure aa times lo. ante joint compression and check accupuncture points anni. maa vaadito chaala paddanu nenu. eedi trigger avutundo, eedi calm avutundo teliyaka beginning lo. ippudu better idea vachhindi. but,, for us it's a different case. stomach pain to nidra vundadu. | ||
Urumi Side Hero Username: Urumi Post Number: 4172 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
We broke down speech into nouns, verbs, adjective and pronouns - this is the order of difficulty in teaching and learning as well. first 3 months mostly nouns when we sit with him to teach. Once he mastered set of 100 noun flash cards/ charts, then we moved to verbs, it was very difficult. currently in pronouns stage and this is like phd for autistic kids - not easy to relate to others kada. he knows mine and yours. he steals everything from his brother and says mine ): >>>>>>>>>>>>>>>>>>>>>>>>>>. super. for us, nouns maa vaadu ipad nunchi pick chesaadu mostly. teliyanivi vidiga PECS to match chepista. for ex : TV. TV picture okati teesukuni , i ask him to match and i physically prompt him to match. ippudu TV ani adugutaadu pettamani. and once switch on chesinaaka , songs list display aithe which song do you want me to play ? or what do you want ? ani aduguta. for ex : Ten little indian boys or we all fall down ? ante , he says indian boys or chitti chilakamma. verbs , each time 5, 6 teesukunta and i work on them. heights nunchi jump cheyyataaniki help teesukuntaadu. 'do you need help ' ? or help ? ani adugutaa. he says help , today he said 'help me'. and make him say jump, run..etc inkaa my turn ,your turn anni marbles box lo veyistaa. and count fingers, my turn your turn. mirror mundu. my eyes, your eyes alaa. big ,small -big and small same color pom poms teesukuni teach chesta. for everything action and either noun/pronoun/verb/adjective alaa.. for blowing, whistle, nenu voodi, your turn vaadiki ista. he loves doing that. inkaa, bath tub lo dollar mart toys techi imaginative play . 5 little ducks, 5 little speckled frogs rhymes .water cups to rain rain go away....etc. This is so exciting. please share more ideas. okko parent creativity okkola vunntundi to teach verbs, prepositions alaa.... ivaala maa vaadu , shelf paaina box meeda 2 year warranty, 90 day return policy anni vundi . what do you want ani adigite , 290 anni cheppaadu. it was so funny. but, i am so proud of him. and lately, nenu gadimite or food pedutunna, daddy ani peddaga arustunnaadu. lol @ Only movies, mee vaadu verbal . since he likes music, focus on that side. meeru songs nerchukuni paadandi . chaala improvement vuntundi . Does he have anxiety issues ? nidra sarigga potaada ? check his allergies if you can. swing him as needed. that will calm his vestibular system and he can stop singing and can tolerate sounds better and focus on what you are saying. @ishan , is it amino acid capsule ? Mag usually will give diahhrea if one do not have constipation issues. Not sure, if you have used mag citrate or mag oxide. But, the good thing is, they get relaxed. Try to use mag sulphate in bath water. That will make him calm and sleep better. | ||
Ishan Side Hero Username: Ishan Post Number: 9867 Registered: 01-2009 Posted From: 12.130.196.253 Rating: |
NAC is N-acetyl cysteine which is a powerful antioxidant. It reduces neurological inflammation which MAY be present in autism. Here is a study (there are many) that supports its utility: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3698662/ Here is the brand we use: https://www.amazon.com/gp/product/B00KCB1RH2/ref=oh_aui_deta ilpage_o09_s00?ie=UTF8&th=1 Here is the vit B12 we use, he loves it: https://www.amazon.com/gp/product/B00K5NEPJY/ref=oh_aui_deta ilpage_o03_s00?ie=UTF8&th=1 B12, just like any other intervention can be hit and miss. Here is a study - there is no general effect, but a subgroup of autistic children benefited. https://www.ncbi.nlm.nih.gov/pubmed/20804367 Point noted ! This actually is amazing. Breaking the barrier of contextual/meaningful communication skills is perhaps the biggest milestone you can hope for in the journey. Getting proper communication skills is like finding a highway after getting lost in a dense forest. Does your son have any stimming issues? Don't text and drive ! | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 26 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
If he knows how to do something, he will do it himself better than my elder son , i.e won't ask us for help ): The stuff he can't do he will ask for or cry. Nanna, please open attic ani adigaadu last week after teaching him to use please for 2 weeks, he really loves attic but no way he can open by himself - so adiguthadu.but everything in pantry n kitchen balli laaga climb chesi thesukuntadu - if he can't open a bottle then he will ask ! | ||
Tweety Comedian Username: Tweety Post Number: 1978 Registered: 04-2008 Posted From: 173.225.160.178 Rating: N/A |
Anthamidhya............... Maava........you are doing a great service and .........hats off to your patience | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 25 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Me too, what is NAC ? | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 24 Registered: 02-2017 Posted From: 12.127.135.22 Rating: |
@OM & Ishaan I won't put them in his speaking word category but it's still good that he can talk , i.e no issues with tongue muscle - aka no hardware problem , more of a software issue. We broke down speech into nouns, verbs, adjective and pronouns - this is the order of difficulty in teaching and learning as well. first 3 months mostly nouns when we sit with him to teach. Once he mastered set of 100 noun flash cards/ charts, then we moved to verbs, it was very difficult. currently in pronouns stage and this is like phd for autistic kids - not easy to relate to others kada. he knows mine and yours. he steals everything from his brother and says mine ): He started with mostly repeating phrases literally 100%. But overtime, he started using them in context - fruits ayipoyayi ante - publix ki velli thechukundha, gas station chusi chepatam etc. The best thing about him is he won't forget once he has learnt something, that's downside too since you don't want to teach him anything wrong way - hard to remove that from his hard-disk. Another thing we adopted from a mindset point of view was - he lost 2 yrs of time in life due to a reset. so we consider him 4yrs - 2yrs = 2yrs, that helps us not to get frustrated. last yr chesinavi anni terrible two anukuni mundhuku poyamu. | ||
Jalsa Legend Username: Jalsa Post Number: 35684 Registered: 02-2008 Posted From: 159.53.110.140 Rating: N/A |
oh, have to look into this character.
Can you explain what is NAC? How is B12 helping? Mg kooda. Can you share what brand you use specifically? | ||
Siloan Legend Username: Siloan Post Number: 48988 Registered: 03-2008 Posted From: 132.174.20.41 Rating: N/A |
sodara....time vunte details pettu | ||
Ishan Side Hero Username: Ishan Post Number: 9866 Registered: 01-2009 Posted From: 12.130.196.253 Rating: N/A |
ishanccdb@gmail.com. We haven't done anything different really except that we have added NAC along with B12 spray as supplement. NAC works fine but its extremely difficult to give it to him because of the taste and smell- he hates it. We tried Mg but that caused some diarrhea issues. With vitamin D3, no appreciable changes so far. Barring from personal stuff, we can discuss everything else in the DB so that others get benefited too. Does he say words on his own spontaneously? how does he let you know if he needs or wants something? Yeah...sheldon is a big inspiration...whoever wrote that character did a great deal of research on asperger's...we call our son 'skinny weirdo' after him
That's great to know...thats what I see and hear from our local friends too, just wanted to confirm Don't text and drive ! | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1587 Registered: 05-2014 Posted From: 137.200.32.54 Rating: N/A |
\\annai india lo potty seats untai annai. you can get them for 1500 bucks i guess. wifey buddadiki teesukundi. of curse aadu inka not potty trained anukondi yup, wife teesukundi.. trying that | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 23 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Urimi garu, I read in previous thread (long back) about your kid's gut issues.It's a lot to go through for the kid. Salute for everything you are doing for your kid. Coming to the massages, we used olive oil mixed with 2 spoons of epsom salt and massage entire body every night for 6months to 1 year. Sensitvie points like joints, nerve ending medha light ga two fingers tho tap cheyatam, comb tho body antha lite ga geeratam etc.I think this helped with his jumping, spitting activities. We stopped doing this for last 1 year, I resumed last week, but first day he didn't sleep 3hrs past his bed time, over active ayipoyadu, so stopped it ): | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26875 Registered: 01-2012 Posted From: 199.67.131.156 Rating: N/A |
annai india lo potty seats untai annai. you can get them for 1500 bucks i guess. wifey buddadiki teesukundi. of curse aadu inka not potty trained anukondi | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26874 Registered: 01-2012 Posted From: 199.67.140.45 Rating: N/A |
no no annai. nothing is trivial.. if somebody thinks these are trivial, i pity them.. anta normal ga unna kids parents ee first time amma anna nanna anna or edanna kotta word chepte or new gesture cheste muripam ga feel avtaru. why would these be trivial for any sane person 
db punyam valla i got to know about this. but parents daggara ee topic teeyali ante bayam. ekkada valla kid ni antunnamu anukuntaro ani. ante just educate cheddam ane effort. but back fire avtundi ani silent ga untanu.couple of times tried to bring this topic kani parents faces lo expressions maaripoyai..
true... | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1586 Registered: 05-2014 Posted From: 137.200.32.54 Rating: N/A |
///@OM - mee post about kid doing well in india chusaka, I'm tempted to send the family to india for the summer. You definitely got me thinking. Hopefully this trip will help him in big way.. ikkada vunnappude bathroom (no 2) couple of days skip cheyyatam modalu pettadu.. partial potty trained ... pee potty meeda (standing position) chestadu kaani potty ki velladu ikkada tub lo velle vaadu.. ippudu india lo ado big problem ayipoyindi.. ippatiki 1 time ee velladu.. he holds it.. idi ela fix cheyyalo ardham kavatam ledu.. hopefully he overcomes it soon | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1585 Registered: 05-2014 Posted From: 137.200.32.54 Rating: N/A |
How many words your kid have emiti meaning? how many words he speaks by his own or what he repeats? my kid sings most of the poems and most of the songs. Car lo veltunte, starting music vini song padatam start chestaadu.. aadukuntoo songs hum chestaadu padataadu.. so ivanni kid words loke veltaaya? | ||
Jalsa Legend Username: Jalsa Post Number: 35681 Registered: 02-2008 Posted From: 159.53.78.142 Rating: N/A |
Wife is also on FB group for our district. lot of parents didn't know that school would provide those services until she asked them. Old district was way better than current one. California gives medicaid benefits and hence free ABA easily ata. | ||
Urumi Side Hero Username: Urumi Post Number: 4171 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
maaku idi biggest problem andi. family members ki tappa ippati varau evvarito discuss cheyyaledu, especially with desis. school related , outside whhite ppl to discuss chesta. pilladni ela treat chestaaro anii bhayam. nenu vere chaala groups lo participate chestaanu andi. but, mana culture, and mana la educated and open to things vundaru andaru. mana way of thinking ..same vundadu..cultural differences vuntay kada. it's always helpful to share our ideas. and manam services ki pay cheyyataaniki kooda ekkuva think cheyyamu. i have made some good telugu friends online (through fb) who are going through similar situation and we are sharing ideas.. california benefits >>> more info please | ||
Jalsa Legend Username: Jalsa Post Number: 35679 Registered: 02-2008 Posted From: 159.53.46.142 Rating: N/A |
Group pedhhadhi avuthundhi ippudu, this is the right time to form a group. We can talk about school also - how to get services from school, alternate medical approaches like DAN, homeo etc. I have been spreading awareness at my work place...after i started talking about my daughter, 2 other colleagues came out and said their kids are autistic as well. From what i hear, california gives all benefits without too much paperwork ata. NJ sucks. NJ family care, medicaid ki apply chestey deny chesaaru saying she is not on a ventilator so can't accept ani. | ||
Jalsa Legend Username: Jalsa Post Number: 35678 Registered: 02-2008 Posted From: 159.53.78.143 Rating: N/A |
Itlantivi chaala untai...let me give you an example which seems very trivial for normal kids - hi/bye - intiki raaganey hi/bye cheppadam first time chesinappudu, memu chesey gesture imitate cheyadam, shoes vesukovadam, jacket ippadam, first bite of food using a spoon by herself...itaantivi anamaata...
She loves this so much. every day after coming from work, must and should ga swinging, running, hide and seek etc. ee madhya kothha intlo basement undhi kadha, she loves going there and running around.. | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26870 Registered: 01-2012 Posted From: 192.193.171.152 Rating: N/A |
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Urumi Side Hero Username: Urumi Post Number: 4170 Registered: 12-2011 Posted From: 173.70.23.200 Rating: N/A |
idi nenu chaala rojula nunchi cheptu vunna. atleast seperate closed section open cheste baavutundi. interested typical parents can join or else only 'we'(special parents) can discuss little more in detail. can you provide more info on this ?
 my son has severe gut issues. despite of having lot of issues , he is making some progress. homeopathy, school and ofcourse our help at home makes lot of difference.few days at home ABA vundedi. but health issues to sessions manage cheyyatam kashtam ani break teesukunnam. for speech, i keep on playing with him. right now, working on 'wh' questions. I use PECS, i use real objects, verbs with actions. btw, i am a mom. and i swing him every morning and evening and give him deep pressure so he can attend to his therapy services properly at school , but most of the time, his stomach issues won't support. @all dads, Good to see that you all are recognizing mom's efforts. my request to you in general is, be very patient, support us(moms) in every possible way ..intlo work kaani or any other help , and vunna tensions ki extra tesnsions create cheyyakandi :P | ||
Mahi_chiru Junior Artist Username: Mahi_chiru Post Number: 302 Registered: 05-2008 Posted From: 171.161.56.16 Rating: N/A |
yeah sorry niece | ||
Raman Legend Username: Raman Post Number: 48709 Registered: 01-2009 Posted From: 192.251.134.5 Rating: N/A |
ante menakodalu ani ardama? | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 21 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
How old is she now ? If you don't mind can you share before/after intervention details of her condition, please? | ||
Mahi_chiru Junior Artist Username: Mahi_chiru Post Number: 301 Registered: 05-2008 Posted From: 171.161.56.16 Rating: N/A |
we are trying homeopathy for my daughter in law, I will post the improvements, my daughter in law almost speaks, active etc, may be slightly artistic | ||
Jalsa Legend Username: Jalsa Post Number: 35677 Registered: 02-2008 Posted From: 73.197.109.142 Rating: N/A |
It does, more on interaction. She wants her sister to run with her and throw her the ball. We are trying to get her sister to play with her as well. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 20 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
You summarized it well in single sentence. That's pretty much what we did. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 19 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
"Can you tell me how functional your kid was at the time of diagnosis? Was he high or low functional? Was his nonverbalism purely associated with tongue-tie issue or was any autism component to it?" When we found he autism at 2, we don't know if he was low or high, too early i think. I don't think his non-verbalism is due to tongue tie. lack of speech is a minot aspect of autism, the major ones being lack of eye contact, not interested in other kids, being disconnected, improper play with toys - my son had all these issues. The doc who did is test in india said he is in the 50% range, kind of. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 18 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
We started ABA few weeks back since he really needs it now.Now he does 1 OT, 1Speech, 2 ABA's outside and 1ot, 1speech in county school. Initial ga, we ourselves were getting a hang of how therapies work. So didn't go for too many therapies. If you don't mind can you share your email or email me at altrealityittiam at gmail, would like to know more about what you did and see if we can do anything differently. Yes, he is verbal now. He has lot of words, much more than than what we used to count before. Now he catches words from what we say and repeats 1 out of every 4 new words from our mouth.He is now more into doing or saying the opposite of everything. good morning ante bad morning, good boy ante bad boy, amma ante naanna, annayya glass ante my glass, behaves like sheldon saying my spot etc. Therapists are like atleast he is smart enough to maintain consistency in being opposite antaru. Yes, having elder brother is a big plus. As I mentioned in my first post, we saw the most improvement during last summer when his brother was at home everyday. He tries to pull everything from him. He removes his school bag, takes off his brother's shirt when he gets down from the bus, pulls away sotry books etc. He irritates his brother now but they do play with each other sometimes. @OM - mee post about kid doing well in india chusaka, I'm tempted to send the family to india for the summer. You definitely got me thinking. | ||
Ishan Side Hero Username: Ishan Post Number: 9865 Registered: 01-2009 Posted From: 76.30.50.54 Rating: N/A |
Deja vu, pretty much same story with us too, except that my wife collapsed in the pediatrician's office itself. Though I knew about autism before the diagnosis owing to my medical background, its totally a different thing when it happens to your own kid. /// I would be doing a disservice to my wife if I attribute everything to luck. Most people try 10 or 100 times before giving up. She taught him the how to jump with two legs in the air for 1000 times. She resisted the urge to go away from the diet whenever he didn't eat properly./// Absolutely and salutes to her. Same story again...we see and hear stories of incredible mothers in movies and stories, but we gotta give them man...I never believed my wife had such levels of energies, patience and persistence... I think you should have gone for ABA too along with other approaches. What you heard about ABA were ancient stories when it was at infancy. ABA and OT made huge difference to my son - we can clearly notice the positive changes he has been showing after 3 years of interventions...of course still long way to go. Let me ask you couple of questions - Is your son verbal now? if yes, how many words is he speaking? is he currently going to Speech T? Second question is, how helpful has it been having a 'normal' kid/sibling at home? Do you think it has helped in gaining any communication skills? Thanks for sharing your story. Don't text and drive ! | ||
Keko_keka Side Hero Username: Keko_keka Post Number: 2343 Registered: 07-2010 Posted From: 68.63.47.100 Rating: N/A |
hatsoff to ur effort. I am happy to hear that he is improving. Keep fighting. God bless the little one. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 17 Registered: 02-2017 Posted From: 12.127.135.22 Rating: |
Yes, totally agree that we are lucky that he responded to our interventions. One definitely needs a bit of luck for the stuff to work. He had decent speech until he was 18 months old. He fell sick with loose motions and vomiting for 2 continuous day and slowly lost every word within 3 months. He was oblivious to people around him, always staring into distance, lost in his own world, obsessed with one or two things. Didn't even utter the word amma. 2nd year check-up lo pediatrician trip lo found out about it. That's the first time I heard the word called 'autism'. My wife came home and collapsed crying. I would be doing a disservice to my wife if I attribute everything to luck. Most people try 10 or 100 times before giving up. She taught him the how to jump with two legs in the air for 1000 times. She resisted the urge to go away from the diet whenever he didn't eat properly. First 3 months were painful. I remember after 6 months running down to my wife and telling her that my son spit water out of the mouth while giving him bath. Never giving up until we ticked off one more item on the mchat was the key for us. But yes, we were lucky in the sense compared to lot of families out there who are still struggling. No child has to go through this since any thing wrong with brain is not visible to outside for the rest of the people to empathize their behavior. | ||
Vizagnumberone Comedian Username: Vizagnumberone Post Number: 1452 Registered: 09-2014 Posted From: 216.163.255.100 Rating: N/A |
brother sent you an email Fan of chiru(movies)and pavan | ||
Boeing747 Junior Artist Username: Boeing747 Post Number: 200 Registered: 04-2016 Posted From: 199.19.252.45 Rating: N/A |
hats off sir..You are doing a great job | ||
Pols Junior Artist Username: Pols Post Number: 274 Registered: 06-2016 Posted From: 199.90.35.12 Rating: N/A |
Anthamidhya Annai, Normal Ga Pilallni Devulu Antaaru Ee Case lo Valatho Paatu Miru and Mi Wife Idharu Kuda Devulle Infact Intha Effort Peduthuna Parents Andaru Kuda _/\_ God Bless You All ! | ||
Cool_indian Side Hero Username: Cool_indian Post Number: 3169 Registered: 02-2008 Posted From: 24.55.51.6 Rating: N/A |
Truly inspiring. Mana Db lo ilanti positive stories inka ravali... | ||
Vasu Hero Username: Vasu Post Number: 14147 Registered: 10-2014 Posted From: 72.82.148.10 Rating: N/A |
God bless to both of you parents bhayya...hope your son will be a normal soon | ||
Politricks Megastar Username: Politricks Post Number: 21248 Registered: 03-2008 Posted From: 160.83.72.207 Rating: |
Anthamidhya Hatsoff to you and Double Hatsoff to your wife! Ladies ki vere ye vishayaalu yela unna Pillala vishayam lo chala opika isthadu devudu and ilantivi chusi nappudu artham avuthondi why so ani! God Bless all the Moms in this world with happiness! And God Bless your Kid! | ||
Nanigadu Hero Username: Nanigadu Post Number: 19630 Registered: 02-2008 Posted From: 32.97.110.58 Rating: N/A |
@Tweety:Thanks maava, I am asking the doctor onemore time to re check on hr tongue..lets see what they say.. ------------------------------------- good luck | ||
Tweety Comedian Username: Tweety Post Number: 1977 Registered: 04-2008 Posted From: 173.225.160.178 Rating: N/A |
Nanigadu ......... ------------- Thanks maava, I am asking the doctor onemore time to re check on hr tongue..lets see what they say.. | ||
Ishan Side Hero Username: Ishan Post Number: 9864 Registered: 01-2009 Posted From: 76.30.50.54 Rating: N/A |
Great, I am very happy for you and I am glad that you are happy with the progress. Most parents do the same interventions you described, but only few lucky kids respond to them completely. Obviously your kid is one them. Can you tell me how functional your kid was at the time of diagnosis? Was he high or low functional? Was his nonverbalism purely associated with tongue-tie issue or was any autism component to it? Don't text and drive ! | ||
Sachin Legend Username: Sachin Post Number: 42288 Registered: 04-2008 Posted From: 108.171.130.163 Rating: N/A |
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Nanigadu Hero Username: Nanigadu Post Number: 19629 Registered: 02-2008 Posted From: 32.97.110.58 Rating: N/A |
@OM eeniki thodu.. we both are not social. We don't meet people. US vachi 10 years ayina kooda friends tho kalisi vellina trips ante (im not talking about long trips) vellatho lekkettachu.. may be naaku dorikina circle alantido leka malo problemoo teliyadu.. vunna friends kooda ekkadikayina veldam (mall, park, movie etc..) ante not now ane valle dorikaaru.. so ala we stopped asking.. eppudo weekend kalavatam ante.. maaku ala alavatayipoyindi.. so veedu ala ontari ayipoyaadu ani feeling.. ----------------------------------------------- i dont think this as an issue brother, ee rojullo ila andaritho kalisey couples kanna, kalavani couples ne nenu ekkuva chustunnanu including us, kalavakoodadhu ani kadhu, kavatam kudaraka kalavatledhu, usually edanna cinema vosthey kalisi veltham antha friends, and temple trips, sight seeing trips thappa, every week vokarni vokaru kalavatam anedhi chaaqla kastham some of the reasons that i think is our eating habits effects kids a lot, intilli padhi organic thinalani kadhu kani, at least during pregnancy time organic/natural foods thinatam alavatu chesukuntey best for kids, nenu chusinantha varaku most of the parents give whatever their kids ask, candy's, cakes, mcdonalds mcnuggets etc, antey junk food day to day life nunchi theeseyyali its should kind of a reward ani naa idhi | ||
Nanigadu Hero Username: Nanigadu Post Number: 19628 Registered: 02-2008 Posted From: 32.97.110.58 Rating: N/A |
@Tweety:when I asked dcotros here...they said nothing to wory..but I still feel it couldbe an issue? ------------------------------------------- well in our first one case, delivery aina next day, nurse figured it out that she wasn't able to drink her milk, sucking issues vuntayi, so within one month set chesam appointment pedda painaful gaa kuda vundadhu kid ki, becoz it doesn't have a nerve, just snip chesthadu doctor antey nothing to worry | ||
Bunty717 Moderator Username: Bunty717 Post Number: 51606 Registered: 02-2008 Rating: N/A |
to all the effected parents in this thrd..  | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26866 Registered: 01-2012 Posted From: 199.67.131.156 Rating: N/A |
http://www.autismtreatmentcenter.org/contents/other_sections /aba-vs-son-rise-program.php ikkada unnai videos konni. not sure if these are what you are talking | ||
Jalsa Legend Username: Jalsa Post Number: 35676 Registered: 02-2008 Posted From: 159.53.78.143 Rating: N/A |
There is training for Son-rise at some remote location ata. Because of our other kids' health, we didn't think seriously about it. It basically goes against ABA, like doing what the kid does. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 16 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Haven't heard of son-rise - will look into it. In Atlanta, there is brain balance therapy for which you need to be 4 yrs old to be eligible, heard good and not so good things about it, super costly as well and not covered by insurance. | ||
Chandhra Junior Artist Username: Chandhra Post Number: 986 Registered: 03-2016 Posted From: 71.62.203.11 Rating: |
Very nice post anna. Solid plan, dedication, time investment and Love are the keys. Thank You. | ||
Jalsa Legend Username: Jalsa Post Number: 35675 Registered: 02-2008 Posted From: 159.53.78.143 Rating: N/A |
This is so true. Either GFCF or ABA ani blind ga cheppestaaru. we asked so many questions, but they don't have many answers. | ||
Jalsa Legend Username: Jalsa Post Number: 35674 Registered: 02-2008 Posted From: 159.53.78.143 Rating: N/A |
For us the most benefit she got out of was from ABA, i think that's mostly due to her therapist. unfortunately, she is not working with us anymore. Did you look at something like Son-Rise therapy? There are some videos about that as well. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 15 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
For parents with toddlers, this is a good chart to fill every 3 months until they are 2-3 yrs old. Fill this from when they are 9-12 months old. This will help identify any red flags in early stage. The earlier you identify the problem, the more time you get to improve. https://www.m-chat.org/_references/mchatdotorg.pdf | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26865 Registered: 01-2012 Posted From: 192.193.216.151 Rating: N/A |
idi kuda waste sister.. only impacted parents ki telustadi. db lo urumi jalsa discuss chese daka ilantidi okati untadi ani teleedu naku... general db public ki kuda telustadi kada.
hmm.. not an inconvenience for us. but yeah . advice seeking parents ki unte definite ga private gane deal cheyyali. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 13 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
To all those papers who are impacted - This is a good book to read. http://stevesilberman.com/book/neurotribes/ You can find it in your libraries. It's a very dense read, also more than 500 pages long. It is the most accurate, comprehensive book out there about the history of autism. It will make you cry at multiple places. We lost about 80 yrs worth of advancement in autism (here in usa) because of just one guy called Leo Kanner. One more reason to be ethical and moral as well in our professions, not just legally correct. Without understanding of history of autism, you won't be able to STRONGLY advocate for your kids. The book has no magic cures, just history. but it will give you the strength and belief that you can overcome. This is one of the many books i read. I pretty much researched the crap out of this topic including watching 100's of tedx autism videos looking for clues on understanding what my kid is going through. | ||
Whyme Megastar Username: Whyme Post Number: 20941 Registered: 09-2009 Posted From: 171.159.194.11 Rating: N/A |
Hats off to you and other brave parents in the same boat.. God bless | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 12 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Sure,good point about ROM members. I have no problem discussing as long as the person asking has no issue. I didn't want it to be inconvenience for others. | ||
Analog Side Hero Username: Analog Post Number: 4594 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
yep create separate section or something so that threads wont get archived | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 11 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
He is close to 4 now. We did all the therapies except ABA. My initial research about ABA sounded too cruel to me. I didn't like the history behind (shock treatments, denying food or other stuff to kids who didn't behave) it and moreover we started with therapies one at a time as we were figuring out our strategy. Now he is in a stage where he understands the concept of consequences. so just started aba from 2 weeks. gotta see how it goes. I live in Atlanta, btw. | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26864 Registered: 01-2012 Posted From: 199.67.140.42 Rating: N/A |
brother ikkade discuss cheste more people in ROM also can see it. just a friendly suggestion. but mee comfort ee ultimate | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 10 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Sorry to know that you are in the same boat. Yes, that's the major reason to share our story - to assure people like us (2 yrs back) that there is some light at the end of the tunnel. The medical system here is too slow( slower than desi bureaucracy) and far out of date w.r.t autism compared to the rest of the world (more details about this in the evening when i get off work). Your peditrician doesn't suggest the next steps and you are left alone to figure the pieces of the puzzle. I don't know how far along you are, but reach out to me on my gmail at altrealityittiam at gmail and we can discuss more. | ||
Analog Side Hero Username: Analog Post Number: 4593 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
awesome
nope..power optimization in ICs | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 9 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
altrealityittiam@gmail.com is my email id if anyone wants to reach out. | ||
Tweety Comedian Username: Tweety Post Number: 1976 Registered: 04-2008 Posted From: 173.225.160.178 Rating: N/A |
Anthamidhya Maava typo error in my email ,if you cant give me your email,can u send me klp2498@gmail.com ? Thanks | ||
Siloan Legend Username: Siloan Post Number: 48979 Registered: 03-2008 Posted From: 132.174.20.41 Rating: N/A |
terrific | ||
Siloan Legend Username: Siloan Post Number: 48978 Registered: 03-2008 Posted From: 132.174.20.41 Rating: N/A |
excellent sodara | ||
Tweety Comedian Username: Tweety Post Number: 1975 Registered: 04-2008 Posted From: 173.225.160.178 Rating: N/A |
Anthamidhya tHANKS MAAVA,Do u mind shring your email? or you can send me email at klp249@gmail.com | ||
Gandhiguevara Legend Username: Gandhiguevara Post Number: 62914 Registered: 10-2009 Posted From: 67.191.221.7 Rating: N/A |
Urumi's post tarvatha antha touching post idhe yee topic lo... | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1581 Registered: 05-2014 Posted From: 137.200.32.54 Rating: |
\\How can we prevent it? What could have caused it? Maa cousin cheyani treatment ledu.... complete cure kaadu ane opinion ki vachhesadu... asalu enduku US kids lo intha ekkova ga vundhi...None in India in our circles...No family history... enduku vastundi annda daniki exact reason ledu, ela cure cheyyali anndaniki kooda exact answer ledu.. ma vaadi vishayam lo memu anukunedi my wife was in labor for 3.5 days at the time of delivery, so it might be the reason. all these days they keep saying, contractions are not intense. but she has all 3 days. last day kooda water break ayyindani admit chesukunnaru.. admit chesukunna taruvata kooda waited around 15 hours, appatiki avvaka pothe appudu C-section chesaaru.. the pain during that time, might be the reason ani anukuntaamu.. deeniki thodu.. we both are not social. We don't meet people. US vachi 10 years ayina kooda friends tho kalisi vellina trips ante (im not talking about long trips) vellatho lekkettachu.. may be naaku dorikina circle alantido leka malo problemoo teliyadu.. vunna friends kooda ekkadikayina veldam (mall, park, movie etc..) ante not now ane valle dorikaaru.. so ala we stopped asking.. eppudo weekend kalavatam ante.. maaku ala alavatayipoyindi.. so veedu ala ontari ayipoyaadu ani feeling.. these are the things we think.. ivi kaakunda verevi kooda vundachu, which we don't know.. like.. at age of 1.5 grand parents vacharu, vallatho close aye time lo they left (they had to go in a month, sudden return). ventane day care lo vesam.. akkada 3 months vunchi teesesaam (naa aalochana valla, money save cheddam ani + CMS manchidi ani) CMS lo assalu adjust avvaleka poyaadu.. CMS vellina 3 months lo okka sari kooda lunch tinaledu.. ika 3 months taruvata manpinchesaam.. may be he was missing first school.. we didn't realized it.. ila manaki teliyani vi kooda vundachu... vallu cheppaleru.. manam ardham chesukolemu | ||
Gandhiguevara Legend Username: Gandhiguevara Post Number: 62913 Registered: 10-2009 Posted From: 67.191.221.7 Rating: N/A |
akkoy mee research yee field lonenaa? maybe I am confused | ||
Humpty_dumpty Moderator Username: Humpty_dumpty Post Number: 35277 Registered: 02-2009 Rating: N/A |
i have this one with my tongue my daughter had it too when she was born...doc suggested option and we got it done very glad to read about your experience inspiring | ||
Vizagnumberone Comedian Username: Vizagnumberone Post Number: 1451 Registered: 09-2014 Posted From: 216.163.255.100 Rating: N/A |
Me couple ki padabhivandanam it gives us a hope that our kids at one point of time may come out of this Fan of chiru(movies)and pavan | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1580 Registered: 05-2014 Posted From: 137.200.32.54 Rating: N/A |
\\Please keep me posted on how the ayurvedic massages are working out for your little one. Sure, I will update. May be next week teesuku nunchi start chestaaru.. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 8 Registered: 02-2017 Posted From: 76.122.106.214 Rating: N/A |
It's called tongue tie surgery. The doc clips the tissue that connects the tongue to the bottom or top of the mouth. If kids can't stretch their tongue fully outward or up or down, this surgery will help. Takes a week for it to heal, nothing to worry about | ||
Jaguar Junior Artist Username: Jaguar Post Number: 3 Registered: 01-2017 Posted From: 12.180.115.102 Rating: N/A |
How can we prevent it? What could have caused it? Maa cousin cheyani treatment ledu.... complete cure kaadu ane opinion ki vachhesadu... asalu enduku US kids lo intha ekkova ga vundhi...None in India in our circles...No family history... | ||
Tweety Comedian Username: Tweety Post Number: 1974 Registered: 04-2008 Posted From: 173.225.160.178 Rating: N/A |
------------------- Anthamidhya. ---------------------- AWESOME Efforts maava.. can you tell me more info on this tongue surgery? when I asked dcotros here...they said nothing to wory..but I still feel it couldbe an issue? | ||
Jalsa Legend Username: Jalsa Post Number: 35673 Registered: 02-2008 Posted From: 159.53.46.143 Rating: |
How old is he? Do you give ABA to him? Where do you live in US?
veellaki dandam ettaali. dealing with kids, their tantrums, teaching them, their schedules, coordinating with therapists, writing notes to teachers etc. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 7 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Thanks for all the good wishes, all the accolades should go to my wife since she deals with him for the maor part of the day. We still have a long way to go and anxiety that he may regress anytime is always there. I'm looking for people who have been down this path for longer than me to reduce our anxiety. Lot of you guys have suggested sharing in social media. I'm not much into fb and it's not an easy decision for my wife to post this stuff in fb. Hopefully, I will be able to connect with few db members with similar issues (please PM me if you are in the same boat as me), learn from them and then take it from there. But in the mean time, one of my goal is to raise awareness about autism in close circles and that itself isn't easy. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 6 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Yes, eye contact while talking to people, also looking at things outside and focusing on that particular thing. Eye contact is the first thing kids need to learn from other kids, that's how all of us learn as kids. Once that improves, they will be able to follow what we are trying to teach. We used hi-five or other physical contact based techniques to overcome people anxiety in him. Now he says hi and bye to people he has met frequently. Now while sitting in car, he will look outside and correctly say 'gas tationnnn' when we pass a gas station or his school. | ||
Nanigadu Hero Username: Nanigadu Post Number: 19616 Registered: 02-2008 Posted From: 32.97.110.58 Rating: N/A |
Hats off to you guys, as everyone mentioned, you should share your story on social media, create a FB page and keep posting updates, it will help a lot for other parents keep up the good work and God Bless your family. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 5 Registered: 02-2017 Posted From: 12.127.135.22 Rating: N/A |
Good to hear that your kid is doing well in India. I have heard cases of it going both ways. Issue with India is access to therapies/special ed schools is minimal. On the other hand nature lo perugutharu ,especially rural areas, which is good. But one of the parent needs to be with the kid all the time since even grand parents can't understand the concept of autism fully. emundhi now he is better anukuni lite thesukunte, they will regress. When my kid went to India, he lost all his speech and was complete ayomayam. Both families were crying every day looking at him. So aa time lo after all the tests were done, we decided to bring him back here and deal with the issue ourselves since my wife was becoming mentally weak being alone in India. Please keep me posted on how the ayurvedic massages are working out for your little one. | ||
Analog Side Hero Username: Analog Post Number: 4591 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
Awesome effort....kudos to you and your wife... | ||
Asdf Megastar Username: Asdf Post Number: 26063 Registered: 12-2014 Posted From: 76.109.163.196 Rating: N/A |
good to know OM ba. | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26857 Registered: 01-2012 Posted From: 199.67.138.43 Rating: N/A |
 hope it does \pray.... | ||
Vr0000m Junior Artist Username: Vr0000m Post Number: 399 Registered: 03-2011 Posted From: 165.200.111.26 Rating: N/A |
Great job...god bless you and your family! Go PACK Go!!! | ||
Cinejeevi Side Hero Username: Cinejeevi Post Number: 5117 Registered: 10-2014 Posted From: 72.166.89.74 Rating: N/A |
andariki malli peDataaunDaa daNNam.. god bless... brahmaghnE cha eva suraapEcha chOrE bhagnavratE tadhaa! nishkrutir vihitaa sadbhihi, kRutaghne na asthi nishkruthi!! | ||
Twotown Side Hero Username: Twotown Post Number: 3791 Registered: 09-2016 Posted From: 207.244.66.70 Rating: N/A |
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Legend Username: Twitter Post Number: 50031 Registered: 10-2009 Posted From: 66.194.212.162 Rating: N/A |
your kid is blessed .. good work moms and pops | ||
Kantha_rao Side Hero Username: Kantha_rao Post Number: 3414 Registered: 11-2013 Posted From: 12.218.0.70 Rating: N/A |
dude...maa pedda ammayi kuda evaritho ayina (except parents and very close family friends) doesn't do eye contact while talking, konchem siggu ekkuva..she doesn't interact properly with outside people..actually she talks very less, to be specific she just answers yes or no...she is 9 years old...could you please let tell me any tips you know to maker her do the eye contact or boost self confidence in her | ||
Monk Comedian Username: Monk Post Number: 1005 Registered: 10-2013 Posted From: 155.98.164.39 Rating: N/A |
Great job parents god bless your family Tracking vunna chota week tracking leni chota stronge………. | ||
Kantha_rao Side Hero Username: Kantha_rao Post Number: 3412 Registered: 11-2013 Posted From: 12.218.0.70 Rating: N/A |
Great parents you are and kids are blessed to have you as their parents...Salute!! | ||
Jalsa Legend Username: Jalsa Post Number: 35672 Registered: 02-2008 Posted From: 159.53.110.141 Rating: N/A |
Awesome effort!
I hope you meant Eye contact while talking to you. | ||
Jalsa Legend Username: Jalsa Post Number: 35671 Registered: 02-2008 Posted From: 159.53.110.141 Rating: N/A |
This is very important. Lot of parents hide due to various reasons. It's very important to share this (not publicize) so others are aware what to expect from the kid and what we expect them to do.
Yeah, got all these done. One thing that came out was she had very high lead level. At that time, we were using some ayurvedic powder and stopped it immediately. This helped bring down lead level. Everyone, please check Lead Level inspection reports sent out by schools. I recently looked at our school's report and they had 3 areas where lead level was high and they had shut them down. ABA every day at home, and at school, speech, OT at home and outside once a week. ABA at home helped her quite a bit. If there is a break in this, lot of regression and behaviors come up.
She used to have horrible sleep patterns, almost 4-5 days a week. She used to sleep at 11 pm wake up at 2.30 am and stay awake till 6.30 am and then sleep and wake up by 7.30 to go to school. We started on GFCF diet more than anything, it helped her sleep pattern. Especially eliminating milk related items helped with her sleep. | ||
Sony Legend Username: Sony Post Number: 33746 Registered: 12-2006 Posted From: 170.48.2.185 Rating: N/A |
God bless you and your family  | ||
Kaisersooze Moderator Username: Kaisersooze Post Number: 15276 Registered: 04-2009 Rating: N/A |
great job bro.. | ||
Jodhaa Legend Username: Jodhaa Post Number: 34025 Registered: 02-2008 Posted From: 104.129.196.177 Rating: N/A |
awesome!!! | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1579 Registered: 05-2014 Posted From: 137.200.32.54 Rating: N/A |
\\ee trick chala mandi ki pani chestadi aa hope thone vunnamu.. | ||
Khaleja Side Hero Username: Khaleja Post Number: 3945 Registered: 09-2009 Posted From: 37.187.147.158 Rating: N/A |
Hope everything works great bhayya. you guys are the best. | ||
Mikkymouse Hero Username: Mikkymouse Post Number: 12132 Registered: 04-2008 Posted From: 70.191.59.106 Rating: N/A |
Awesome Bro, God Bless you and your family. Nuvve unna kannulatho mare vanka choodanani reppa venuka ninne ella kaalam dhachani... | ||
Sri_anji Hero Username: Sri_anji Post Number: 12810 Registered: 02-2008 Posted From: 54.86.240.190 Rating: N/A |
Absolutely! God Bless you guys and the kid! The best Odarpu | ||
Rowdy Legend Username: Rowdy Post Number: 38846 Registered: 01-2010 Posted From: 50.225.47.29 Rating: N/A |
ee trick chala mandi ki pani chestadi | ||
Sesani Legend Username: Sesani Post Number: 49384 Registered: 08-2014 Posted From: 204.128.4.5 Rating: N/A |
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Bharateeyudu Side Hero Username: Bharateeyudu Post Number: 4312 Registered: 03-2016 Posted From: 117.221.91.211 Rating: N/A |
generally I am not sentimental in fact bandaraayi laanti vaadini..... but ee story nannu kudaa kadilinchindi...nenu chaduvuthuntee..I was able to visualise what u and ur family were doing and going through...hats off maann for your writing ...truly hats offf for your dedication ... ur kid is lucky to be in ur family... | ||
Onlymovies Comedian Username: Onlymovies Post Number: 1578 Registered: 05-2014 Posted From: 137.200.32.54 Rating: N/A |
We stopped sending my kid to day care/pre school from Feb 2nd. appatnunchi wife konchem change choostundi in good way, pilichina ventane choodatam cheppindi cheyyatam alaa. Last week India vellaru, wife observing drastic change. He is playing with kids, sharing toys, cheppindi ventane cheyyatam, stop ante aagatam, pilichina ventane (evaru pilichina) daggaraki ravatam.. ilantivi.. we are very happy.. inka matladatam ledu.. Hope this trip works for him... | ||
Balu_gani Junior Artist Username: Balu_gani Post Number: 285 Registered: 05-2015 Posted From: 204.74.159.3 Rating: N/A |
AWESOME bro...thanks for sharing....you are an inspiration to parents... | ||
Itzpetergriffin Comedian Username: Itzpetergriffin Post Number: 1071 Registered: 04-2012 Posted From: 63.106.106.2 Rating: N/A |
Amazing to read this, rendu chethulu yethi dannam pettali anipisthundhi...I can relate to the mixed emotions you go through as a parent in this journey...You should share this story in social media so that you can give solace or inspire a lot of depressed/anxious parents... | ||
Jodhaa Legend Username: Jodhaa Post Number: 34019 Registered: 02-2008 Posted From: 104.129.196.177 Rating: N/A |
+111111 | ||
Jodhaa Legend Username: Jodhaa Post Number: 34018 Registered: 02-2008 Posted From: 104.129.196.177 Rating: N/A |
Great job andi..inka em cheppaalo ardham kaavatam ledhu..more power to you and your wife. God bless the little one! | ||
Pulpfiction Legend Username: Pulpfiction Post Number: 42769 Registered: 02-2009 Posted From: 64.102.249.7 Rating: N/A |
best of luck and may god help the kid quickly .. Jai Rayala Seema ! | ||
Jaguar Junior Artist Username: Jaguar Post Number: 2 Registered: 01-2017 Posted From: 12.180.115.102 Rating: N/A |
How many of you think this challenge is due to Vaccines/ GMO food? | ||
Sesani Legend Username: Sesani Post Number: 49380 Registered: 08-2014 Posted From: 64.134.243.206 Rating: |
God bless! Inspiration you are to many parents... Bhayya.. dnt stop here... Take this to next level and please spread this on social media as much as possible in formal way... attend small seminars if possible... Your journey may or may not work for others but your words will definitely inspire and make the HOPE stronger to many parents.. | ||
Mental_sachinodu Hero Username: Mental_sachinodu Post Number: 19438 Registered: 10-2008 Posted From: 24.125.46.70 Rating: N/A |
awesome brother.. we are on the same boat. he changed quite drastically in the last few months but still has long way. every small improvement gives a lot of hope. keep up the effort. | ||
Pulpfiction Legend Username: Pulpfiction Post Number: 42768 Registered: 02-2009 Posted From: 64.102.249.7 Rating: N/A |
very nice and happy to know .. god bless .. Jai Rayala Seema ! | ||
Asdf Megastar Username: Asdf Post Number: 26061 Registered: 12-2014 Posted From: 76.109.163.196 Rating: N/A |
great job bro. | ||
Jaguar Junior Artist Username: Jaguar Post Number: 1 Registered: 01-2017 Posted From: 12.180.115.102 Rating: N/A |
God bless your family. I know 3 kids with the same developmental issues here in US. My cousin's , friend's and neighbor's kids. Youngest kids in all the cases. | ||
Asdf Megastar Username: Asdf Post Number: 26060 Registered: 12-2014 Posted From: 76.109.163.196 Rating: N/A |
allergy or he does not want to eat other foods? maa vaadu alaane plain bread or rasam/curd rice only tine vaadu. so texture sensitivity anukunnam. aa madhya bhaya petti tinpiste oka month tinnadu. now again back to his old ways. now we know he was just being picky | ||
Stellar Side Hero Username: Stellar Post Number: 9344 Registered: 02-2016 Posted From: 192.200.5.41 Rating: |
antha baagaane vunna kids ni penchi, edo kastapadipoyi penchtunnattu feel ayye ee rojullo, mee vopika, kastaniki hats-off | ||
Buduguuu Megastar Username: Buduguuu Post Number: 26851 Registered: 01-2012 Posted From: 69.132.118.7 Rating: N/A |
 awesome... God bless the little one and your family. hatsoff to your patience and efforts | ||
Redclaw777 Side Hero Username: Redclaw777 Post Number: 3626 Registered: 12-2011 Posted From: 106.220.24.46 Rating: N/A |
Awesome effort buddy....Wishing you and your kid All the Best! | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 3 Registered: 02-2017 Posted From: 76.122.106.214 Rating: |
I have read that the diet worked for lot of kids, so tried it. He loved curd rice so much but luckily we weaned him away from it.It takes solid 6 months to 1 year to see any impact.Recently whenever we give him nuggets or regular chocolate his hand flapping increased. In our case, diet definitely worked. He eats the least non processed food. Each kid is different. There is no one single gun shot solution that works. It's a mix of diet, supplements,therapies, focus on him, observing his every move to understand his needs, Pooja lunch, vrathalu and homams, friend circle, teachers in play school etc etc | ||
Ramnath Junior Artist Username: Ramnath Post Number: 1 Registered: 02-2017 Posted From: 183.82.105.213 Rating: N/A |
Great job bhaya... | ||
Starbucks Side Hero Username: Starbucks Post Number: 4793 Registered: 08-2011 Posted From: 182.251.248.39 Rating: N/A |
Great and inspiring...we are spending similar efforts... hope to see good results Is that really need to follow GFCF diet? It's very tough for us as he eats only breads We followed for sometime and he become completely weak When "i" is replaced with "we", even "illness" becomes "wellness" | ||
Nagfanscom Side Hero Username: Nagfanscom Post Number: 5176 Registered: 12-2006 Posted From: 108.171.159.41 Rating: |
God delivered this child to Best Parents CBN: Man with Vision & Mission facebook.com/NamoNaraYanam https://www.youtube.com/watch?v=wBIfjgfl4Ng | ||
Rbreddy Junior Artist Username: Rbreddy Post Number: 445 Registered: 02-2008 Posted From: 101.176.108.173 Rating: N/A |
God bless your family | ||
Rudra Junior Artist Username: Rudra Post Number: 181 Registered: 03-2016 Posted From: 171.192.0.10 Rating: N/A |
Great post, really helpful for other parents. One of my friends daughter has the same situation and can see how much patience, dedication you need. Great job and you are awesome. | ||
Swavas Junior Artist Username: Swavas Post Number: 717 Registered: 11-2014 Posted From: 76.98.239.52 Rating: N/A |
Great post bayya..I wish you a happy life for your family.. | ||
Rebel Hero Username: Rebel Post Number: 15498 Registered: 02-2008 Posted From: 159.45.186.45 Rating: N/A |
SUper! Great job bhayya. | ||
Last_avataar Side Hero Username: Last_avataar Post Number: 8406 Registered: 09-2012 Posted From: 71.223.246.187 Rating: N/A |
Great Job Bro. You are awesome God bless you and your child Mee effort chakkani results isthayi Keep up your fantastic efforts I feel happy to share your positive results | ||
Jambalahaart_raja Side Hero Username: Jambalahaart_raja Post Number: 7417 Registered: 07-2008 Posted From: 24.45.107.249 Rating: N/A |
Yem cheppaalo teliyatamledu. God Bless. "Chill Bro. I told you to let it go!!" - The Budhha. | ||
Anthamidhya Junior Artist Username: Anthamidhya Post Number: 2 Registered: 02-2017 Posted From: 76.122.106.214 Rating: |
Sorry, I opened a new account the day onlymovies autism calling thread was created but was approved only today. Here goes my post with the hope that it helps parents in similar situation. It would also be great if we can form a group and share tips related what has worked or is working for our kids. I have an awesometic kid as well. We found out about it when he was around 2 yrs old. This is what we did and hope this helps other parents with similar kids. 1. Vision, hearing tests in US to rule out any internal issues. 2. Complete blood tests for food allergies and heavy metal poisoning in India. Luckily none of the tests had issues. But we still decided to go ahead with GFCF diet. 3. Got sleep ECG & MRI done. One of the initial tests showed absence seizures which show up as kid staring into distance. But another test didn't replicate the issue. 4. Some of the above tests were done under the guidance of Dr.Kalyan Chakravarthy, a child psychiatrist in Hyderabad. He did a UK based autism score and said that he was in decent autism spectrum and suggested GFCF diet, massages and techniques on how to deal with him. 5. Since then we did massages for 6 months every day at home, speech and OT therapy in USA. At home, we got rid off all the puzzles and other stuff he was obsessed with and started teaching him from posters of birds, fruits, vehicles (stuff from India bazaars). We put all our time on him, especially my wife. She pretty much sat with him either reading a book, showing him how to play with a toy or teaching him colors etc. Initially it took 100 attempts to teach a word.We broke it down to basic words that he would encounter daily such as hi, bye,amma, nanna, dog, bird etc. Once he got a hang of the word, we showed him dog outside so that he could make a connection to the same. We didn't hesitate to tell our friend circle the problem he had. This helped us ask others to help us in interacting with him. We requested everyone to give him a hi-five to kick start hi social interactions. 6. In US, we also got a tongue tie surgery done. Someone in India told us that his tongue was stuck to the bottom of the mouth and has restricted movement. 7. After 6 months of intensive work, some vitamin supplements(calcium, magnesium,zinc and another tonic for memory, omega 3 ) he started showing progress. The first time he jumped with both his legs in air, we were so thrilled. He did that after we did that few 1000 times. Repetition was the key. 8. Our strategy was to focus on 2-3 items a month and get that to work for him. We took him to parks daily to get his muscles worked out. Olive oil with epsom salt massages at night to calm him down. My wife started baking Gluten Free Cakes for him at home for every bday party we attended since he was being left out from the fun. GFCF diet means, no milk. So we substituted that with Raagi jaava mixed with powdered nuts. 9.Over the summer, my elder son being at home coupled with MIL from India being here helped him a lot. He improved by leaps and bounds by end of summer. Now he has lot of words, can communicate basic needs if he wants to. One of the issue with autistic kids is their lack of eye contact. But after one year of all the above, his eye contact has improved the most. He can find stuff from nook and corner of the house, better than any of us. He also throws a konte look/smile and teases us while being mischievous. 10. He still has issues with being scripted in his words, repeating something from before, tantrums etc. Still a long way to go. End of the week, my wife will be exhausted dealing with him. Some days it feels very depressing but whenever he learns something new it feels soooo gooood and keeps us going. 11. Don't lose hope - easier said than done - but what other options have we got other than to fight. Miles to go before we can stop worrying what will happen to our kid when we are gone forever. But we keep telling ourselves that the only way to overcome this challenge is by having absolute positive outlook towards life. |
