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Autism updates

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Ramchander
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Username: Ramchander

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Posted on Monday, July 23, 2018 - 10:52 am:       


Ballasticmissile:


Brother comedy ki adigavo serious ga adigavo ardhama aithaledhu.. Are you curious about Autism or this thread?
 

Ballasticmissile
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Posted on Saturday, July 21, 2018 - 12:53 pm:       

what is this


..
man in love.
 

Ramchander
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Posted on Friday, July 20, 2018 - 09:54 am:       


Miniontada:


Thanks anna for the article. Interesting :-)
Assalu ee Autism endho ee gola endho..endhuku intha mandhi kids affect aithunaro. I hope god can answer to my questions
 

Miniontada
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Posted on Thursday, July 19, 2018 - 06:26 pm:       

https://www.nytimes.com/2018/07/13/opinion/autism-social-lif e-new-research.html
Chandranna Tofaa
PS: Appatlo Methanithodugu aka softwear
 

Ramchander
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Posted on Thursday, July 19, 2018 - 02:56 pm:       


Urumi:


Thank you Sister. This is helpful. Also maa vadiki dairy allergies unnayi so no curd edhina vere option undha sister for giving pre-biotic stuff. Prebiotic gummies better antara
 

Urumi
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Posted on Thursday, July 19, 2018 - 02:27 pm:       


Ramchander:


nordic naturals
 

Ramchander
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Posted on Thursday, July 19, 2018 - 10:15 am:       


Kranth1:


Thank you brother :-)
 

Kranth1
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Posted on Thursday, July 19, 2018 - 10:05 am:       

Bump
"Every twist, every turn, can challenge our sense of direction. But it's the choices we make when we reach a fork in the road that define who we are." - Dexter
 

Ramchander
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Posted on Thursday, July 19, 2018 - 09:58 am:       

Dr appointment November lo undhi. 1 hr ki some 450 dollars annaru.
Fish oil e brand better. Dr Kalyan gari prescribe chesindhi aypoyindhi. Emina manchi brand and composition unte cheppandi. Aa PDF book lo chusanu prebiotic/probiotic important anesi undhi..edhi better brand and gummies ok antara..
 

Ishan
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Posted on Tuesday, July 17, 2018 - 11:54 am:       

///How is OT related here? i though OT is only for physical activity///

OT helps with gross and fine motor skills which are deficient in many autistic kids...they also do balancing training which helps with cognition...OT also helps with anxiety which goes hand in hand in autism...my son loves OT and he is very happy the day he gets it.
"...but it's not who you are underneath, it's what you do that defines you..."
 

Brightlife34
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Posted on Tuesday, July 17, 2018 - 11:26 am:       

still cant think of a way to avoid Rice for my kid.. //

start slow. reduce portions and add more veggies. 0 on day 1 antey kastam. as I said before I never reduced it, I try to avoid unnecessary sugars like cakes, cookies, chocs to best extent.
rice always tough to avoid for my kid too. people try cauliflower rice option.
I think cauliflower ee rice laga avtundemo if you ground it. I don't know never tried it
 

Tadi_mattayya
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Posted on Tuesday, July 17, 2018 - 11:21 am:       

I still cant think of a way to avoid Rice for my kid..
First - he is underweight and picky eater

if u guys had to use some ingenious ideas pls let me know
 

Maverick
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Posted on Tuesday, July 17, 2018 - 11:17 am:       


Ferrari:


my daughter also got speech therapy around 2 and she will not stop talking now..so these therapies etc will definetly hlp. no harm in giving a little push when needed
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

Maverick
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Posted on Tuesday, July 17, 2018 - 11:14 am:       


Ferrari:


under 3 kids unnapudu watching and looking out better ani..my kid started talking from 2.5...so 2 appudu ala late ayyindani i started more focus..so ala continuing..i suggest parents of all toddlers and infants to get this awareness
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

Ramchander
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Posted on Tuesday, July 17, 2018 - 11:11 am:       


Ishan:


Thank you anna for the valuable inputs. Fish oil prescribed by Dr Kalyan garu ichamu. OT state pampina vaalu not great. Speech Therapy appointment thisukunamu bayta as state provided baledhu.
 

Ferrari
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Posted on Tuesday, July 17, 2018 - 11:10 am:       


Maverick:


bro..sorry to ask this..these days i'm seeing you frequently in autism theds..any reason?
 

Maverick
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Posted on Tuesday, July 17, 2018 - 11:07 am:       

>>for our son OT

How is OT related here? i though OT is only for physical activity
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

Ishan
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Posted on Tuesday, July 17, 2018 - 11:00 am:       

///Brother I am new to DB. Just curious, meeru Doctor a?/// scientist/vet...not an MD or DO

///Eeroze maa vaadi ABA start ayindhi. Keeping our fingers crossed./// all the best...have patience...ABA takes time to show effect...make sure to have monthly discussions with the lead BCBA and express your concerns about specific behaviors and ask or even demand them to work on those behaviors...ABA is supposed to be tailored to each kid's needs...don't hesitate to be proactive...for our son OT also helped really well...in fact more than ABA...

///dha fish oil ok kada mastaru..all kids ki istaru kada..its even part of milk and olive oil/// recommended doses and duration lo edayina manchide...we too tried and try them...but many people over do them...I know some people who give 10000 units of vitamin d to kids which can be dangerous...and if you give too many supplements, interactions vuntayi...anyways fish oil didn't help my son at all...he started throwing meltdowns....so we stopped it.
"...but it's not who you are underneath, it's what you do that defines you..."
 

Kuyyo_morro
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Posted on Tuesday, July 17, 2018 - 10:20 am:       

Do we know the reason why majority desi kids are getting into Autism spectrum. Are we doing/feeding something wrong.
 

Maverick
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Posted on Tuesday, July 17, 2018 - 10:16 am:       


Ishan:


dha fish oil ok kada mastaru..all kids ki istaru kada..its even part of milk and olive oil
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

Ramchander
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Posted on Tuesday, July 17, 2018 - 10:14 am:       


Ishan:


Brother I am new to DB. Just curious, meeru Doctor a? Eeroze maa vaadi ABA start ayindhi. Keeping our fingers crossed.
 

Ishan
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Posted on Tuesday, July 17, 2018 - 10:11 am:       

//ya agree, but neme check did 30 years of research on cumulative brain injuries and recovery..

and his protocol is based on natural things..//

Drug development is a separate science in itself. It takes tons of studies to verify the safety of a drug before releasing in to the market...pharmacodynamics, kinetics, short-term and long term safety, toxicity, dose optimizations, side-effects etc etc. need to be studied...basic scientists know jack about this process, doesn't matter how many years of experience of research he has...and just because a chemical works for a kid doesn't mean its safe for other kid...all it takes is one miscalculation and you put a kid's life in danger...there are many chemicals that can kill cancer cells...but you cant use them to cure cancer because they can kill normal cells too...within approved dosages, supplements are totally fine, many parents use more than 10 supplements in lot higher doses on children which can have deleterious effects in the long term...short term results chooskuni murisipovadam is not a good idea...
"...but it's not who you are underneath, it's what you do that defines you..."
 

Urumi
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Posted on Monday, July 16, 2018 - 04:37 pm:       


Urumi:

Naaku questions ki answer cheyyaalcina pani ledu,


idi enduku type ayindo, vere edo raasa. Meaning ento naaku gurtu ledu.
 

Emc2
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Posted on Monday, July 16, 2018 - 04:37 pm:       


Ishan:




EVVO,omega3 and inulin pre biotic which feeds the good bacteria




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Emc2
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Posted on Monday, July 16, 2018 - 04:35 pm:       


Ishan:




ya agree, but neme check did 30 years of research on cumulative brain injuries and recovery..

and his protocol is based on natural things..




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Ishan
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Posted on Monday, July 16, 2018 - 04:22 pm:       

Not trying to be a buzz killer, but please be careful before going for any unapproved "protocols".

https://www.independent.co.uk/life-style/health-and-families /health-news/autistic-boy-hospitalised-after-receiving-holis tic-treatment-to-cure-condition-a7348671.html

My son has tremendously benefited from just aba. It just takes time and patience.
"...but it's not who you are underneath, it's what you do that defines you..."
 

Ramchander
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Posted on Monday, July 16, 2018 - 03:45 pm:       


Help:


Thank you very much brother...Too much info to digest :-). First I will get his stool test done along with other blood work and will go from there.
 

Help
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Posted on Monday, July 16, 2018 - 03:40 pm:       


Ramchander:

Frankly Pans ante kuda idea ledhu andi.




in my case first i get the familiarity with the gut system and what is actually happening, daniki name check blog help ayindi

tharavatha i got this DC doctor which i gave you earlier..aame cheppina daniki dr name check cheppina daniki chala varaku similarities unnayi..plus what i was thinking inline with her thoughts.

i don't want to follow the name check protocal as it is, so instead of evvo,fish oil and inulin first we started giving fish oil and evvo, inulin tho regression undi ante we had concerns..

so when i visited this DC doc she gave another prebiotic and started treating symptoms based..6 months into protocol..feeling in another 6months to 1 year he will be like normal kid..

key is to handle auto immune and treating the gut and brain..
 

Help
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Posted on Monday, July 16, 2018 - 03:34 pm:       


Tadi_mattayya:

Help:"completely avoiding carbs and sugars "



sugars avasaram ledu, all fruits cut..banana ante istam..but thappadam ledu, we give blue berries ,green apples low sugar fruits

carbs cut ante only protein like chicken , egg, very rare ga brown rice,fish,mutton etc..just marinate it and grill or shallow fry..

for milk substitute we are giving kefer and perugu, luckly he is happy with it

he asks for cookie,cake ,ice cream and fruits when he sees it..appudu koncham istham..

part of the bio med we are doing diet is the major thing we need to control..

quinoa ivochu some pappu lantivi,
 

Ramchander
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Posted on Monday, July 16, 2018 - 03:13 pm:       


Urumi:



Is this the right URL to search for Maps doctor?

https://www.medmaps.org/clinician-directory/

Frankly Pans ante kuda idea ledhu andi..Just started reading mee last posts chusaka. Assalu PANS ante entodhi andi?Desi biomed group dorkadam ledhu andi inko group EMC anna chepindhi request pettanu..family history ekkada emi issues ledhu andi I mean auto immune disease alla..First MAPS degara urgent ga appointment thisukuntanu
 

Tadi_mattayya
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Posted on Monday, July 16, 2018 - 02:58 pm:       

Help:"completely avoiding carbs and sugars "

How are you achieving this for such a young kid?
Especially what is the alternative for Rice and Chapathi.}
 

Emc2
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Posted on Monday, July 16, 2018 - 02:55 pm:       


Urumi:

I would recommend you to find a MAPS doc in your area before you want to follow any protocol. Get a prescription for CDSA stool test




this is what i want to say, anduke neme check appointment ayyaka isco cheddam annanu




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Urumi
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Posted on Monday, July 16, 2018 - 02:50 pm:       

@ramachander bhyya,

SORry endukandi,lite. I would recommend you to find a MAPS doc in your area before you want to follow any protocol. Get a prescription for CDSA stool test .
Mito antunnaru, food allergies - PANS kid avataaniki kooda high possibility vundi. Meeku desi biomed group ki acccess vachhinda ? If not, let me know. Mee area lo doc evaru best recommendations easy ga vastay. Does he have a family history of autoimmune issues ? Be very careful with abx and vaccines. Naaku questions ki answer cheyyaalcina pani ledu, but
Do not play with his gut without any guidance.
Recovering kids ani oka group vundi. Try to get access. Recovering kids ani blog kooda vundi.
 

Ramchander
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Posted on Monday, July 16, 2018 - 02:01 pm:       


Emc2:


Sorry bro mee message ardham avadaniki time patindhi :-)
@Urumi sis really sorry bro anukunanu :-)
 

Emc2
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Posted on Monday, July 16, 2018 - 01:39 pm:       


Ramchander:

@urumi bro




bro kadu sis




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Ramchander
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Posted on Monday, July 16, 2018 - 01:07 pm:       


Emc2:

i recommend if you can cut off the milk and give perugu or kefer instead

perugu cultures the good bacteria some extent ,same with kefer


Sure bro will try this. So far he had yougurt just once ( yogurt made with flax milk )

@urumi bro koncham sepu mundhu chusedhi unde..konesanu book :-) .. Complete gane empty aythayi anukunta. Constipated ga eppudu anipiyaledhu. Maa cousin vaala abbayi kuda 2-3 times velthunde same with anna kuthuru...I mean thinnaka veltharu so maa vadu kuda adhe pattern lo thinnaka going so normal anesi anukuntunde..Doctor ni adguthe Stomach pain undha ante ledhu anesi stomach edho press chesi he is normal akkarledhu annadu..
 

Urumi
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Posted on Monday, July 16, 2018 - 12:53 pm:       

Nemechek book evvaru konakandi. i have pdf. Send me a test email. I will forward at my convenience.
@ramchander bro, 2-3 bowel movements, low tone antunnaaru.did you ever check if he is emptying his bowels completely ? Talk to his GI about this ? Check with them if it's diahhrea or oconstipation?
 

Emc2
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Posted on Monday, July 16, 2018 - 12:28 pm:       


Ramchander:




i recommend if you can cut off the milk and give perugu or kefer instead

perugu cultures the good bacteria some extent ,same with kefer




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Emc2
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Posted on Monday, July 16, 2018 - 12:24 pm:       


Ramchander:




https://www.facebook.com/groups/TheNemechekSupportGroup/?ref =nf_target&fref=nf

here it is join the group and just follow what people are saying for few weeks and understand the issue, follow the treatment

his protocol based on natural things, no medicines




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Ramchander
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Posted on Monday, July 16, 2018 - 12:23 pm:       


Polavaram:


Polavaram anna at present my son is on Hemp milk as he has allergies. Camel milk different antara Cow kanna, allergist ni adigi chusthanu
 

Ramchander
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Posted on Monday, July 16, 2018 - 12:22 pm:       


Emc2:


Definitely brother. Thank you very much
 

Polavaram
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Posted on Monday, July 16, 2018 - 12:21 pm:       

Raw camel milk ( not pasturized )

Gut issues, adhd ni taggiatundhi

Deeni lo vunde casein protein cow milk lo vunde casein ki difference vundhi

Us lo konni states lo ne available raw milk

Dheeni gurinchi research cheyyandi

Chala families vunnayi autism sympotms ni chala varaku tagginchina families
 

Emc2
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Posted on Monday, July 16, 2018 - 12:21 pm:       


Ramchander:

Dev pediatrician or regular ped ni adguthe adhi antha thuss books lo ledhu annadhi eppudo mention chesthe..Emi Doctorlu anna ikkada




don't believe in them..you will get most idiotic answers from the peds and dev peds..vallu asalu research cheyaledu..and asalu no help from them, they have limitation for that..

but instead there are 1000's of true stories who is benefiting by treating the gut..

FB- nemecheck protocol and see how happy people are..

good that you took the appointment , visit ayina tharavatha thread veyyi we will discuss




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Ramchander
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Posted on Monday, July 16, 2018 - 12:17 pm:       


Emc2:


Thank you very much brother. I Will definitely read the book. I also requested skype appointment with the Doctor.
Dev pediatrician or regular ped ni adguthe adhi antha thuss books lo ledhu annadhi eppudo mention chesthe..Emi Doctorlu anna ikkada :-(
 

Emc2
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Posted on Monday, July 16, 2018 - 12:13 pm:       


Ramchander:

Anna gut issues unnayi anesi ella telustundhi? Constipation ledhu pain ledhu and daily 2-3 times velthadu kid..




blood test, urine test, poop test..

we have good bacteria and bad bacteria..neme check(and i) believes 100% brain related issues ki SIBO is the main cause, meaning lack of good bacteria, neme check protocol or any other bio bed is all about increasing good bacteria and recovering brain damage..

gut issues unna bayataki symptoms kanipinchavu ..brain development is the side effect for gut issues, doesn't necessarily constipation and pain.

treat the gut and recover the brain development




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Ramchander
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Posted on Monday, July 16, 2018 - 12:01 pm:       


Emc2:


Anna gut issues unnayi anesi ella telustundhi? Constipation ledhu pain ledhu and daily 2-3 times velthadu kid..
 

Emc2
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Posted on Monday, July 16, 2018 - 11:52 am:       


Speaker:




ya, but you cannot use those gut shots like that..

you need to know is your gut lack of, first you need to treat those..




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

Speaker
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Posted on Monday, July 16, 2018 - 11:48 am:       


Emc2:




there r gut shots in whole foods..

they said they r good for anyone with gut issues or if someone who wants to strengthen their gut flora...

20-40$ for a small 100ml bottle...

tastes yucky though..drank it like a shot...
You are Either with Us or NOT with Us..
My Way or Highway.......
 

Emc2
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Posted on Monday, July 16, 2018 - 11:44 am:       


Ramchander:




i would recommend reading the neme check cumulative recovery book https://autonomicrecovery.shop/ $20 bucks..

this will give you lot of insight of how GUT and brain are related..

most of the issues depression,Alzheimer, gastritis, stress, ADD,ASD,ADHD related to this..if you treat your gut your brain will be treated ..resulting auto recovery..

i strongly recommend you to follow this protocol ,but do your own research..




Where ever i go what ever i do
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Ramchander
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Posted on Monday, July 16, 2018 - 11:35 am:       


Emc2:


Completely agree bro..emina typical patterns unte speech delay tho paatu , it should be treated. Just speech delay most of the times correct aypotadhi. Maa vadu first nunchi delay unnadu reaching milestones. Hopefully ABA emina help aitadhi emo chudali.
 

Emc2
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Posted on Monday, July 16, 2018 - 11:31 am:       

please do not say that, ma vadu 4 ki matladadu, 5 ki matladadu ani, each kid is different...and early intervention is always good before it is too late

cases are increasing now 1:58 in autism




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Rrunner
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Posted on Monday, July 16, 2018 - 11:30 am:       


Fargo:




Anything that is made in a factory(basically all processed food) that has synthetic chemicals as ingredients, I would avoid it.Don't get carried away by labeling that says organic,100% pure etc.

Go for unprocessed or lightly processed food if there is an option.
Why does one need to depend on ready made food that comes from a tin can laden with ton of preservatives.
 

Emc2
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Posted on Monday, July 16, 2018 - 11:29 am:       

speach okate kadu vere signs untayi to declare as a autism, autism is a spectrum of disorders , doesn't necessarily mental retardation, chala mandi Autism anagane mental retardation anukuntunnaru..and they are not coming for treatments thinking that automatic ga correct ayipothayi ani, automatic ga correct ayye chances unnayi

but developmental delays ni early intervention lo treat cheyadam very important, so they will normal at the age of 6..inka emina serious issues unna treat cheyochu..very crucial time..

ikkada doctors concern ki reason undi, just speech delays unte doctors don't declare them as autism, they see other aspects also..

india lo kuda chala cases unnayi, but lack of awareness and lack of treatment they are not coming out..just speech ayithe india help avuthadi, all other issues need to be treated ..




Where ever i go what ever i do
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Posted on Monday, July 16, 2018 - 11:22 am:       


Rrunner:

2. Enfamil/Similac formulas


use these after 6 months
https://www.naturesone.com/

babies only organic
 

Rrunner
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Posted on Monday, July 16, 2018 - 11:20 am:       

Ikkada vadey

1.Prenatal tablets
2. Enfamil/Similac formulas
3. compulsory vaccinations lo edo bio engineered random trigger/link vundhemo ani na getti nammakam ituvanti chronic diseases ki.
 

Ramchander
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Posted on Monday, July 16, 2018 - 10:46 am:       


Maverick:

rocking ante gurtu vacchindi..some people sitting posture lo kaalu ooputaru and as kids many of us have rocked back and forth while reading.may be tested many in the past would have fallen in the spectrum.


alla kaadhu brother just feet ni patukoni ooguthuntadu..if we stop him next lechi velipothadu walk chesthuntadu...TV on chesthe malla vochesthadu .. ufff ee state provided therapists are not great.
 

Ramchander
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Posted on Monday, July 16, 2018 - 10:43 am:       


Fargo:


speech okkate kadhu brother..Konni patterns entha stop cheyanike try chesina avvadam ledhu
 

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Posted on Monday, July 16, 2018 - 10:43 am:       


Maverick:

may be tested many in the past would have fallen in the spectrum.


 

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Posted on Monday, July 16, 2018 - 10:40 am:       


Fargo:

valle mattadataaru mastaru. Nenu expert parent ni kaadu kani. We are the kid's best teachers and toys. Manam time spend cheste they will be fine


speech okkate kaadu lendi..if the kid is disconnected or lost in his own world, better to check. most are only therapies (infact aba gurunchi chooste undi..autism ki vadataru kaani, aba itself is used for potty training, cigarette habit stopping etc etc)..so medicines lekapoina, just behaviour correction aite tappemi leduga
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

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Posted on Monday, July 16, 2018 - 10:38 am:       

rocking ante gurtu vacchindi..some people sitting posture lo kaalu ooputaru and as kids many of us have rocked back and forth while reading.may be tested many in the past would have fallen in the spectrum.
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

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Posted on Monday, July 16, 2018 - 10:31 am:       


Ramchander:


valle mattadataaru mastaru. Nenu expert parent ni kaadu kani. We are the kid's best teachers and toys. Manam time spend cheste they will be fine
 

Ramchander
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Posted on Monday, July 16, 2018 - 10:29 am:       


Fargo:

2 yrs ki 200 words cheptante autism enti mastaru


Agree ikkada okka word kuda not speaking :-)
 

Ramchander
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Posted on Monday, July 16, 2018 - 10:28 am:       


Maverick:

didnt get you. lack of playskills ante? meeto aadevadu kada?


ekkada reflection unna example mirror, cars lo ekkada unna chusthuntadu emi emi kanipisthunayi anesi. plus stimulating behavior like rocking alla chesthuntadu. Maa thoti kuda aadutadu hide and seek. Nenu hide chesthe he will follow me. Teeth mathram navilesthadu adhi kuda stimulating annaru. no imitations adhi kuda okka sign of autism annaru. Pointing and waving bane chesthadu.
 

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Posted on Monday, July 16, 2018 - 10:24 am:       

2 yrs ki 200 words cheptante autism enti mastaru

ee us doctors bullshit diagnosis veellu nu. Nenu 4 ki mattada appatidaka sigalee..nenu autistic anukovala...thupuk
 

Maverick
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Posted on Monday, July 16, 2018 - 10:17 am:       


Ramchander:

baa reflection ki glued


didnt get you. lack of playskills ante? meeto aadevadu kada?
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

Ramchander
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Posted on Monday, July 16, 2018 - 10:14 am:       


Maverick:


First nunchi delay brother.He sat late , walked late and low muscle tone undhi. Early intervention started when he was between 8-10 months koncham help ayindhi anukunta. Recent ga early intervention vaalu diagnosis chesaru through dev pediatrician. No play skills anesi and baa reflection ki glued and rocks a lot..so repetitive pattern anesi spectrum lo esaru ..eye contact ivvani bane unnayi. Kind of confusing and pain. End of the day you have to deal with it.
 

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Posted on Monday, July 16, 2018 - 10:08 am:       


Ramchander:


other than official diagnosis, what did you notice in your kid that prompted a evaluation? speech delay or any other redflags?
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

Ramchander
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Posted on Monday, July 16, 2018 - 10:02 am:       


Tadi_mattayya:


Maa vaadidhi eeroze start brother he is 33 months old.
 

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Posted on Monday, July 16, 2018 - 10:00 am:       


Anthamidhya:

Yes, initially massages ki resist cheerful but after 2 months he started cooperating. Mana kids ki edina 10 tines typical kids ki cheppinantha cheppali for something to get through. Keep at it and will work. Yeah, consistency is important but we are human after all anukoni mundhukupovatame.
Sometimes emi life ra babu anipisthadhi, very unfair but there are people with even more tough situations anukoni sardhukupootham


Very true brother. US lo endhuku intha perecentage antaru? So many kids are allergic to nuts and autism and other stuff. India lo okka polam undi vyavasama chesukuna aypotunde anvasaranga vochina anipistadhi brother ee deshaniki.
 

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Posted on Monday, July 16, 2018 - 09:54 am:       


Tadi_mattayya:

most have a very high percent of Indian kids.



Kuyyo_morro:

Most desi kids fall in Autism spectrum, mainly due to lack of interaction



There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

Help
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Posted on Monday, July 16, 2018 - 09:50 am:       


Tadi_mattayya:

Has any one began ABA therapy at age 2.5 or 3 and did that help the kid?




we stated ABA at 2
 

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Posted on Monday, July 16, 2018 - 09:49 am:       


Tadi_mattayya:

Has anyone else observed it in other cities as well?




in my place most of them are europeans
 

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Posted on Monday, July 16, 2018 - 09:41 am:       

One demographical observation:
In the ABA centers I visited, most have a very high percent of Indian kids.
Has anyone else observed it in other cities as well?

Has any one began ABA therapy at age 2.5 or 3 and did that help the kid?
 

Jumbojet
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Posted on Monday, July 16, 2018 - 09:41 am:       


Help:

ATEC score




https://www.autism.com/ind_atec_report

Bhayya naaku peddaga teliyadu deeni gurinchi. Meeru interpretation ante choosa. idi kanapdindi

Mee vadu mild range score (0-30) lo unnadu. The lower the score the better annattu. score Range 0-180 undi
 

Help
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Posted on Monday, July 16, 2018 - 09:11 am:       

@anthamidya and URUMI

This is the ATEC score i got this morning, and since 2 days i am seeing amazing changes..

Subscale I - Speech/Language/Communication
Score: 6
Subscale II - Sociability
Score: 0
Subscale III - Sensory/Cognitive Awareness
Score: 12
Subscale IV - Health/Physical/Behavior
Score: 0
Subscale totals
Score: 18

help me interpret this score
 

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Posted on Sunday, July 15, 2018 - 10:43 pm:       


Ramchander:



Yes, initially massages ki resist cheerful but after 2 months he started cooperating. Mana kids ki edina 10 tines typical kids ki cheppinantha cheppali for something to get through. Keep at it and will work. Yeah, consistency is important but we are human after all anukoni mundhukupovatame.
Sometimes emi life ra babu anipisthadhi, very unfair but there are people with even more tough situations anukoni sardhukupootham
 

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Posted on Sunday, July 15, 2018 - 10:22 pm:       


Anthamidhya:


Thank you brother. Consistency is the main issue. Consistent ga cheyadam kudaradam ledhu massages. My little one doesn't like when we start massaging his hands. We have to play videos to distract him. It's a challenge for us :-). His ABA is starting tomorrow, they will be coming to home once a week and twice a week to day care and asked them to help him out in playing with other kids and once a week to center. Have to see how he reacts.
I heard some folks got benefitted using Reiki. We are planning to try that.
 

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Posted on Sunday, July 15, 2018 - 06:17 am:       

Mana own flash cards prepare chesukovaalante use ayye apps emanna vunnaya ?
 

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Posted on Saturday, July 14, 2018 - 05:33 pm:       


Help:



you can start with once a week and slowly increase if therapist is good.
 

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Posted on Saturday, July 14, 2018 - 05:28 pm:       

@anthamidya

Currently ABA is one on one either in home or their location

They have more things to do at center,

Speech ante county services nachaledu naku, how many hours you think beneficial, at least one day a week speech pampiddam anukuntunna
 

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Posted on Saturday, July 14, 2018 - 01:51 pm:       


Urumi:


safety issues come n go in phases for us. luckily maa vaadu enni chesina has good coordination n control that he doesn't get hurt.
these days scooter ni fast ga vadi padi regular dhebbalu but that's the only way for him to learn
 

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Posted on Saturday, July 14, 2018 - 01:48 pm:       


Help:


40hrs Aba will be counter productive. insurance approved kada ani aba guys will say you need but kids will get bored with it. Aba is free for me but don't do more than 15hrs a week which is split between in home and clinic.
aba is mostly one on one whereas kids need interaction with typical kids to model and learn from others. I know a friend who did 40hrs for an year and advices against it.
If the kid is speaking words, speech therapy will benefit kid a lot since they cover aspects that are difficult for asd kids to learn, you gotta give it time.
 

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Posted on Saturday, July 14, 2018 - 01:45 pm:       


Help:


40hrs Aba will be counter productive. insurance approved kada ani aba guys will say you need but kids will get bored with it. Aba is free for me but don't do more than 15hrs a week which is split between in home and clinic.
aba is mostly one on one whereas kids need interaction with typical kids to model and learn from others. I know a friend who did 40hrs for an year and advices against it.
If the kid is speaking words, speech therapy will benefit kid a lot since they cover aspects that are difficult for asd kids to learn, you gotta give it time.
 

Help
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Posted on Saturday, July 14, 2018 - 12:05 pm:       


Urumi:

are you doing speech n OT as well,




we started with speech once a week when he is 18 months, antha use anipinchaledu, 6 months try chesamu, now he is going to full time ABA, no time for him for any other therapy's , so stoped speech therapy, ABA they are doing speech also
 

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Posted on Saturday, July 14, 2018 - 11:16 am:       

Safety issues ela handle chestunnaaru ? Safe/unsafe assalu teliyatam ledu. Stop ante aago potaadu kaani typical boys allari, anni ekki dookali. Every minute kaapala kaayatam kashtam ayipotundi. Watermelon to foot ball aadatm, slide meeda aadukomante dasni meeda nunchoni lights touch cheyatam, railing meeda sliding ki try chestunnaadu .
 

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Posted on Saturday, July 14, 2018 - 10:33 am:       


Help:



are you doing speech n OT as well, if not recommend them. speech therapy will take time to show the results but very useful, key is to find good therapist. apart from that it's all about stimulating the kid with experiences carefully. typical kids can manage lot of different experiences but put kids learn them 1-2 at a time but they will not forget once they learn. so very important to expose them to good experiencesn right behavior from the beginning since it's super sticky for them. for that to happen you n your spouse need to be on the same page all ( err most of) the time. this advice applies to anyone but for us the implications are severe.

you might think they are not paying attention but they do n use it later, so just keep talkibg out loud everything you do in house n he will pick words n eventually use them. good luck
 

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Posted on Saturday, July 14, 2018 - 10:09 am:       


Anthamidhya:




i do agree with kalyan, your kid is out of spectrum but adhd undochu..he will over come this too..

edo 3 factor formula undi, if they lack in all those 3 than they treat that as a autism..

my kid knows lot many words, unless he motivated he don't use those words..

he sings and dances to some of the rhymes he like..1 to 100, a to z mastered..singing and dancing..no repetitive behavior..

the reason i am saying all these syptoms are because you and the urimi are the one who started educating in DB, right on time when my kid has 16 months we started working towards the developmental delays..with insurance problems and other issues finally 5 months back we get to started with ABA.

i wanted to make him improve in communication and use words most often..

if he exited he will use communication, he like ducks, other day i took him to pond, he was chasing them saying quack quack..i see duck, i see sun,i see pond ani chepthadu..we went to ,but he didn't show any interest ,but he is looking at elephants and other animals..

some times he is asking which video he wants by singing couple of words..he asks food by saying ice cream,cookie,apple..but he is on diet, completely avoiding carbs and sugars..that is for now..


anything else to improve his communication?

Thank you for your info since beginning, no pediatrician helped to go in any direction..
 

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Posted on Saturday, July 14, 2018 - 09:49 am:       


Brightlife34:



what he does resembles biomed here but not that intense, for us it was just multivitamins, fish oil , omega 3 , piracetam for 6 months
 

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Posted on Saturday, July 14, 2018 - 09:41 am:       


Anthamidhya:



Yes that's what many say. ADHD then Asperger type untarani which ill take any day 😀
Anyway think my kid has words and ability to speak but something stopping all the time
Is Kalyan c biomes doc ?
 

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Posted on Saturday, July 14, 2018 - 09:01 am:       


Urumi:



yes, 100ml lo 3-4spoons soak chesi use it for 1-2weeks. in our case kc visit helped, but you are already doing lot of different things... so may not see much benefit but if you want to crosscheck with him , it will be worth a trip
 

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Posted on Saturday, July 14, 2018 - 08:08 am:       


Anthamidhya:

olive oil lo epsom salt vesi massages before going to bed daily. It needs to be on the body for 8 hrs, so night chesthinnam.


munde soak chesi pettukuntaara mix ? Dr KC protocol ela vuntundi usual ga ? Nenu india trip plan chestunna for few months.eeyana daggaraki cash pay chesi vellatam worth aa ?
 

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Posted on Saturday, July 14, 2018 - 06:59 am:       


Ramchander:



We did everything Kalyan suggested n ours improved. cars rating 31 vachindhi at 27 months, so borderline lo unnadu annaru, he didn’t have speech then but was showing signs. We did everything he asked us to do and luckily!!!! It worked for us to some extent. Hopefully it works for your little one
 

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Posted on Saturday, July 14, 2018 - 06:53 am:       


Ramchander:



I felt surprised when dr. Kalyan said our son is not in spectrum. But he is arriving at that more from him having speech and showing improvement. Behavior issues annintini adhd loki thosesaaru which I disagree to some extent. But that is a limitation on his end anukunna,!!!
He said spectrum nundi transition stage will be adhd n then normalcy type ani chepparu. I have seen one kid who recovered so much that even us , parents of awesome kid, didn’t see anything different in her but parents tell us yes, she still has some markers which they can see
 

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Posted on Saturday, July 14, 2018 - 06:42 am:       


Brightlife34:



How long ago did your kid get speech? It took us 2+ yrs for him to be conversational since his speech recovery. Sometimes it’s a matter of time since they need that time to cover lost ground of learning . Keep at it and keep talking to him, it will click one day
 

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Posted on Saturday, July 14, 2018 - 06:37 am:       


Urumi:



Yes andi, olive oil lo epsom salt vesi massages before going to bed daily. It needs to be on the body for 8 hrs, so night chesthinnam.
 

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Posted on Saturday, July 14, 2018 - 05:17 am:       


Ramchander:


fb lo search cheyyandi. Let me know if you can’t find it. Closed group eemo. Anta desis kada, meeku fast ga guidance vuntundi ani aa group name cheppaanu. Autismone lo videos choodandi. Chaala info vuntundi. TACA website
 

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Posted on Saturday, July 14, 2018 - 05:13 am:       


Anthamidhya:


epsom massages ??
 

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Posted on Saturday, July 14, 2018 - 12:29 am:       


Anthamidhya:



Great is he conversational and if yes want helped. My kid can talk but only if he is really motivated and only limited to his interest and wants. Otherwise very minimally verbal
 

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Posted on Saturday, July 14, 2018 - 12:27 am:       


Urumi:



Ok. Mito markers konni unnayi blood test lo like low carnitine. Ideally for Cfd lumbar puncture cheyyali but our maps suggested some alternate test. Sad thing with many of these are that tests are never conclusive and doctors have a set pattern.thats what rossignol does, he has same set of test and recommendations irrespective of anything.

Essentially he says every kid in asd has cfd, mito and inflammation. He is not much into gut, viral etc. We went because he is like the pioneers in biomedical has been there much before anyone else started. So for cfd we do folinic acid, mito ki carnitine and ala. only med we did was memaniitine but stopped immediately
 

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Posted on Friday, July 13, 2018 - 11:37 pm:       


Urumi:


Thank you Urumi bro..Nenu FB group lo lenu. Actually FB lone lenu. Desi biomed ani google search chesthe Hrithik Roshan photo vosthundhi. Exact name Desi biomed a bro
 

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Posted on Friday, July 13, 2018 - 11:30 pm:       


Ramchander:

there a good article or online links where I can get this information and I am not sure from where to start


fb lo group lo lera ? Desi biomed lo join avvandi first, akkada nunchi vere grps ki easy ga vellachhu.
 

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Posted on Friday, July 13, 2018 - 11:26 pm:       


Vizagnumberone:



he is getting better, long way to go. daily 30minutes block lo focused activities chese stage ki vasthe will be good. luckily he got speech which helps him to progress n recover
 

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Posted on Friday, July 13, 2018 - 11:16 pm:       


Brightlife34:

lyme/bartonella testing is def in my list. many say PANS like symtoms are triggered by this. thankfully EEG is clean


add mycoplasma to the list. Ikkada school going kids ki easy ga effect ayye infection. Maaku westerblot lo mycoplasma result vachhindi, but not bart. Dna connexions lo only bart, no myco. Weird. EeG 2 hrs ? Or 48 hrs ? Arginine ,lysine ratio enta vundi ?


Brightlife34:

viral panel/endocrines antey exact emi chesaru. we spent so much with 2 MAPS on just blood tests. every time I meet him (Dr Rossignol in FL) he says viral panel not that helpful ani.


Test names gurtu levu. Naaku ikkada photo ela upload cheyyaalo cheppandi. Prescription upload chestaanu.konni tests OAT lo cover avutay. Pyroluria test, is he a mito kid? Why Rossignol ? Viral panel not helpful ante ?

Brightlife34:

homeopath is in india? we are looking for someone locally here. I think it will help in allergies and infections and probably detoxing. are you doing CEASE/classical or now


no cease, strictly classical. but na maps gi issues ki remedies ichhindi and suggested respen patch, guna ani oka remedy future lo. Maps vi koncham hold lo petta.
Why folinic acid ? Cfd test cheyinchaata ? B12 patches haveto start. Fish oil - tried when he was 22 months old, language improvement. Couldn’t continue because of histamine issues.
Rossignol prescription copy pettahalara ? Maa vaadu mito kid .
I know many moms who started using RPM when their kids were at 5.
 

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Posted on Friday, July 13, 2018 - 10:28 pm:       


Urumi:

yme/bartonella testing is def in my list. many say PANS like symtoms are triggered by this


Is there a good article or online links where I can get this information and I am not sure from where to start :-( . Apart from genetical testing and thyroid, I am not familiar with any other tests. I will check the links help bro provided. Please let me know if there are any other web site links where I can get step by step evaluation done. Good luck with everything. Jai Hanuman.
 

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Posted on Friday, July 13, 2018 - 10:25 pm:       


Anthamidhya:


Brother Kalyan garu initial ga 3 months course icharu fish oil, multi vitamin and some tonic , edho evaluation lo my son is not autistic he is borderline annaru kaani ikkada he is evaluated as Autistic..Not sure parameters ella define chestharu. My son has some typical patterns, he likes rocking and walks if we stop him. We have long way to go I guess as he is still not speaking.. Good luck bro
 

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Posted on Friday, July 13, 2018 - 10:24 pm:       


Anthamidhya:


good to know that ur kid recovered bro
Fan of chiru(movies)and pavan
 

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Posted on Friday, July 13, 2018 - 10:19 pm:       

@ help - glad that the kid recovered so much. Just keep doing what you are doing and he will catch up. My kid is 5 yrs now and in this year check up dr. Kalyan Chakravarthy said he is out spectrum but in ADHD mode, which I don’t fully buy. He still shows lot of spectrum behavior but much improved. He asked us to restart massages again since mine jumps a lot. We did that for only 9 month when initially dismissed at 2.5yrs..one thing we decided wa to treat him strictly as normal kid to shape his behavior since he has started to play us with konte chupulu and panulu.
 

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Posted on Friday, July 13, 2018 - 06:57 pm:       


Brightlife34:




lyme is clean..

fish oil omega3 morning and evening.
EVVO morning and evening
homeopathi kadu naturopathi
 

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Posted on Friday, July 13, 2018 - 06:54 pm:       

thread up vunchandi. Will post tonight.
 

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Posted on Friday, July 13, 2018 - 04:06 pm:       

yes take it easy, people have no idea and others problems always look small.

so few questions on your post
1) lyme/bartonella testing is def in my list. many say PANS like symtoms are triggered by this. thankfully EEG is clean
2) viral panel/endocrines antey exact emi chesaru. we spent so much with 2 MAPS on just blood tests. every time I meet him (Dr Rossignol in FL) he says viral panel not that helpful ani.
3) homeopath is in india? we are looking for someone locally here. I think it will help in allergies and infections and probably detoxing. are you doing CEASE/classical or now.

maa current docs has suggested folinic, mb12, fish oils, essential 4 (we are 40 rounds in acc). its like 1 step fwd and 2 back :-(
but think time to tap one more who is expert on bacterial/viral issues in kids.
also are you starting RPM.. may be need at least 7 yrs age. but everyone I talked to literally swears by it.
 

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Posted on Friday, July 13, 2018 - 04:00 pm:       

Pains only for those who can bear ani saametha...
Eee Special kids unna parents ki naa PaadaabiVandanaalu...

Don’t forget there is light always after Darkness..
U r just going through the worst..Best will come n cheer u all soon...

God Bless
You are Either with Us or NOT with Us..
My Way or Highway.......
 

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Posted on Friday, July 13, 2018 - 03:49 pm:       


Urumi:




:-)

take it easy. people always have easy solutions for OTHERS problems :D
 

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Posted on Friday, July 13, 2018 - 03:48 pm:       


Urumi:

Meeru anta manchi parents aiithe mee kids ki cheppandi, school lo ma kids laanti vaallato manchiga vundamani.




ilantivi asalu chepparu, instead they show disparity..

they treat like it is a disease and by meeting kids it will spread to their kids also

horrible parents i have seen




Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

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Posted on Friday, July 13, 2018 - 03:46 pm:       


Starc:

The issues is from parents.


ilaanti post lu ela veyyaalanipistadi. You can’t even imagine what we go through. Kalalo kooda ma problems mee evvariki rakoodu. Meeru anta manchi parents aiithe mee kids ki cheppandi, school lo ma kids laanti vaallato manchiga vundamani.
 

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Posted on Friday, July 13, 2018 - 03:36 pm:       


Brightlife34:


same here , no PANDAS. Check for lyme (dna connexions) and rule out mycoplasma. Check for mold in your house. Watch dr klinghart’s videos on A1. Bartonella is very common in india.. Mana systems lo generations nunchi vundachhu anta. Did you get the viral panel done ? Did you rule out endocrine system related issues ? Our MAPS wanted us to meet with dr .Ingles.Watch his videos. Isotherapy ani cheptunnaaru., homeopathy nosodes use chestunnaaru along with SLIT. Nenu except beth montessoro, mary koyle chaala mandini try chesaanu, didn’t like any of them. For lyme/PANS kids , heard Beth is good. Nenu na mottam test results na homeopath ki pamputaanu and videos. Our doctor is in india.
 

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Posted on Friday, July 13, 2018 - 03:18 pm:       

we do homeopathy. PANs kid aa ?//

I think he is PANS, PANDAS aithey ledu as per doc. we never did a Cunningham panel though.

PANS antey ela diasgnose chesaru. symptoms are in line, like he is good for 3-4 days then suddenly scripts and starts to seem like regression. it could be inflammation too but I think PANS symptoms if I read. but is there a comprehensive test for this?

homeopathy in general sounds promising, but only worry is if we get a good practitioner
 

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Posted on Friday, July 13, 2018 - 03:13 pm:       


Brightlife34:


we do homeopathy. PANs kid aa ?
 

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Posted on Friday, July 13, 2018 - 01:39 pm:       


Help:


Thank you very much brother...I will look into it. We also started giving my son supplements and massages prescribed by Dr Kalyan Chakravarthy..Not sure if it's helping him..He has good eye contact and points to stuff but doesn't speak any words..he just babbles...
 

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Posted on Friday, July 13, 2018 - 01:31 pm:       


Brightlife34:




my kid does not have any medical condition..accept yeast over growth, which is already in control with bio med..

we are into name check, only thing we are not using is inulin,instead of inulin doc gave another pre biotic, we are following the protocol pretty much same as neme check, but we are more into symptomatic treatment instead of following general protocol..

inulin tho chalavmandi regression undi ani complain chesthunnaru, but that is part of the awakening process ani dr neme check cheppadu..
 

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Posted on Friday, July 13, 2018 - 01:25 pm:       


Starc:

The issues is from parents. Single kids with no other kids at home and no social relation with other family.

Remember: Kids learn from other kids especially the same age group.




ori nee..intha ignorant enti saamy nuvvu..

asalu emi matladu thunnavo telusa






Where ever i go what ever i do
My caste |My Hero |My Leader
This is the priority

 

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Posted on Friday, July 13, 2018 - 01:16 pm:       

Sreekar Manu //

thank you bro. india lo options telsu, ikkada US lo emanna untey adi kuda cheppandi.
india lo well known homeopaths unnaru, vallu just 5-10 mts choosi remedy suggest chestharu. naa thokkalo research pekaram, without medical history and proper observation remedies are very dangerious ani. allopathy atleast you can know what part of the body its expected to work, ee homeo lo bedisthey recovering kastam esp kids lo as they can't communicate well

edo cold and other common symptoms ki ichinattu ichestharu remedies plus they do not disclose too in 2 people I know who are famous.
 

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Posted on Friday, July 13, 2018 - 01:11 pm:       


Brightlife34:

homeopathy



Uncle not exactly for this issue. But memu Sreekar Manu ani oka homeo doc daggariki veltham. Very good doctor. I am sure he would treat. Give it a try. Sec'bad station daggarlo clinic untundhi.
"Every twist, every turn, can challenge our sense of direction. But it's the choices we make when we reach a fork in the road that define who we are." - Dexter
 

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Posted on Friday, July 13, 2018 - 01:09 pm:       

The issues is from parents. Single kids with no other kids at home and no social relation with other family.

Remember: Kids learn from other kids especially the same age group.
 

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Posted on Friday, July 13, 2018 - 01:07 pm:       

did anyone try homeopathy. we are looking to start this now. hopefully it will help treat allergies and infections which are present in my kid.

I want any references preferably who specialize and understand ASD complexities
 

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Posted on Friday, July 13, 2018 - 01:05 pm:       

the doc we are vising is https://www.nihadc.com/practitioners/dr-charlene-kannankeril -n-d.html //

I think if you want to try nemechek best to start before you start any supplements and bio med stuff. because it needs kid to be totally out of other supps and meds, so best time start now and give it 3-4 months and see.. some swear by it and some don't see much..

I think extreme gut issues unna vallaki work avvachu like diarrhea, bloatin, constipation etc..my kid is more of infection/inflammation type.
 

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Posted on Friday, July 13, 2018 - 01:03 pm:       

maa kid ki same issue. Adults to fast ga mingle avutaadu.//

same here. mingle antey he does not have the conversational language but can be happy and probably answer factual questions with 20-25% accuracy. but he will be very happy around them..
he has a very short attention span and waiting tolerance. very normal for ASD kids to have co-morbid conditions like ADD, social disorders etc
 

Help
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Posted on Friday, July 13, 2018 - 12:16 pm:       

//ramachandra

https://www.nemechekconsultativemedicine.com/contact-us/
 

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Posted on Friday, July 13, 2018 - 12:14 pm:       


Help:

Dr name check




Thank you very much for the information. I tried searching for Dr. Name Check but couldn't find any. Do you happen to have Dr's Skype Id. If so, can you please provide me with that information?
 

Help
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Posted on Friday, July 13, 2018 - 12:10 pm:       

// Maverick some of as kids have social communication difficulties like stage fear or not comfortable with new kids. why do u see everything in spectrum angle

there is very thin line in observation and associating these with ASD
 

Help
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Posted on Friday, July 13, 2018 - 12:08 pm:       


ramachandra:




the doc we are vising is https://www.nihadc.com/practitioners/dr-charlene-kannankeril -n-d.html

one of the DB member gave this info.

her approach is tackling one by one deficiencies, insurance doesn't cover

we visit her every 2 months, and monitor his progress and adjusts the medicines according to his changes..

she prescribes the tests , those can will get it done in labcorp or some testing center, most of the tests covers by insurance..

she said genetic test are not needed ,again evey kid is differenct

another doctor is Dr name check, he does the skype based diagnosis, and very famous , he is creating lot of awareness in parents and treatments..his treatment is very simple, cost effective..do some research on him, FB has groups on his protocol too..
 

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Posted on Friday, July 13, 2018 - 12:06 pm:       


Brightlife34:

I do not know how to break this cycle..


maa kid ki same issue. Adults to fast ga mingle avutaadu.
 

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Posted on Friday, July 13, 2018 - 12:02 pm:       


Ramchander:


regular ped, dev ped ilaantivi believe cheyyaru, tests order cheyyaru. Find a MAPS doc in your area to get these tests ordered. Join desi biomed group on fb for more info or guidance.
 

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Posted on Friday, July 13, 2018 - 12:01 pm:       


Brightlife34:

but is extremely anxious to interact.


some of as kids have social communication difficulties like stage fear or not comfortable with new kids. why do u see everything in spectrum angle
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

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Posted on Friday, July 13, 2018 - 11:56 am:       

I will post my thoughts on how it goes with this. at this point my son, likes playing with kids, but only outdoor games where there is minimal vocal communication. he has little interest/confidence that involves interaction.//

my 5 yr kid has minimum social interaction. I think he is happy to be around kids, but is extremely anxious to interact. I do not know how to break this cycle.. as many said even india did not help us that much as he is way too anxious socially.. I think speech and social deficits are feeding into one another..

we are planning to home school now. as you said each kid is so different that 1 strategy does not work with other
 

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Posted on Friday, July 13, 2018 - 11:54 am:       


Help:


Brother can you please let me know how you got the heavy metal panels, saliva test and other tests done. My son is close to 3 and he is diagnosed with Autism .. We asked Pediatrician and developmental physician to order gut testing and they said that its not needed as Autism is not related to it..I am not sure what they are going to say if we ask for these tests :-)
We have his Thyroid test and genetic testing done and just waiting for those results.His ABA will start next week. Any inputs on how to get these tests done is appreciated.
 

Help
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Posted on Friday, July 13, 2018 - 11:46 am:       


Shivavishnu:




naturopatic ante its a symptomatic treatment..first emi problems unnayi, how it is intervening with brain development test cheyali..

than doc will prescribe the medicines
 

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Posted on Friday, July 13, 2018 - 11:43 am:       

help

great to hear progress in you kid, can I know what naturopathic medicine you are giving , where did you get it?
Om Namah Shivaya.....Om Namo Narayanaaaya....
 

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Posted on Friday, July 13, 2018 - 11:41 am:       

Just like not all normal kids do not grow the same, not all autistic kids grow up the same way, and the same things will not help all the kids. As a parent, we try different things, that other things are trying, and some might work for us and might not.

@Help vunkl -
if you are looking for comm skills, this i feel works for kids who are struggling with group dynamics, although its not always easy to do.

1) small group activities - groups less than 5 kids for outdoor activities, and less than three kids for indoor activities. playing the same thing often, with small changes.

challenge with group skills - kids will keep trying to play differently every time, but for kids who are struggling with communication, its a tough ask. they cannot go back and forth as easily, and by the time they make up their mind to say something, the moment would have passed. if this happens too often, they simply lose interest in group play. It is the most challenging thing i have experienced so far.

Story telling - i think your kid is too young for this, but if the kid can learn the ability to tell a story, he will be able to make other kids listen to him. I have not tried this yet, but will try this out, as I got this idea very recently. I feel this gives the kid with three advantages
1) ability to formulate his thoughts in to words, and he will get time to do that because its his turn of story telling.
2) the confidence to be in the group, because other kids are listening while he is speaking and not asking questions - when other kids pose a question, kids with delayed communication, typically take time to register the question and respond... which makes the communication fallout.
3) add a purpose to the group play. typically what i have observed is, kids with communication delays, have a different idea of the play. they do not see interaction as a part of the play and see it as a distraction during group play. this may not be true for everyone, but this is what i have seen with my son.

I will post my thoughts on how it goes with this. at this point my son, likes playing with kids, but only outdoor games where there is minimal vocal communication. he has little interest/confidence that involves interaction.
 

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Posted on Friday, July 13, 2018 - 11:40 am:       


kuyyo morro:




grand parents no help, india HYD lo kuda naku ekkuva interaction kanipinchaledu, evadi intlo aadu untaru
 

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Posted on Friday, July 13, 2018 - 11:39 am:       


Urumi:




anthem insurance, VA,for me they gave a choice, i can continue with insurance or send to school.
at school 2:1 with insurance 1:1
 

Maverick
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Posted on Friday, July 13, 2018 - 11:38 am:       

grand parents may not always help especially if they are old. they may not interact or play..just tv vesi vadilestaru.

on the other note, ekkado chadiva eye conact gurunchi..i know its a red flag, but some cultures like japanaese, kids are taught not to make eye contact with elders. while some issues are obvious, some spectrum symptoms which lead to diagnosis are very questionable
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

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Posted on Friday, July 13, 2018 - 11:37 am:       


Help:

ledu india try cheyaledu, grand parents no help, vallaki teleedu what we are going though, vallaki cheppina ardham kaadu


i agree with you andi
 

Kuyyo_morro
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Posted on Friday, July 13, 2018 - 11:37 am:       

Help, vallaki autism lantivi cheppakunda send mother and kid to India for few months. India is best for such age kids. No daycare or any center can match that. India lo mainga nonstop interaction untundi.
 

Urumi
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Posted on Friday, July 13, 2018 - 11:35 am:       


Help:


e state meeru ? We just started homeschooling our son , getting 5 hrs of ABA per day. Intlo ABA services vunnaayani state services cancel chesaaru. Trying to get more hours through insurance now. UHG or BCBA ?
 

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Posted on Friday, July 13, 2018 - 11:34 am:       


Kuyyo morro:





ledu india try cheyaledu, grand parents no help, vallaki teleedu what we are going though, vallaki cheppina ardham kaadu
 

Kuyyo_morro
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Posted on Friday, July 13, 2018 - 11:32 am:       

Help, did you try involving grandparents into this. Or India trip for 3-6months?
 

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Posted on Friday, July 13, 2018 - 11:31 am:       


Urumi:




started at home..after few months they opened a center..they gave choice, but they said staff may change..so we are sending him to their location

he qualified for full time ABA in county schools, but since i already met my deductible we are continuing with private ABA
 

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Posted on Friday, July 13, 2018 - 11:29 am:       

US lo < 5yrs kids unte apartments are best than houses. Kids grow better, mainly if they fall in Autism spectrum. Evening play area lo they interact, regular play dates without appointments.

Illu unte ivanni kolpotharu pillalu who need to play with other kids. Adultski illu chinnaga anipinchina, kids ki matram awesome.

$1200 apartment rent kattinappudu my kid was happy than a 3k sq ft house. Mastercard slogan vesukondi, there are few things money cant buy.
 

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Posted on Friday, July 13, 2018 - 11:28 am:       


Help:

full time ABA ki velthunnadu


ante ? Edanna center ka ?
 

Urumi
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Posted on Friday, July 13, 2018 - 11:27 am:       


Brightlife34:

ABA is too rote but since he is young try working on sitting tolerance, task attention for now but have an open mind about other things..


in my opinion, ABA is good for ADL’s andi whether they like it or not. They can memorize those movements.

Brightlife34:

and last but not least, keep teaching things even if he does not show back they still absorb many things.


+1

@help, look at RPM. It might help.
 

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Posted on Friday, July 13, 2018 - 11:26 am:       


Urumi:

very good decision. Ee kids ki ade best.




full time ABA ki velthunnadu, mom stays at home, he is learning most of the time from his brother ,TV. apps isthe puzzles chesthunnadu..now he can ask for app..

i am trying to improve his comm skills, more inter-activeness ,
 

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Posted on Friday, July 13, 2018 - 11:23 am:       


Help:

he is in ABA 5 days a week ,8hrs a day


at home through insurance or school + private sessions
 

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Posted on Friday, July 13, 2018 - 11:16 am:       


Kuyyo_morro:

we moved into an apartment renting out our house where there were lot of desi kids. It helped big time for my elder one to grow out of the spectrum


very good decision. Ee kids ki ade best.
 

Brightlife34
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Posted on Friday, July 13, 2018 - 11:11 am:       

how does it matter even if its a false diagnosis. you pretty much still have to teach and work with him, take a safer route and assume he has the diagnosis.

keep doing what you are doing. don't judge the diagnosis. actually 2.5 ki you could over diagnose or under diagnose too, its a fine line. the gaps increase or decrease with time, so all you do is keep working

keep doing lot of play and work with him whenever you have time and energy. before all supplements and tests, this is what works the best. make a connection with him. they can have a much better life than what it shows in first 5 years of their life.

also understand there will be regressions all the time. kids on spectrum learn in a different way, they learn in chunks its not linear like NT kids. they might learn in a phase and then regress and then pick again.. its frustrating more so as they cannot communicate in normal ways...

reg pointers needed, just work with your maps, these online forums I suggest are best used for schools, therapy recommendations, venting and other supports. medically no one can suggest as each child is different. reg therapy you should be ready to try options like RDI, play based, floor time etc etc. some kids ki ABA is too rote but since he is young try working on sitting tolerance, task attention for now but have an open mind about other things..

and last but not least, keep teaching things even if he does not show back they still absorb many things.
 

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Posted on Friday, July 13, 2018 - 11:10 am:       


Kuyyo_morro:

Most desi kids fall in Autism spectrum,


perfect kid aite tappa every other kid may fall if seriously tested. unless a kid seems lost, no eye contact..no feelings..no emotions etc etc tappa,most of them will correct by age ani naa feeling
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

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Posted on Friday, July 13, 2018 - 11:06 am:       

Most desi kids fall in Autism spectrum, mainly due to lack of interaction. For the same reason, we moved into an apartment renting out our house where there were lot of desi kids. It helped big time for my elder one to grow out of the spectrum.

Aa reports chusthunte kallalo blood vachedi.

Next was having grand parents at home till the kid goes to KG.

3rd option is having a sibling who is not too out of age to play for the Autism kid.
 

Miniontada
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Posted on Friday, July 13, 2018 - 11:01 am:       


Help:

just developmental delays




ok i dont have that much knowledge , thanks for letting me know :-)
Chandranna Tofaa
PS: Appatlo Methanithodugu aka softwear
 

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Posted on Friday, July 13, 2018 - 11:00 am:       


Miniontada:




mine has no health issues, just developmental delays..ASD is wide range of syptoms

Just FYI.
 

Maverick
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Posted on Friday, July 13, 2018 - 11:00 am:       


Help:

his speech was delayed at 18 months.


18 months ki speech delayed enti mastaru..i am sure urs is a false diagnosis. did u notice him being lost or not having eye contact?
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

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Posted on Friday, July 13, 2018 - 10:58 am:       


Maverick:




false ane nenu anukunna initially.. his speech was delayed at 18 months.

so pediatrician finds out some symptoms ..so we went to developmental pediatric , based on some signs they declared him he has autism signs
 

Miniontada
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Posted on Friday, July 13, 2018 - 10:57 am:       


Help:

he is almost there anipisthundi..we are hoping he will catch up..this is where i wanted to do what ever i can, instead of loosing the precious time..




God Bless your Kids Brother ...

just a some post got my attention ,joy of parents when they witness improvement

https://twitter.com/i/status/1015792600190738433
Chandranna Tofaa
PS: Appatlo Methanithodugu aka softwear
 

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Posted on Friday, July 13, 2018 - 10:56 am:       

Help, elder brother forget it. Dont bother. Younger one will follow the elder kid and will have someone to interact nonstop.
 

Maverick
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Posted on Friday, July 13, 2018 - 10:55 am:       

18 months ki did u notice symptoms like lack of eye contact that prompted a visit? for some reason, it looks like a false diagnosis to me
There's a cacophony in the truth, A melody in lies and it accompanies one on every journey, From the lows to the highs
 

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Posted on Friday, July 13, 2018 - 10:55 am:       


kuyyo morro:




he has big brother..my elder one is helping him a lot..

i am not sure going to india, no help ..
 

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Posted on Friday, July 13, 2018 - 10:52 am:       


Mental_sachinodu:

2.5 yrs ki he is doing pretty good kadha vunkl.. keep doing what you are doing. keep him busy. as long as he is learning he will catch up ani na feeling.



he is almost there anipisthundi..we are hoping he will catch up..this is where i wanted to do what ever i can, instead of loosing the precious time..
 

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Posted on Friday, July 13, 2018 - 10:52 am:       

Send him to India for 3-6months. It helps big time. Or go for a sibling. My elder one was on the spectrum, but having a sibling, India trips and grandparents living with us for last 3-4yrs helped big time.
 

Mental_sachinodu
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Posted on Friday, July 13, 2018 - 10:48 am:       

2.5 yrs ki he is doing pretty good kadha vunkl.. keep doing what you are doing. keep him busy. as long as he is learning he will catch up ani na feeling.
 

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Posted on Friday, July 13, 2018 - 10:43 am:       


Mental_sachinodu:

what is his age




30 months
 

Mental_sachinodu
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Posted on Friday, July 13, 2018 - 10:42 am:       

What is his age now?
 

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Posted on Friday, July 13, 2018 - 10:42 am:       

i am looking for a improvements in social communication and one on one dialogues

when i ask him his name he spells his name instead of saying his name..rarely call me nanna, amma ,anna.. but he knows..

how can i improve these accepects
 

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Posted on Friday, July 13, 2018 - 10:39 am:       

I have been following this DB since long time..thought of posting since long time,finally created ID

here is the situation with my kid

at 18 months my son diagnosed with autism..

since than DB was helpful gathering info and did my research

now he is in ABA 5 days a week ,8hrs a day

we are visiting DAN docs, she is very helpful ..giving him some naturopathic medicine, so far i have seen lot of gains and improvements..

pretty much like a normal kid, eye contact, speech improved a lot.

he knows almost 200 words. some sentences..etc..now he is 30 months

done blood test,heavy metal panels,saliva test, and other test..all are normal accept east over growth, yeast aid use chesamu, now that is also normal

so my question is i wanted to make sure i am not missing anything before it is too late for his development.

any suggesions? any directions is appriciated

DB rocks

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