| Author | Message | ||
Vasu Hero Username: Vasu Post Number: 10793 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
I don't know him personally brother... he responded by looking at this thread.... he might have picked our email IDs from other thread where we have posted for a different purpose.... he shared it to everyone in that thread... and I volunteered to post it here... anthaku minchi naku emi teliyadu | ||
Boglehead Junior Artist Username: Boglehead Post Number: 175 Registered: 06-2014 Posted From: 174.59.126.97 Rating: N/A |
Brother, nenu mimmalni ekkada emi analedu. I was simply responding to your friend. None of my words were directed at you. | ||
Vasu Hero Username: Vasu Post Number: 10790 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
Bhayya... SW coolie ikkada... I'm trying to share what I've been asked to.... I really don't know who is right and who is not... he is sharing what he went through... and that too with his own son.. why would he lie... at the same time I do respect your point as a qualified doctor.... Don't shoot the messenger please... timely help ani exchanging the info... please do not take it to heart... let's leave it here... kaal moktha banchan | ||
Boglehead Junior Artist Username: Boglehead Post Number: 174 Registered: 06-2014 Posted From: 174.59.126.97 Rating: N/A |
Also, please tell him that I AM a doctor. Thanks. | ||
Boglehead Junior Artist Username: Boglehead Post Number: 173 Registered: 06-2014 Posted From: 174.59.126.97 Rating: N/A |
All I can say is there is no point in arguing with this person. Clearly, he is offended. I didn't make up any of those points I made. Harrytej, I wish you and your family the best! | ||
Vasu Hero Username: Vasu Post Number: 10787 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
Another update from him... copying it as image as there is some content highlighted not sure about it's importance.. http://imgur.com/WbKDEJa | ||
Heineken Side Hero Username: Heineken Post Number: 2811 Registered: 04-2009 Posted From: 8.39.118.254 Rating: N/A |
sujithcharantej@gmail.com anta oka test email kottu he said he has some info Ikkada Google Translation Mariyu Patanjali Products ammabadunu | ||
Boglehead Junior Artist Username: Boglehead Post Number: 172 Registered: 06-2014 Posted From: 50.153.175.137 Rating: N/A |
Its due to many factors, which start from even before the baby is born. Because the anatomy of the heart is different in those with TOF, the brain is susceptible to changes in blood flow that begins before being born, continues after until at least the surgery is done. It's also due to decreased oxygen supply to the brain caused by impaired function of the heart. | ||
Asdf Hero Username: Asdf Post Number: 19394 Registered: 12-2014 Posted From: 205.157.66.4 Rating: N/A |
tension lo vuntaadu kurrodu, vundu annai. newborn ki jwaram antene tension , alatidi | ||
Whyme Hero Username: Whyme Post Number: 17589 Registered: 09-2009 Posted From: 171.159.64.10 Rating: N/A |
Is this because of the surgical procedure during infancy or it is a part of the defect | ||
Boglehead Junior Artist Username: Boglehead Post Number: 170 Registered: 06-2014 Posted From: 50.153.175.137 Rating: N/A |
Bro... someone is really trying to help you out... I've given his email ID, have you reached out to him? He responded back with some message.... hope this is useful to you: " Hi Hari Tej, as father of a kid, who has born with CDH with Tetralogy of Fallot, I'm trying to help you. TOF is a very complicated congenital heart disease, it varies from baby to baby; none of my family/my Wife family had this, but sometimes it just happens,like in our case. TOF usually comes when baby has this 22Q deletion syndrome/Di-George Syndrome; it's a rare chromosomal defect;were one of chromosome will be missing in babies. TOF needs multiple surgeries over the life time and 22q Deletion kids often, most likely 9/10, suffer with learning disabilities and severe immuno/mental compromises, again it varies from baby to baby, your'e baby might be just normal baby with only TOF, like in our case,. Below are few links which might help you to understand, what I'm trying to tell http://www.vcfsfa.org.au/pages/what-is-vcfs.php http://www.ncbi.nlm.nih.gov/pubmed/11339379 Things you have to make sure with your'e doc:- 1. FISH Test for you/wife and if possible on womb to check on Di-George/22q ****** THIS IS VERY IMPORTANT 2. TOF often comes with missing pulmonary atresia, meaning one of the babies valves connecting to lungs will be absent.Double check on it, if that's the case they might suggest to deliver baby in Cardiac NICU, soon after he gets out, they have to operate him/or he has to be on Oxygen support. All I can say is your'e lucky, that they detected this thing in pregnancy itself, for us it was surprise after our baby was born, so make sure at time of delivery you guys choose CHILDREN'S HOSPITAL, with good neonatal cardiac units. Our baby was born and operated at Children's Hospital. Good luck with baby, he will be fine. Pray to God. !! Thanks, Axxxxx ---------------------------------------------------------- Sorry to say this vasu bro, but there is lot of misleading info. Here are some facts about TOF: 1. Its seen in about 5 out of 10,000 live births 2. Most kids (85%) with TOF do not have DiGeorge syndrome or any other syndrome 3. Surgery is usually not required right after delivery. Most kids undergo surgery during the first 6 months. The only thing that is correct is learning issues are common (severity varies) among children with TOF. A link to VCFS or NCBI doesnt help Harrytej at all. As I said earlier, please stop seeking info from lay people. Most do not have any idea what they are talking about. Eevn those who have children with TOF are not the best people you should be talking to first. Talk to the cardiologist first, then talk to others. | ||
Vasu Hero Username: Vasu Post Number: 10784 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
he may not have ID bro... anduke tana email content ni as is ga post chesa | ||
Vasu Hero Username: Vasu Post Number: 10783 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
ni bonda ra ni bonda icon esuku with all due respect..... ROM member shared a critical info... I've give his email ID in this thread... a taruvata Harrytej post lu kuda esadu.... and he did not reach out to him. A ROM member email ID lo clear ga cheppedu he went through this issue... and can be of very valuable to him only. Busy ayyindochu... but doesn't he need a first hand info that someone went through and stepped up out of way to help.... egesukuni digipoku preti daniki... | ||
Rajin Hero Username: Rajin Post Number: 12498 Registered: 05-2012 Posted From: 69.32.128.19 Rating: N/A |
a ROm member ekkada post cheyochchu easy ayyedi anyway good job, best of luck harrytej | ||
Buduguuu Megastar Username: Buduguuu Post Number: 24561 Registered: 01-2012 Posted From: 199.67.140.45 Rating: |
babu vasu.. josh jara tagginchuko.. he has enough problems already. db paddakala chustqadu ani nee expectation enti asalu? chusi thanks cheppakapote anukovali. let him be at peace before he talks and starts thanking | ||
Asdf Hero Username: Asdf Post Number: 19393 Registered: 12-2014 Posted From: 205.157.66.4 Rating: N/A |
+1. Harry would have been busy with this tension vasu. | ||
Vasu Hero Username: Vasu Post Number: 10781 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
We should appreciate that ROM member... who is concerned and sharing all the information... hats off bro. Babu Harrytej, help ani adigevu... neeku eduru istunnaru oka ROM member... at least thank him for the time and effort he is putting to help you out. | ||
Vasu Hero Username: Vasu Post Number: 10780 Registered: 10-2014 Posted From: 71.168.146.18 Rating: |
Bro... someone is really trying to help you out... I've given his email ID, have you reached out to him? He responded back with some message.... hope this is useful to you: " Hi Hari Tej, as father of a kid, who has born with CDH with Tetralogy of Fallot, I'm trying to help you. TOF is a very complicated congenital heart disease, it varies from baby to baby; none of my family/my Wife family had this, but sometimes it just happens,like in our case. TOF usually comes when baby has this 22Q deletion syndrome/Di-George Syndrome; it's a rare chromosomal defect;were one of chromosome will be missing in babies. TOF needs multiple surgeries over the life time and 22q Deletion kids often, most likely 9/10, suffer with learning disabilities and severe immuno/mental compromises, again it varies from baby to baby, your'e baby might be just normal baby with only TOF, like in our case,. Below are few links which might help you to understand, what I'm trying to tell http://www.vcfsfa.org.au/pages/what-is-vcfs.php http://www.ncbi.nlm.nih.gov/pubmed/11339379 Things you have to make sure with your'e doc:- 1. FISH Test for you/wife and if possible on womb to check on Di-George/22q ****** THIS IS VERY IMPORTANT 2. TOF often comes with missing pulmonary atresia, meaning one of the babies valves connecting to lungs will be absent.Double check on it, if that's the case they might suggest to deliver baby in Cardiac NICU, soon after he gets out, they have to operate him/or he has to be on Oxygen support. All I can say is your'e lucky, that they detected this thing in pregnancy itself, for us it was surprise after our baby was born, so make sure at time of delivery you guys choose CHILDREN'S HOSPITAL, with good neonatal cardiac units. Our baby was born and operated at Children's Hospital. Good luck with baby, he will be fine. Pray to God. !! Thanks, Axxxxx | ||
Vasu Hero Username: Vasu Post Number: 10755 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
Bro, did you try to reach to the person/email id I gave you? Looks like he wants to share some information with you | ||
Nihil Comedian Username: Nihil Post Number: 1674 Registered: 03-2008 Posted From: 124.123.66.225 Rating: N/A |
Yes..surgery is needed in most of the cases .. dont worry..easy ga correct cheyochu Ee madhya Fetal surgery chesthunnaru (ante before birth when the fetus is in womb) .. johns hopkins and one more center vundi US lo.. if u r interested, you can check with them if it is feasible for TOF .. endovascular cheyochu | ||
Darth_vader Side Hero Username: Darth_vader Post Number: 7483 Registered: 12-2006 Posted From: 122.175.15.105 Rating: N/A |
double marker and quadrapul marker tests must and should ga cheyinchandi. Again these results are only indicative. The whole birthing process from single cell to a beautiful baby is magical because more times than not nature will set everything alright so don't lose hope. Be thankful that you're prepared and in a position to correct the condition eventually. Never attribute to malice that which is adequately explained by stupidity. | ||
Harrytej Junior Artist Username: Harrytej Post Number: 680 Registered: 03-2015 Posted From: 167.137.1.15 Rating: N/A |
inka emanna hormonal complications (Degenerative Syndrome) ki vella mani salaha istunnaru doc...// I mean test cheyinchukovali antunnaru | ||
Harrytej Junior Artist Username: Harrytej Post Number: 679 Registered: 03-2015 Posted From: 167.137.1.15 Rating: N/A |
the doc confirmed TOF...He said 95% of the people have to go with surgery between 3-6 months...Most of the people live normal annadu... inka emanna hormonal complications (Degenerative Syndrome) ki vella mani salaha istunnaru doc... | ||
Vasu Hero Username: Vasu Post Number: 10735 Registered: 10-2014 Posted From: 71.168.146.18 Rating: N/A |
bhayya some ROM member asked to reach out to him for additional information. Veelu ayite contact cheyyi HIs email ID is sujithcharantej at gmail dot com | ||
Buduguuu Megastar Username: Buduguuu Post Number: 24551 Registered: 01-2012 Posted From: 192.193.216.151 Rating: N/A |
+100000000
Cool. em annaro cheppandi. all will be good  | ||
Harrytej Junior Artist Username: Harrytej Post Number: 678 Registered: 03-2015 Posted From: 167.137.1.15 Rating: N/A |
I am pretty sure your OB/GYN has referred you guys to a maternal fetal medicine (MFM) specialist and very likely a pediatric cardiac surgeon, who can give you more information// Half an hour lo appointment undi cardiologist tho... | ||
Bharateeyudu Comedian Username: Bharateeyudu Post Number: 1494 Registered: 03-2016 Posted From: 61.3.72.210 Rating: N/A |
+1 internet ni oka range varake consult cheyyali | ||
Boglehead Junior Artist Username: Boglehead Post Number: 168 Registered: 06-2014 Posted From: 50.153.175.92 Rating: N/A |
Will need surgery after being born. Most kids do fine following the surgery, but may develop issues with heart valves (regurgitation) or rhythm disturbances later in life. I am pretty sure your OB/GYN has referred you guys to a maternal fetal medicine (MFM) specialist and very likely a pediatric cardiac surgeon, who can give you more information. Do not seek any more info from the internet, which will only make you more worried. See if you can consult a Pediatric Cardiac surgeon, who can give you more info about the nature of heart defects in this condition, how significant they are at this stage, and what needs to be done and when. Also, they and pediatric cardiologists are the best people to talk to as far as long term outcome is concerned. | ||
Bharateeyudu Comedian Username: Bharateeyudu Post Number: 1491 Registered: 03-2016 Posted From: 61.3.72.210 Rating: N/A |
there is no tough decision..decision ante...its serious problem..good thing is it can be treated..sorry to hear.. | ||
Whyme Hero Username: Whyme Post Number: 17559 Registered: 09-2009 Posted From: 171.161.160.10 Rating: N/A |
these procedures have advanced so well.. the success rate is very high.. early detection is a blessing | ||
Whyme Hero Username: Whyme Post Number: 17558 Registered: 09-2009 Posted From: 171.161.160.10 Rating: N/A |
I believe doctors will monitor and decide if a procedure is required at all and if required - how soon.. glad they found it soon... | ||
Harrytej Junior Artist Username: Harrytej Post Number: 677 Registered: 03-2015 Posted From: 167.137.1.15 Rating: N/A |
Yaa..tough decisions teskovalemo...10 mins la life motham tala kindulu inatu anipinchindi...Intha technology unna sare chala kastanga undi decision teskodam | ||
Guriginja Legend Username: Guriginja Post Number: 33129 Registered: 02-2008 Posted From: 71.81.31.82 Rating: N/A |
It is a congenital heart disease...simple ga cheppalai ante gunde loni gadhula nirmanam lo lopam valla oxygen vunna blood and oxygen leni blood mix ayipothayi..dani valana body lo cells lo vacche o2 levels takkuva vuntayi...o2 levels taggithe body blue ga turn avuthundhi...anduke blue baby syndrome ani kuda antaru..surgical correction cheyali | ||
Bharateeyudu Comedian Username: Bharateeyudu Post Number: 1488 Registered: 03-2016 Posted From: 61.3.72.210 Rating: N/A |
sorry man..dont know about it..first time vintunna.. prati 10000 lo nalugurike vastundi antaa... within first year operation cheyyali anta.. but complexities with long-term problems including arrhythmia( irregular heart beats), pulmonary regurgitation life long vundochu ani wiki vuvaacha.. | ||
Buduguuu Megastar Username: Buduguuu Post Number: 24548 Registered: 01-2012 Posted From: 199.67.140.45 Rating: N/A |
info em teleedu annai. first time vinadam. google cheste dorikina info post chestunna. you would already have this information. baby puttaka pediatrician and cardiac surgery will decide best time and surgery chesi correct chestaru anta. baby will be hale and healthy ani undi bump for pro's like n_u or farmer. | ||
Harrytej Junior Artist Username: Harrytej Post Number: 676 Registered: 03-2015 Posted From: 167.137.1.15 Rating: N/A |
Deni gurinchi entha telisthe antha cheppandi.....Its diagnosed after 18 weeks of pregnancy... Any info is greatly appreciated.. |
