| Author | Message | ||
Jalsa Legend Username: Jalsa Post Number: 34867 Registered: 02-2008 Posted From: 159.53.78.140 Rating: N/A |
oh God!!!! this is torture! I can completely empathize with you! Hang in there sis! Did you try Children's Hospital of Philadelphia? | ||
Urumi Side Hero Username: Urumi Post Number: 4014 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
avunu andi. last 4 months lo atleast 4 different powerful medicines meeda pettaaru. no use. side effects tappa. inkaa next level powerful drugs suggest chestunnaaru ,age appropriate kaanivi. vaddanukuni appesaam. toughest part entante, vaadu oka pakkana pain to edustunte, inkaa pain ichhe panulu cheyyalli vaadiki. aakharuki food pedutunna, pain to ekkado okachota daakkunte, teesukochhi pettaali. devudu eppatiki help chestaado. | ||
Galiseenu Comedian Username: Galiseenu Post Number: 1320 Registered: 07-2009 Posted From: 70.196.12.196 Rating: N/A |
Titakandi.. Kani naku pillalaki emi iyindho ardam kale.... Jalsa annai post chadivinaka edo transloki poynatu vundhi.. Aa paristhti lo vunte asalu chaiyalagalama ani.. | ||
Cinejeevi Side Hero Username: Cinejeevi Post Number: 3857 Registered: 10-2014 Posted From: 72.166.89.74 Rating: |
sahanam, Santhi ki maro roopalu ee tallidanDrulu. pekatalo padi roopayalu pote problem, internet slow ayite asahanam, cinema balekapote kopam.... ee thread chadivi aa tallidanDrula kastam vinte telusutundi problem ante emito. To be frank I have many problems ani cheppukodaniki siggupadutunna.. Jihvaagre Vartate Lakshmi, Jihvaagre Mitra Baandhavaha Jihvaagre Bandhanam Praapti, Jihvaagre Maranam Dhruvam | ||
Jalsa Legend Username: Jalsa Post Number: 34866 Registered: 02-2008 Posted From: 159.53.110.142 Rating: N/A |
vammo, still gut problems? root cause identify chesamu annaaru ga...any particular therapy/diet? | ||
Urumi Side Hero Username: Urumi Post Number: 4013 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
everyday vundede. 3 days nunchi eppudu hospital lo admit cheyyaalci vastadaa ani waiting. every one n half hr ki school ki velli choosukochukuntunna. | ||
Jalsa Legend Username: Jalsa Post Number: 34865 Registered: 02-2008 Posted From: 24.186.109.17 Rating: N/A |
Sorry to hear! take care. | ||
Starbucks Side Hero Username: Starbucks Post Number: 4510 Registered: 08-2011 Posted From: 1.73.11.101 Rating: N/A |
Thanks Sis, nuts allergy em ledhu.. we will try these Bhimavaram | Singapore | Tokyo | ||
Urumi Side Hero Username: Urumi Post Number: 4010 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
busyn bad day andi ivaala. meeru process start cheyyandi , discuss cheddaam @starbucks, nuts allergies lekapote, yogurt,milk, cookies chesi ivvachhu. jonna, sajjala to bread cheyyachhu. tons of recipes vunnay. vetakandi. | ||
Urumi Side Hero Username: Urumi Post Number: 4009 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
busyn bad day andi ivaala. meeru process cheyyandi , discuss cheddaam @starbucks, nuts allergies lekapote, yogurt,milk, cookies chesi ivvachhu. jonna, sajjala to bread cheyyachhu. tons of recipes vunnay. vetakandi. | ||
Ram1 Side Hero Username: Ram1 Post Number: 3584 Registered: 09-2010 Posted From: 50.7.78.92 Rating: N/A |
@JALSA mee HD really chala great twins a meeku ....wishing and hope every thing will be fine and things will do(work) favor on ur side soon ... @urmi u too chala great sagam chadivaka chadavalaniiyyaledhu endhuko tears anthe | ||
Jalsa Legend Username: Jalsa Post Number: 34862 Registered: 02-2008 Posted From: 159.53.46.143 Rating: N/A |
asalu entidhi antunna... vaadiki pay chesey amount kadha? How will EAD help here? Is it for tax saving? | ||
Urumi Side Hero Username: Urumi Post Number: 4006 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
c monthly 20 hrs x $10 vesukunna $400 vastundi.choodandi worth anukunte change chesukovchhu. chaala questiions answer cheyyaali,docs upload cheyyaal. nenu mellaga chesa. rojuki few minutes atla.anduke anna. vaallu docs adgutune vuntaaru.boring and time tken process.meeru 1 day lo koda finish cheyyachhu opika vnte | ||
Starbucks Side Hero Username: Starbucks Post Number: 4508 Registered: 08-2011 Posted From: 1.73.11.101 Rating: N/A |
i agree, em cheyyaleni paristhithi but edo oka cheyyali anipisthadhi.... one fine day everything will be alright bro... just keep the hope and fight back Bhimavaram | Singapore | Tokyo | ||
Jalsa Legend Username: Jalsa Post Number: 34861 Registered: 02-2008 Posted From: 24.186.109.17 Rating: N/A |
That's good to hear! Diet start chesina first few weeks problem ani vinnaa. Lucky ga maa pedhhadhi pedhhaga sathayinchaledhu diet wise. What you said is right, we get adjusted and you will fight back. That comes naturally, to everyone. I still remember the day my little one was diagnosed: right on the eve of her first birthday. Intiki kooda pampivvamu, it's a miracle she survived so far with this low oxygen saturation annaaru. I just requested them for one day more. They wanted her to be on oxygen tank, but when the tank didn't come by midnight (that is her first birthday) we had to take her to ER and get admitted. Sarey adhi koncham stabilize ayindhi anukuney time ki pedhha dhaaniki autism ani thelindhi. That was a backbreaker! Em chestam, fight cheyali. | ||
Sesani Legend Username: Sesani Post Number: 40398 Registered: 08-2014 Posted From: 69.114.189.147 Rating: N/A |
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Starbucks Side Hero Username: Starbucks Post Number: 4507 Registered: 08-2011 Posted From: 1.73.11.101 Rating: N/A |
thanks baaa for your blessings... btw he is doing good these days... lot of improvement in last 3 months Bhimavaram | Singapore | Tokyo | ||
Sesani Legend Username: Sesani Post Number: 40397 Registered: 08-2014 Posted From: 69.114.189.147 Rating: N/A |
hope for the best baa. God bless the kid | ||
Rowdy Legend Username: Rowdy Post Number: 37393 Registered: 01-2010 Posted From: 73.184.45.249 Rating: |
Konchem late aina chebtunna ... Kudos to all mothers ... Esp special needs unna kids' mothers ... Jalsa posts chuste nenu aa position lo unte enti ani alochistene gunde jaladaristundi ... Meeku vachina kashtalu evariki rakudadu ... Hope you will get out of this soon ... Hats off to u Sir! | ||
Starbucks Side Hero Username: Starbucks Post Number: 4506 Registered: 08-2011 Posted From: 1.73.11.101 Rating: N/A |
maa vaadiki recent ga GFCF diet start chesaam(just to try one month)... vaadiki biscuits, breads, milk and curd rice ante chaala ishtam... but ippudu avi anni aapeyyamannaru... chaala kashtam ga untundhi vaatini choosinappudalla.... but thappadu... i m not how it is gonna help but just trying Bhimavaram | Singapore | Tokyo | ||
Buduguuu Megastar Username: Buduguuu Post Number: 24540 Registered: 01-2012 Posted From: 69.132.118.7 Rating: N/A |
anaayaasam ga mee gurunchi talchukunna prati sari kallu chemarustu untai. enti ra bhagavantuda ee kastalu abham shubham teliyani pasi hrudayalaki ani... shatha koti vandanalu meeku __/\__ | ||
Buduguuu Megastar Username: Buduguuu Post Number: 24539 Registered: 01-2012 Posted From: 69.132.118.7 Rating: N/A |
jalsa brother and urumi sister, template dialog you must have heard a ziliion times before.. hats off to you guys and god bless the little ones. na bidda challaga undali ani devudni enta vedukuntano mee biddalu kuda anthe challaga undali ani devudini prathi sari prathi roju vedukuntunna. meeru money help vaddu annaru kabatti naku chetanainanta lo nenu chestunna udata bhakti saayam. you people are always in my prayers. once again all the very best and god bless the little ones. meeku ye vidhamaina badha kalgina db lo oka thread esi bharaanni dinchukondi. antaka minchi mem ye vidam ga aina sahaya padagalam ani meeru bhaaviste sankochinchakunda adagandi. db is always for you  | ||
Starbucks Side Hero Username: Starbucks Post Number: 4505 Registered: 08-2011 Posted From: 1.73.11.101 Rating: N/A |
hats off to you both!!!! Bhimavaram | Singapore | Tokyo | ||
Starbucks Side Hero Username: Starbucks Post Number: 4503 Registered: 08-2011 Posted From: 1.73.11.101 Rating: N/A |
monnati varaku nenu kooda alaane anukune vaadini baa.. but the moment i got to know, i got adjusted with it... baadha ga untundhi but daanikanna ekkuva responsible ga undatam start avuthundhi Bhimavaram | Singapore | Tokyo | ||
Sesani Legend Username: Sesani Post Number: 40393 Registered: 08-2014 Posted From: 63.143.225.92 Rating: |
Mentally strong undatam ante idi.... kids ni etla choosi kuda baadha ni digamingukoni still strong undatam, carrying on with regular stuff is nothing less than a miracle to me, yedo supernatural strength undi meeku... antha mental strength naak ledu.. naa valla kaadu... Hats off and God Bless u guys... | ||
Jalsa Legend Username: Jalsa Post Number: 34859 Registered: 02-2008 Posted From: 24.186.109.17 Rating: N/A |
What is this? she's on H4. H4-EAD teesukuntey benefit untadha?
What??????? 2 months endhuku? | ||
Urumi Side Hero Username: Urumi Post Number: 4005 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
mamulu janta kaadu sis. services kosam deal chese prati okkarito talanoppe. serivces decline cheyyatanki kooda edoti antaaru, discourage cheyyataaniki. schools to horrible vuntadi. @zuri akka, thank you performcarenj.org lo customer serivce no ki call chesi, process application link teesukuni fill cheyyandi first. that itself will take couple of months for you. respite easy ga approve avutundi.daani tarwata steps appatiki opika vunte chepta. good thing enti ante, mee wife ead/gc aithe, aa hours ki money tanu claim chesukovachhu. ledante, evaranna telisina servants ni pettukuni, aa payment atu ippinchachhu. daily one hr evaranna vachi after school food petti, snanam cheyinchina help ee kada. nenu last week sick aithe, last minute lo respite vaadiki call chesa. after school, one hour choosukunnaadu. meeru cheppe experiences anni kallaku kanapadutunnay. maaku okallu ante, meeku iddaru. mee wife patience ki mokkali nijamga. | ||
Jalsa Legend Username: Jalsa Post Number: 34858 Registered: 02-2008 Posted From: 24.186.109.17 Rating: N/A |
Intha fight chesey opika illio, but will try. Give me the details.
Maa chinna daaniki vachhey nurses ni choostey BP vasthundhi. Some of them sleep at night. Night naaku work undi chesukuntuntey I kept hearing my kid's elevated breathing rate and ventilator beeping - from the living room even when kid's bedroom door was closed. I went in to see what's going on and the nurse was sleeping. Adhantha set chesinaaka kooda levaledhu. I had to wake her up and let her know. Inkontha mandhi think they know or they care more about our kid. School ki pampinchatledhu ani school vaalluu intiki vachinappudu antey, they were like, yeah she needs to go to school, parents don't feel comofortable ani cheppaaru. school vallu evo comments chesaaru. naa wife ki BP vachesindhi. Sick ayithe evaru choostaru ani adigithey noru moosukunnaru. Inkoka nurse ayithe complaints ekkuva chesedhi thakkuva - chair ledhu, room hot ga undhi thokka thotakura. pani cheyadam maatram undadhu, just alaa koorchuni untadhi ipad padesi. maakemo pedhha dhaani therapies tho time saripothundhi. chinnadhanitho time ekkuva undadhu, so weekends or ivaalti laaga hospital visit unnappudu, we make most of it. nurse la ki gattiga endhuku cheppalemu antey, scarcity of nurses and thinking of daughter's needs and our needs. ilaantivi roju edho okati. chinna daaniki supplies kaavali, so every month wife has to call on different days to remind them to send supplies. same with medications - oka 10 medications untai, each and everything gurthu pettukovali. And doctor appointments - eye, ENT, pulmonary, cardiology, gastro etc. Ivi just chinna daaniki maatramey. Pedhha daaniki cheppakkarledhu. Papam emi ardham kaadhu dhaaniki. frustration vachina dhaani face choostey emanaali anipinchadhu. still sometimes arichestaa, but moment later take care of her. We have to take her to external OT, speech on different days. every day school nunchi 3.30 ki vasthey, daaniki food petti, snanam cheyinchi 4.30 kalla ABA kosam ready ga unchaali. All this while handling her behavior. Now, we have to sit with her ABA therapist to go through each and every program to make sure it's apt or suggest new ones when she is lagging/progressing. Few days gap vasthey malli behavior start avuthundhi. Wife does a great job of handling these programs and others. Inkoka sample issue. maa chinna daaniki vachey supplies 2014 lo pedhha dhaani peru meedha bill chesaaru. By the time i noticed the bill, it was mentioned as "last warning". So, first i paid for it and from then on till now I didn't get my refund. January lo oka hospital ki vellaamu pedhha daani neurology appointment ki. It was in network with my insurance. So when I was going through insurance claim documents, i noticed it was put under "out of network" around $800. shock ayyaa. entira idhi ani insurance ki 2 times call chestey they said they'll work with the hospital to reprocess. Now, today when i called, they are saying, the hospital's "behavioral" part is not covered. I mean, ridiculous. Veeti valla side effect entantey, I have lost my focus at work. Mind is always busy thinking about all this. Making few mistakes at work, loss of confidence etc. Although, credit to HD for giving me some peace of mind by handling lot of issues. Illu kondhaamu annaa, job/team maarudhaamu annaa confidence undatledhu ee bhayaala valla - madhyalo nurse lu quit chestey ela etc. | ||
Asdf Hero Username: Asdf Post Number: 19355 Registered: 12-2014 Posted From: 76.109.163.196 Rating: N/A |
I wish you both all the best. | ||
Whyme Hero Username: Whyme Post Number: 17554 Registered: 09-2009 Posted From: 174.108.95.79 Rating: N/A |
God bless you | ||
Maverick Legend Username: Maverick Post Number: 60871 Registered: 01-2008 Posted From: 68.50.101.68 Rating: N/A |
Take a bow for your fighting spirit Happy Vizag | ||
Analog Side Hero Username: Analog Post Number: 4429 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
stay away* | ||
Onlytruth Legend Username: Onlytruth Post Number: 182779 Registered: 01-2007 Posted From: 107.77.83.82 Rating: N/A |
Dedicated to Urumi , Jalsa : https://youtu.be/K1-_h2iNcOw | ||
Analog Side Hero Username: Analog Post Number: 4428 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
stay from negative ppl...BTW aa video neeku pampinchamani Zuri sis fwd chesaru | ||
Onlytruth Legend Username: Onlytruth Post Number: 182777 Registered: 01-2007 Posted From: 107.77.83.82 Rating: N/A |
Urumi sister & husband , Jalsa bro & his wife lanti vallu many couples ko aadarsa praayam Hatsoff to you Guys ! | ||
Chiru_fan Megastar Username: Chiru_fan Post Number: 24711 Registered: 04-2008 Posted From: 71.179.35.152 Rating: N/A |
 CHIRU - SACHIN - FEDERER | ||
Chiru_fan Megastar Username: Chiru_fan Post Number: 24710 Registered: 04-2008 Posted From: 71.179.35.152 Rating: N/A |
annai, hold tight....have faith in God....I am sure that your family will be out of these roadblocks soon.....I sincerely wish that this would happen soon. hats off to you and your wife! parents ki correct nirvachanam meeru..... CHIRU - SACHIN - FEDERER | ||
Urumi Side Hero Username: Urumi Post Number: 4004 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
sis, thank you for understanding. aa link ikkada post chesaavantene artham avutundi, neeku maa situation clear ga artham ayindani. telisi kooda chaala mandi hurt chestaaru , even hospitals lo kooda. kontamandi adige questions,chese comments chaala hurting ga vuntay. dulipesukotam, strong reply avvatam alavaatayipoyindi. I am glad nijamga, through db meelanti sensible persons to maatladutunnanduku. | ||
Urumi Side Hero Username: Urumi Post Number: 4003 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
bhayya, meeku idi varakau chaala sararlu chepanu Performcare gurinchi apply cheyyamani. maaku respite services approve ayinay. services start ayina daggara nunchi, atleast every week naaku cook chesukune time dorukutundi. inkaa ABA,ADL, family services kooda approve ayyyayi, but services inka start kaaledu. avi start aithe atleaast weekly oka couple of more hours naaku time dorkkutundi anukutunna. but ee services approve cheyinchukotaaniki 8 months daily 2 hrs spend chesi fight cheyyaalic vachindi. but worth it anipistundi. meeru cheyyaali anukunte cheppandi. evadito em maatladite work out avuddo, evadito potladdlo chepta. iddaru kids vunnaaru. mee wife situation enta worse anedi nenu imagine cheyyagalanu. help her if u can. | ||
Rajusk Legend Username: Rajusk Post Number: 46924 Registered: 02-2008 Posted From: 47.20.212.138 Rating: N/A |
Mee iddari opika and mano dhairyam + strong will ki really hats off !!! | ||
Urumi Side Hero Username: Urumi Post Number: 4002 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
mohaamataniki kooda kaadanaleni nijaalu ivi. video choodagaane mee wife kooda gurtu vachaaru. db member kaadu kada mention cheyyatam baagodemo anni voorikunna. | ||
Analog Side Hero Username: Analog Post Number: 4427 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
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Jalsa Legend Username: Jalsa Post Number: 34855 Registered: 02-2008 Posted From: 24.186.109.17 Rating: |
ha-ha, super chepparu evaro kaani... maa life adhey. ditto. Andharu weekend ki diggerland, beach, etc antuntey memu therapy, therapy, and more therapy anadam. Andharu vacation ki florida etc antey memu hospital visits anadam movie ki veldhamanna vellaleni paristhithi...intlo pillalu padukuneytappudu thappithey choodadam avvadhu.. wife ki ayithe inka daarunam, at least i go to work, for her day in day out idhey pani, idhey thinking. education plans review cheyadam, everyday what else can be done or what went wrong today, dealing with tantrums, dealing with nurses, their schedules...nightmarish...Naa valla chethanayindhi cheyadam kantey em cheyalenu... | ||
Urumi Side Hero Username: Urumi Post Number: 4001 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
thank you sis  em raayalo teliyatla. thank you | ||
Analog Side Hero Username: Analog Post Number: 4425 Registered: 05-2008 Posted From: 207.43.172.140 Rating: N/A |
nope...fwd | ||
Mrhyderabad Hero Username: Mrhyderabad Post Number: 12256 Registered: 01-2008 Posted From: 73.194.94.28 Rating: N/A |
this is you ?  Don't say you don't have enough time. You have exactly the same number of hours per day that were given to Helen Keller, Pasteur, Michaelangelo, Mother Teresea, Leonardo da Vinci, Thomas Jefferson, and Albert Einstein | ||
Analog Side Hero Username: Analog Post Number: 4424 Registered: 05-2008 Posted From: 207.43.172.140 Rating: |
Uru, On behalf of all DB gals, This is dedicated to you.. https://youtu.be/-jd_koO2upQ | ||
Urumi Side Hero Username: Urumi Post Number: 4000 Registered: 12-2011 Posted From: 173.70.201.75 Rating: N/A |
Thank you gagu ! Ivaala intlo em chesi pettaavu ? @moviebuff, thank you. @girls, happy mother's day to you all. Emanna break dorikinda  | ||
Farmer Side Hero Username: Farmer Post Number: 3233 Registered: 04-2015 Posted From: 162.252.85.172 Rating: N/A |
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Moviebuff001 Junior Artist Username: Moviebuff001 Post Number: 963 Registered: 06-2013 Posted From: 76.31.114.171 Rating: N/A |
Happy Mother's day to all db mothers. | ||
Gandhiguevara Legend Username: Gandhiguevara Post Number: 60735 Registered: 10-2009 Posted From: 138.229.167.61 Rating: N/A |
Happy Mother's Day sis |
