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Autism/Aspergers/Developmental Disord...

Chalanachithram.com DB » New TF Industry Related » Archive through November 02, 2017 » Autism/Aspergers/Developmental Disorder... « Previous Next »
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Onlymovies
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Posted on Thursday, November 02, 2017 - 09:09 am:       

Anyone has idea about 'Brain Balance Achievement Center'

ma vaadini 1month ga pampistunnamu.. their concept is upto some part of spectrum is due to brain not functioning correctly. By doing some exercise it can be corrected.

choodali emavutundo
 

Urumi
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Posted on Thursday, November 02, 2017 - 08:55 am:       


Jalsa:

Sleep is a problem for some autistic kids. Nightmare for both kids and parents



+1 . 3 years ayyindi gattiga nidra poyi. now, my health is in a pretty bad shape too.


Jalsa:

We've observed that she wakes up like this during fall season. Last year I remember same thing happened. Not sure why.


check if she is reacting to any fall allergens. Are you giving her vitamin c ? natural way lo povalante, mana gooseberry soaked in local honey tinipinchandi early morning. koncham better avvachhu.
 

Jalsa
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Posted on Thursday, November 02, 2017 - 05:26 am:       


Emc2:

https://spectrumnews.org/opinion/viewpoint/treating-sleep-ma y-ease-forms-autism/



Sleep is a problem for some autistic kids. Nightmare for both kids and parents. Right now I'm awake after returning from hospital at 11 since last two hours as my kid is awake. It was such a big problem 3 years ago. It has gotten much better now that she's going to school and having therapy everyday and cutting milk completely. We've observed that she wakes up like this during fall season. Last year I remember same thing happened. Not sure why.
She sleeps with us and our room is pitch dark.
 

Emc2
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Posted on Wednesday, November 01, 2017 - 07:27 pm:       

i was watching satya nadella video about his second child and daughter developmental delays

neuroplasticity school in Vancouver edo undi anta kada, instead of accomidating brain they will train the brain to learn anta

here is the video, evarina try chesara?
https://www.bloomberg.com/features/peer-to-peer/
 

Emc2
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Posted on Wednesday, November 01, 2017 - 09:19 am:       

https://spectrumnews.org/opinion/viewpoint/treating-sleep-ma y-ease-forms-autism/
 

Jalsa
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Posted on Tuesday, October 31, 2017 - 05:06 pm:       


Urumi:

meeku idi varaku intlo ABA services vundevi kadaa. appudu standard programs meeda work chesevaara ? lekapote, sleep,eat illanti basic stuff meeda concentrate chese vaara ?

nenu monna oka agency ki call cheste, weekly min 10 hrs antundi. maa vaadu handle chestaada cheyyada ani bhyam ga vundi. mee experience ela vundedi ?



Anni chestaru. We wanted her to learn living skills in addition to academics like alphabet, numbers, shapes etc etc. Maa ammai Anni marchipothundhi roju cheyakapothey. Andhukey repeat untai.

Maaku 14 hrs approved and we take it. It's a bit much for her as she doesn't get any time during weekdays. But that's better for her.
Mee abbai ki verey issues kooda unnai kadhaa so don't know. It should be ok if you space it out over a week anukuntunna.
 

Emc2
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Posted on Tuesday, October 31, 2017 - 04:40 pm:       

some interesting read about newton,Eisenstein,Mozart ,darwin all are in spectrum

had difficulty in learning and social interaction and communication

all are out of the box thinking
 

Emc2
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Posted on Tuesday, October 31, 2017 - 02:58 pm:       


Ferrari:




spectrum is broader range of disorders.. there is a criteria to meet ..i think lack of any(i am not sure what are they) three things they will put them in spectrum..

each kind is different in Autism spectrum disorder. . it can be anything, there are number of things like Asperger,autism,ADSD etc.. all comes under spectrum
 

Ferrari
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Posted on Tuesday, October 31, 2017 - 02:34 pm:       

assalu ee spectrum ante enti..telisina valla daughter 5 years and they said she is in that spectrum...

she plays on her own..if some kid is crying she goes and bangs the door and starts shouting out loud..doesn't make eye contact...is it serious or she will be fine if taken to india..
 

Urumi
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Posted on Tuesday, October 31, 2017 - 02:19 pm:       


Jalsa:

Yeah ABA kosam


meeku idi varaku intlo ABA services vundevi kadaa. appudu standard programs meeda work chesevaara ? lekapote, sleep,eat illanti basic stuff meeda concentrate chese vaara ?

nenu monna oka agency ki call cheste, weekly min 10 hrs antundi. maa vaadu handle chestaada cheyyada ani bhyam ga vundi. mee experience ela vundedi ?
 

Siloan
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Posted on Tuesday, October 31, 2017 - 01:28 pm:       


Ishan:



not right thread to ask...please respond on projector thread
 

Ishan
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Posted on Tuesday, October 31, 2017 - 12:42 pm:       


Jalsa:


yes posttax. Pretax and employer based plans are not deductible as you know. For us third party insurance is better because of low oop and deductibles. The rumor is that 10% limit will be waived for special kids medical care...this comes from a cpa...but it's just a rumor for now.
"...but it's not who you are underneath, it's what you do that defines you..."
 

Kaisersooze
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Posted on Tuesday, October 31, 2017 - 12:15 pm:       


Urumi:

colostrum donate chese banks emanna idea vunnayya meeku




vedanta biosciences...they are manufacturing..inka bayatiki raledhu...just like probiotic capsule laga they will sell it...maybe 6 to 12 months ani nenu anukontunna..
 

Jalsa
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Posted on Tuesday, October 31, 2017 - 02:39 am:       


Urumi:

jalsa, applyingfor ABA sevices? Ninam chepte approv cheyyaru. Baaga bad ani cheppandi



Yeah ABA kosam. Maa insurance Peru cheptey lot of providers are saying we do not participate.
 

Urumi
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Posted on Monday, October 30, 2017 - 09:46 pm:       


Emc2:


imamoolga medicaid ki eligible kaadu. But performcare through work avutundi.
@jalsa, applyingfor ABA sevices? Ninam chepte approv cheyyaru. Baaga bad ani cheppandi
 

Emc2
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Posted on Monday, October 30, 2017 - 04:11 pm:       


Urumi:

medicaid




are you elgible for medicaid? or is it depends on the state?
 

Jalsa
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Posted on Monday, October 30, 2017 - 04:09 pm:       


Urumi:



Okay thanks. Let me call performcarenj this week. Prasthutham handling other kid's emergency in hospital.
 

Urumi
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Posted on Monday, October 30, 2017 - 12:33 pm:       


Jalsa:


memu special ga chesindi em ledu aandi. Performcare ki ma insurance info, pay stubs opies ichhamu. maaku ABA covered kaadu ani vaalle Medicaid ki apply chesaaru. recent ga ma policy change ayyindi. still medicaid apply avutundi.
 

Urumi
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Posted on Monday, October 30, 2017 - 12:27 pm:       


Anthamidhya:

alaage maa pillala kosam mee kids n their circle lo awareness penchandi, autistic kids ni play times lo include cheyandi etc.




peddavaallaki kooda andi. autistic kids ante kottestaaru ani apohA. andaru kids alaa vundaru ani teliyadu. nenu doctor's appt ki pilladni teesukelte , maa vaadu paapam songs paadutu vuntaadu. paatalu vintaaniki vaalle vastaaru. kaani parents vaalla pillalni laagesukuntaaru anumanam ga. ginde pindesinattu avuddi.
 

Emc2
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Posted on Sunday, October 29, 2017 - 06:52 pm:       


Jalsa:




yes post tax..plus beyond AGI 10%

if your salary 100k and you have out of pocket expenses 11k than 1k is tax deductable
 

Jalsa
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Posted on Sunday, October 29, 2017 - 06:50 pm:       


Emc2:

ya anything beyond out of pocket and pre tax is eligible for expense



I assume you meant "post tax"
 

Emc2
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Posted on Sunday, October 29, 2017 - 06:45 pm:       


Jalsa:

i spent a ton on OT as that therapist wouldn't accept any insurance.




ya anything beyond out of pocket and pre tax is eligible for expense
 

Jalsa
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Posted on Sunday, October 29, 2017 - 06:41 pm:       


Emc2:

premium by default is pretax, daniki tax break undadu



so that doesn't count towards medical expenses, correct? without that for now, I would not be eligible. Company gives Medical Reimbursement Account funds like Wellness Funds. And I also contribute towards HSA.
2015, 2016 i spent a ton on OT as that therapist wouldn't accept any insurance.
 

Emc2
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Posted on Sunday, October 29, 2017 - 06:39 pm:       


Jalsa:




premium by default is pretax, daniki tax break undadu
 

Jalsa
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Posted on Sunday, October 29, 2017 - 06:38 pm:       


Emc2:

any medical expense beyond 10% is eligible,



I know that bhaiyya and some states have lower threshold as well. NJ I think is 3%. But how is pre-tax insurance premium eligible as medical expense ani doubt.
 

Emc2
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Posted on Sunday, October 29, 2017 - 06:37 pm:       


Jalsa:




any medical expense beyond 10% is eligible,
 

Jalsa
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Posted on Sunday, October 29, 2017 - 06:36 pm:       


Ishan:

Make sure to apply all the medical expenses in your tax returns, you will get returns anything over 10% your AGI. The expenses also include monthly premiums, out-of-pocket maximums etc. I heard that Trump is making a favorable tax reform for special education expenses from next year.



Yeah, I used to do that. But, new thing here you said is "Monthly premiums". How is that eligible? Our insurance via employer is pre-tax. Is it still eligible towards medical expenses?

Regarding Trump regulation, where did you hear that? I wish he could make providers accept many more insurances. Having a really tough time finding right therapists and can't switch insurance due to my other kid.
 

Ishan
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Posted on Sunday, October 29, 2017 - 10:44 am:       


Jalsa:


Make sure to apply all the medical expenses in your tax returns, you will get returns anything over 10% your AGI. The expenses also include monthly premiums, out-of-pocket maximums etc. I heard that Trump is making a favorable tax reform for special education expenses from next year.
"...but it's not who you are underneath, it's what you do that defines you..."
 

Anthamidhya
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Posted on Saturday, October 28, 2017 - 09:04 pm:       


Platypus:




yes, aayane. konchum costly doc.
4yrs ki alaa meeku emi doubts raledhu ante kid is fine.
1-3yrs time lo development milestones meet aithe, all good imo.
inka doubt unte mchat for autism ani form untadhi. andhulo questions chusthe you will get an idea of what to look for.

shake ayipovatam normal. it will take months to process it. lot of crying sessions unnayi. this is where family and friends support comes in. you are doing a great job in finding more about it and giving them actionable info. ilaa help chesthuu undandi. alaage maa pillala kosam mee kids n their circle lo awareness penchandi, autistic kids ni play times lo include cheyandi etc.
at some point if they want someone to speak to regarding their experience, I'm happy to speak. pm cheyandi.
 

Jalsa
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Posted on Saturday, October 28, 2017 - 07:03 pm:       


Urumi:


kid age enta ? CA lo Speech, OT ,PT ki kooda pay chestaara ?



oh he is 8 now...they moved 2 years ago.


Urumi:

financial status ni batti medicadi annnaru. not true. maaku insurance coverage ledu for mental healht services. so, medicaid pay chestundi. maaku just bill vastundi. State pay chestundi, for performcare related services.



I have been waiting to hear this.
When my younger kid was being discharged from hospital in 2014, we needed nursing coverage 24x7. At that time, I started with Social Security - they recognized that kid had disability but denied coverage due to financial status. Next I went to medicaid, it was denied for the same reason. Then I went to county and applied for something called CHIP or something, it was denied again due to financial status. So I got ready to move to PA. But by God's grace insurance accepted to provide nursing.
Then last year one of our nurses was applying for govt job and told us to try something called MLTSS. We applied for it and as long as she has ventilator and tracheostomy, g-tube etc they would provide nursing - irrespective of parent's financial status. they only looked at what the kid has on their name. limit is $2k assets.

Now, I applied for medicaid earlier this year for autistic kid and they denied saying she's not eligible for this MLTSS program.
How did you apply for medicaid for your kid? I mean on what diagnosis? What is the exact application you filled out? What does performcare exactly provide? I read about them and didn't seem applicable for my case.
My insurance provides ABA provision, but not all providers are accepting and as such we are stuck with couple of clinics whose therapists we are not finding that beneficial for our kid.
 

Platypus
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Posted on Saturday, October 28, 2017 - 05:44 pm:       

Thanks for all your views. They are currently in Hyderabad. So, they can consult Kalyan Chakravarthy. Could you please share the exact contact details of this doctor? Perhaps a website link or something? Google search shows a KC in banjara hills who specializes in child and adult psychiatry. Is he the same person?

Ee Autism Spectrum Disorder - tarvata kooda velugu loki vacchi chance undhaa? I mean if a kid doesn't show any symptoms for three/four years and then gradually displaying autistic characteristics? Is it possible? At what age are we sure that we don't have to worry about ASD?

Questions meeku picchigaa anipincha vacchu. Naaku idhanthaa brand new. Family mottham shake ayipoyi unnaamu. Andaru vaalla kids ni bhootaddham tho choostunnaaru ippudu emaina problem undhaa ani. My son is 4.5 and my daughter is 8.5. Should I be concerned and be on the lookout for autism symptoms? So far, no pediatrician has ever said anything and they seem to be doing OK in school as well. PTA meeting lo haven't heard any concern from the teacher - apart from "accent related issues" (UK lo)
 

Anthamidhya
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Posted on Saturday, October 28, 2017 - 05:28 pm:       


Emc2:




naku blood test chesi icharu but tests lo anni normal ani vachayi. especially no allergies but diet tho change telisindhi.
each kid responds differently, that makes it tuf.
 

Urumi
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Posted on Saturday, October 28, 2017 - 03:30 pm:       


Emc2:

or just blind ga supplements icheyadamena?


not at all. maa vaadu asalu e supplements, vitamins handle cheyyaledu. genetic tests, few blood tests check chesukoni edi avasaramo adi ivvaali. adi food or medicine anedi kooda important.
 

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Posted on Saturday, October 28, 2017 - 03:04 pm:       


Anthamidhya:

they don't have a magic bullet as well. but more a mix of DAN doctors here. rely on vitamin n mineral supplements n diet which did wonders to my kid as opposed to pediatricians pointing to a dead end other than therapies. he attacks the problem from all angles without wasting time and more importantly counsels parents straight up.


SO do all the DAN and functional medicine doctors in the US. Comparing doctors is immature, but my point is that US has better supporting system and resources for tackling ASD than any other country. On research front too, US is not "catching up", US is the pioneer and other countries follow, probably because the ASD incidence is highest here. I am not saying its perfect, but its better than any other country.

Urimi, there are bunch of books I have read - I will post the names later.
"...but it's not who you are underneath, it's what you do that defines you..."
 

Emc2
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Posted on Saturday, October 28, 2017 - 01:14 pm:       


Anthamidhya:




vitamins and mineral supplements ela decide cheyali..

or just blind ga supplements icheyadamena?
 

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Posted on Saturday, October 28, 2017 - 01:08 pm:       


Jalsa:

My colleague who moved from California is repenting his move. California was much better in terms of therapists and government aid. New Jersey sucks in this aspect. California paid for his kid's all therapists like state medicaid.




kid age enta ? CA lo Speech, OT ,PT ki kooda pay chestaara ? surprising. nenu exactly opposite vinnannu. NJ best ani.

inkoti financial status ni batti medicadi annnaru. not true. maaku insurance coverage ledu for mental healht services. so, medicaid pay chestundi. maaku just bill vastundi. State pay chestundi, for performcare related services.
 

Urumi
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Posted on Saturday, October 28, 2017 - 12:55 pm:       


Anthamidhya:

rely on vitamin n mineral supplements n diet


just like functional med doctors here
 

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Posted on Saturday, October 28, 2017 - 12:53 pm:       


Ishan:


thx. already chadivina books kooda cheppandi.
 

Anthamidhya
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Posted on Saturday, October 28, 2017 - 12:44 pm:       


Ishan:




they don't have a magic bullet as well. but more a mix of DAN doctors here. rely on vitamin n mineral supplements n diet which did wonders to my kid as opposed to pediatricians pointing to a dead end other than therapies. he attacks the problem from all angles without wasting time and more importantly counsels parents straight up. Hyd velli 3-4 docs ni kalisi he is better ani cheppina friends unnaru
yes, US is fast catching up now. even now lot of insurances don't cover autism therapies. mine didn't cover aba until last year since therapies are not proven stuff, and i had one of the best plans.
will read the books you mentioned. read the book neurotribes by Steve silberman regarding autism history, it's a good one
 

Ishan
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Posted on Saturday, October 28, 2017 - 12:17 pm:       


Anthamidhya:

UK is better place for it since they found out Aspergers research 20 yrs ahead of US.


I am not sure which findings you are referring to but its hard for me to believe it as a fact. The reason USA is better is because of multiple reasons: Commitment of the government in passing favorable legislations, free special education, insurance coverage for ABA, OT and ST, availability of training opportunities for the special education teachers, and fairly rapidly growing therapy centers etc. I personally know atleast 3 parents who moved from EU to USA for seeking ASD treatment. Also, ABA was developed in the US. Look at these links.

http://researchautism.net/about-us-research-autism/research- autism-press-office/news-releases-2013/usa-autism-research-s pends

https://link.springer.com/article/10.1007/s40489-014-0045-2


Anthamidhya:

andhuke kayak chakravaethy lantu UK returned psychiatrist is helping better than pediatricians in USA.


How so? what magic treatments does he have up in his sleeves? ..psychiatry relies on medicinal treatment and we all known what medicines are there out there...I wouldnt believe in any UK or US returned doctor in India that claims he or she has a magic bullet for ASD, because there is none.

I just met with a psychiatrist who is working on TMS and TVDC therapies, and he says its promising.

Jalsa and Urimi - Currently I am reading "Ido in autism land" - this guy is exact replica of my son, only in the future. Its a diary written by him - big fan of Soma and RPM. Another book I am reading is "Communicating Partners: 30 Years of Building Responsive Relationships with Late-Talking Children including Autism, Asperger's Syndrome (ASD), Down Syndrome, and Typical Developement" ... solid book...also check wrongplanet forums
"...but it's not who you are underneath, it's what you do that defines you..."
 

Jalsa
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Posted on Saturday, October 28, 2017 - 07:26 am:       


Emc2:

Manam medicaid ki eligible kadukada



Konni states parents financial situation choodaru. California, Pennsylvania etc

NJ lo special type of Medicaid undhi for which they only look at kid's financial situation. Andhukey kids Peru meedha emi undakapovadam better
 

Anthamidhya
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Posted on Friday, October 27, 2017 - 09:28 pm:       


Emc2:




he does Skype consulting. 1000$ alaa untadhi fee for that one
 

Emc2
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Posted on Friday, October 27, 2017 - 08:48 pm:       


Jalsa:




Manam medicaid ki eligible kadukada
 

Jalsa
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Posted on Friday, October 27, 2017 - 08:20 pm:       


Ishan:



Exactly matching with my views.

If you could share what you read/follow, that will help.
 

Jalsa
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Posted on Friday, October 27, 2017 - 08:19 pm:       


Urumi:

EI services too good andi. Best schools compared to other states.
Best therapists, state services for elder kids. , DDD services ani ., respite, family support too good vuntay



My colleague who moved from California is repenting his move. California was much better in terms of therapists and government aid. New Jersey sucks in this aspect. California paid for his kid's all therapists like state medicaid.
 

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Posted on Friday, October 27, 2017 - 08:18 pm:       


Anthamidhya:




phone consultation isthada?
 

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Posted on Friday, October 27, 2017 - 08:05 pm:       


Ishan:




agree with everything except US being the best country for autism treatments. UK is better place for it since they found out Aspergers research 20 yrs ahead of US. andhuke kayak chakravaethy lantu UK returned psychiatrist is helping better than pediatricians in USA.
 

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Posted on Friday, October 27, 2017 - 07:50 pm:       

@ishan, meetu chadivina books share cheyyandi.
 

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Posted on Friday, October 27, 2017 - 07:29 pm:       


Urumi:


doctors ante, best doctors , hospitals in Nj, Ny, CT and boston. But naaku weather nachatla. Too much mold. One of satakoti daridralu
 

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Posted on Friday, October 27, 2017 - 07:26 pm:       


Urumi:




Wow I don't no that , I thought fairfax county is the best anukunna
 

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Posted on Friday, October 27, 2017 - 07:24 pm:       


Emc2:


EI services too good andi. Best schools compared to other states.
Best therapists, state services for elder kids. , DDD services ani ., respite, family support too good vuntay
 

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Posted on Friday, October 27, 2017 - 07:11 pm:       


Urumi:




What is special in treatments in NJ

In terms of what? Doctor pool, therapists resources? What is special?
 

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Posted on Friday, October 27, 2017 - 06:46 pm:       


Rajusk:


maa New Jersey #1 ee matter lo kooda .. 1 in 41


therapy services baaguntau anni ikkdiki vastaaru andi. ante jkaani, NJ lo specific ga em ledu.
 

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Posted on Friday, October 27, 2017 - 03:37 pm:       


Platypus:


1. Statistics choosthe 70's lo 1 in 2000 kids - ippudu 1 in 68 (US) ani undhi. Ee increase ki kaaranam, more awareness aa leka environmental factors like genetically modified food, fast food, pollution etc naa?

Both. Genetics and environmental factors play together to cause ASD. I dont think GMF is a cause.

2. India lo occurrence thakkuvaa? Leka again lack of awareness aa?
Lack of diagnosis. But the incidence is pretty much same as rest of the world.

3. Would it help to be in India with the extended family or be in the west where there is more awareness? (vaallu open to relocating anywhere.)

USA us THE best country for ASD treatment, period.

4. Hyderabad lo best doctor/psychologist to talk to? Recommendations?

I dont know of any doctors, but we met one Ms.Madhavi who runs a behavioral therapy center (not ABA) in jubilee hills. Her son is also severely autistic, she was trained in UK for OT. I admired her for her tenacity and determination. There is also a home care facility in the outskirts of hyderabad, some of my friends met the main guy. I can inquire details if you are interested.

5. Babu 2.8 years ippudu. Already late chesaaru ani dobbulettaaru Rainbow hospital lo.

2.8 is not bad and not too late. But the parents need to move fast now.


6. Finally, extended family (india lo) ni elaa manage cheyyaali? Discrimination kaakundaa? Mee experiences enti?

There will be discrimination, especially in India, purely because of lack of awareness. Educate educate and educate them. Parents need to educate themselves, read lots of books, articles, discussion forums, talk to other parents with ASD kids etc. Knowledge is power.



"...but it's not who you are underneath, it's what you do that defines you..."
 

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Posted on Friday, October 27, 2017 - 12:26 pm:       

ilaantivi vintunte uchxa paduthundi
You do one more Mumbai, you lose Balochistan - NSA Ajit Doval
 

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Posted on Friday, October 27, 2017 - 11:45 am:       


Emc2:

have you done any research on it




ledhu bro...verae thread vesav kadha dhantlo type chesa...but director gadu vachi coffee tagudham padha antae post cheykunda vellipoya...ee gut testing companies chala vasthai future lo it all started after NIH announced gut microbiome project...aa project tho chala kotha vishayalu theluskonaru anta....there is certain type of bacteria callaed akkermensia....adhi vuntae ee rogalu and obestiy ravu anta....they are trying to culture that as probiotic....
 

Emc2
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Posted on Friday, October 27, 2017 - 11:40 am:       


Kaisersooze:




Viome edo device anta GUT inspection ki, have you done any research on it
 

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Posted on Friday, October 27, 2017 - 11:09 am:       


Urumi:




http://www.openbiome.org/

https://www.advancingbio.org/


Urumi:

colostrum donate chese banks emanna idea vunnayya meeku




no idea sis..
 

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Posted on Friday, October 27, 2017 - 11:01 am:       


Kaisersooze:

couple of stool banks are there who screen and ship directly to hospitals...


aa stool banks info share cheyyandi. naaku konni private banks idea vunnay.

inkoti, colostrum donate chese banks emanna idea vunnayya meeku ? naaku telisina konni agencies health check cheyyaru, just substance usage vunda leda check chestaaru.
 

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Posted on Friday, October 27, 2017 - 09:50 am:       


Kaisersooze:

raju gor, urimi



thanks
 

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Posted on Friday, October 27, 2017 - 09:34 am:       

check you gut bacteria and food intolerance through greatplains laboratory....you can order online..and send your stool sample and get it analyzed....based on the results you can change your food habits and add probiotics and prebiotics...if you to check what disease you might prone to then go to 23andme.com and order a test....just saliva test tho they will determine...its owned by one of the goog founder wife...
 

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Posted on Friday, October 27, 2017 - 09:31 am:       


Platypus:


kids living in their own world is a red flag. all toddlers to a little bit of it when they are engrossed in playing, but they need to respond back when called..at least after couple of calls. india lo living in their own world ni calm, trouble free kid anukuntaru....or they may think he/she is very concentrated and take it as a positive trait..they have to respond back when called
Happy Vizag
 

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Posted on Friday, October 27, 2017 - 09:30 am:       


Siloan:

any idea on glutten allergy ? adults ki sudden ga vachhe chaances vunnaya




sudden ga emi vundhi....symptoms sudden ga bayatapadesariki sudden ga vachindhi anukontam....but weather change...food change...tho allergies and intolerance akkuva ayye chance vundhi....india lo vunappaudu ee alleries lekapoyina ikkadaki vachaka vasthai..caz of change in gut bacteria.....
 

Urumi
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Posted on Friday, October 27, 2017 - 09:28 am:       


Platypus:

>>Stop feeding according to time and let him feel hunger and let him ask/reach to parents..or he may just cry, but ask them to try out

Interesting. Chepthaanu. Thanks




hmm..i wouldnt recommend that 100%. most of the times, body awareness vundadu. aakali ani kooda teliyadu veellaki. and pain ki aakali ki difference teliyadu. but behaviorists, feeding clinics say the above. but na expeirence lo adi correct anipinchaledu.
 

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Posted on Friday, October 27, 2017 - 09:26 am:       


Urumi:




I agree with you sister..I mean to say first option for donor is immediate family membs if they are healthy....couple of stool banks are there who screen and ship directly to hospitals...
 

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Posted on Friday, October 27, 2017 - 09:23 am:       


Rajusk:

H-Pylori disorders ki kooda ee mantram edo vadochu emo kada..





C-diff ki vaduthunaru and they have seen amazing results....
 

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Posted on Friday, October 27, 2017 - 09:14 am:       

>>Stop feeding according to time and let him feel hunger and let him ask/reach to parents..or he may just cry, but ask them to try out

Interesting. Chepthaanu. Thanks :-)
 

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Posted on Friday, October 27, 2017 - 09:11 am:       


Platypus:


Stop feeding according to time and let him feel hunger and let him ask/reach to parents..or he may just cry, but ask them to try out
Happy Vizag
 

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Posted on Friday, October 27, 2017 - 09:08 am:       

>>They are definitely serious flags based on what i studied..does he respond to his name?

No. He doesn't.
 

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Posted on Friday, October 27, 2017 - 08:55 am:       


Platypus:


Symptoms I have seen that struck me as odd. I had no clue what Autism was all about.

1. Zero interaction with us. Even with the parents. Forget language, there should be some kind of an acknowledgment when we talk to him. That was not there.
2. Doesn't miss his parents at all. Even in unfamiliar circumstances. It is almost like "OK they are gone. So what?".
3. Does the same thing over and over again.


They are definitely serious flags based on what i studied..does he respond to his name?

i did study lot for awareness..infact whoever has toddlers, keep/raise your awareness and keep observing them all the time until they are in prek
Happy Vizag
 

Emc2
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Posted on Friday, October 27, 2017 - 08:54 am:       

https://www.msn.com/en-us/money/news/viomes-naveen-jain-ais- gut-reaction-to-human-wellness/vi-AAsdtln

AI powered GUT check anta..
 

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Posted on Friday, October 27, 2017 - 08:21 am:       


Emc2:


pillalani kanakpovadam okkate prevention for ASD to avoid


nenedhoo maamulgaa adigaanannai
 

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Posted on Friday, October 27, 2017 - 08:21 am:       

Thanks everyone. Yesterday they went to another doctor and received the following advice.

1. Yes, there seem to be some problems.
2. Stop feeding milk, milk products, maidha based stuff, packed stuff such as biscuits, corn flakes etc for a period of 40 days and then come for a check up.
3. Spend time with the kid and try to talk to him all the time even if he doesn't respond.
4. Don't send to playschool now. (In Hyderabad)
5. Will diagnose after this period and devise the next course of action.

Mav,

Symptoms I have seen that struck me as odd. I had no clue what Autism was all about.

1. Zero interaction with us. Even with the parents. Forget language, there should be some kind of an acknowledgment when we talk to him. That was not there.
2. Doesn't miss his parents at all. Even in unfamiliar circumstances. It is almost like "OK they are gone. So what?".
3. Does the same thing over and over again.

Ippudu retrospective gaa avi symptoms laa anipisthunnaayi.
 

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Posted on Thursday, October 26, 2017 - 06:38 pm:       


Emc2:


genetic tests lo ASD teleedu, prevention emi ledu,

pillalani kanakpovadam okkate prevention for ASD to avoid


+1
 

Urumi
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Posted on Thursday, October 26, 2017 - 06:37 pm:       


Platypus:



Kaisersooze:

mother or father stool thesukoni


not a good idea andi. Mother and father stool specimen. Mostly gut issues vunna kids family history check cheste , either they have a history of cancers or autoimmune issues or tuberculosis etc. Father side vunte, aa flora mother ki pass avutundi. Or mother side vunte obvious ga mother system lo vuntundi. Kid ki ade pass avutundi. Especially autoimmune history vunna vaallu donate cheyyakapote manchidi ani maa nutritionist suggestion. Abx history vunte asale manchidi kaadu. Donate chesinaa , complete stool analysis cheyinchukuni digite better. Colostrum is a good option annaaru with high bifido levels. But telisina vaallu dorakaali. FMT ki manchi health history vunna vaallu dorikite best
 

Emc2
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Posted on Thursday, October 26, 2017 - 06:36 pm:       

https://www.ted.com/talks/wendy_chung_autism_what_we_know_an d_what_we_don_t_know_yet#t-89105

good one,watch it
 

Jalsa
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Posted on Thursday, October 26, 2017 - 06:23 pm:       

https://youtu.be/faZUV6HBlq8

They talked about four of the 72 regulations that were rescinded. Watch from 8 minutes for regulation related to school kids.
 

Emc2
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Posted on Thursday, October 26, 2017 - 04:43 pm:       


Brodipet_baadshah:




genetic tests lo ASD teleedu, prevention emi ledu,

pillalani kanakpovadam okkate prevention for ASD to avoid
 

Urumi
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Posted on Thursday, October 26, 2017 - 04:36 pm:       


Siloan:

any idea on glutten allergy ? adults ki sudden ga vachhe chaances vunnaya


yes
 

Rajusk
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Posted on Thursday, October 26, 2017 - 04:36 pm:       


Siloan:

please share raju goru




to start off ante..avoid products with Wheat..ante Roti/Naan gatra..

if you really want to make Rotis..use Spelt flour..to make them at home..

snacks chaala untai..Gluten free section lo ..any Grocery store lo..even Costco sells lot of Gluten free snacks..

Rice happy gaa thinochu..so no worries there..

mana Telugu janalaki pedda impact undadu Gluten intolerance..unless you have Roti as staple diet everyday
 

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Posted on Thursday, October 26, 2017 - 04:25 pm:       


Jalsa:

Do you know anyone in the spectrum? idhi varlo ilaa active undevadivi kaadhu ee threads lo andhuke aduguthunna.


no just toddlers unte monitor chestoo undatam better kada..knowledge/awareness kosam
Happy Vizag
 

Jalsa
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Posted on Thursday, October 26, 2017 - 04:14 pm:       


Maverick:



Do you know anyone in the spectrum? idhi varlo ilaa active undevadivi kaadhu ee threads lo andhuke aduguthunna.
 

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Posted on Thursday, October 26, 2017 - 03:57 pm:       


Rajusk:

not the end of the warald though..chaala options unnai



please share raju goru
 

Mental_sachinodu
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Posted on Thursday, October 26, 2017 - 03:25 pm:       


Siloan:

any idea on glutten allergy ? adults ki sudden ga vachhe chaances vunnaya




adults can get gluten allergy or intolerance at a later point.. i think late 40s higher chance.
 

Rajusk
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Posted on Thursday, October 26, 2017 - 03:24 pm:       


Siloan:

any idea on glutten allergy ?




btw.. it will not be allergy..it will be intolerance..

Lactose and Gluten intolerance..mana "youth" lo common avuthunnadi ee middle lo
 

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Posted on Thursday, October 26, 2017 - 03:23 pm:       


Siloan:

any idea on gluten allergy, adults ki sudden ga vachhe chaances vunnaya




bindaas gaa vasthai...vindians migrated to vomericans lo chaala common idi rao garu..

not the end of the warald though..chaala options unnai
 

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Posted on Thursday, October 26, 2017 - 03:23 pm:       


Maverick:

its not a disease


im sorry...i mean disorder
 

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Posted on Thursday, October 26, 2017 - 03:21 pm:       


Brodipet_baadshah:

ee disease ela avoid cheyaali?


its not a disease
Happy Vizag
 

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Posted on Thursday, October 26, 2017 - 03:19 pm:       


Siloan:

6 weeks appudu edho genetic/dna test chestharu anta...most insurances wont cover...dont know in detail


Panaroma scan gurinchenaa meeru cheppedhi?maa doctor cheppindhi if u want we can do it in next vist ani(10weeks)...aa testloo no prblm ani thelithe inka no worrieskadha?puttaka emaina xtra jagratthalu theeskovala?
 

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Posted on Thursday, October 26, 2017 - 03:19 pm:       


Mental_sachinodu:



any idea on glutten allergy ? adults ki sudden ga vachhe chaances vunnaya
 

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Posted on Thursday, October 26, 2017 - 03:16 pm:       


Brodipet_baadshah:



6 weeks appudu edho genetic/dna test chestharu anta...most insurances wont cover...dont know in detail
 

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Posted on Thursday, October 26, 2017 - 03:16 pm:       


Kaisersooze:

your gut bacteria changes when you move from place to place and when you change your food habits...healthy folks vs others chusthae....folks with autoimmune disorders or growth disorders lack certain strains of bacteria..




H-Pylori disorders ki kooda ee mantram edo vadochu emo kada..
 

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Posted on Thursday, October 26, 2017 - 03:15 pm:       

ee disease ela avoid cheyaali?ippudu pregnantgaa vunna women emaina jaagrathalu theeskovala or babyki certain age vachakanenaa?
 

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Posted on Thursday, October 26, 2017 - 03:13 pm:       


Mental_sachinodu:



done..sarang helped and rest kastte fhali
 

Mental_sachinodu
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Posted on Thursday, October 26, 2017 - 03:12 pm:       


Siloan:




vunkl.. what happend to that stat's quiz... ball park dhooram ayina correct results ampaana?
 

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Posted on Thursday, October 26, 2017 - 03:11 pm:       


Siloan:


gut factors daggare anni researchs point out chestunnayi....including one kaiser posted ...




yes, somehow US based physicians are not showing much interest into this. I feel that it has substantial evidence to be considered one of the reasons atleast in some cases.
 

Siloan
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Posted on Thursday, October 26, 2017 - 03:09 pm:       


Mental_sachinodu:



gut factors daggare anni researchs point out chestunnayi....including one kaiser posted ...
 

Mental_sachinodu
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Posted on Thursday, October 26, 2017 - 03:06 pm:       

increased awareness...

ASD spectrum is too large, and a good percentage lead average lives, and some live eccentric lives.

Most Asperger's kids grow up to be self sufficient in terms handling their needs, which is not true with everyone on the spectrum.

yeah, definetly turns one's life upside down... but then life goes on :-)
 

Jalsa
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Posted on Thursday, October 26, 2017 - 02:57 pm:       

Mana daggara "pichhi" antaaru due to lack of awareness. Now I can relate to what I used to see when I was in India.
 

Scorpio
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Posted on Thursday, October 26, 2017 - 12:07 pm:       

Platy,

what kind of symptoms, how did they diagnose? having seen that kid in close, what did you notice?
You do one more Mumbai, you lose Balochistan - NSA Ajit Doval
 

Rajusk
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Posted on Thursday, October 26, 2017 - 11:50 am:       


Jalsa:

4. Can't recollect the names I have researched. Bangalore/Pune lo decent ani chadivanu.




nenu research chesinappudu kooda akkade max kanapaddayi..but that was 10 years back though..

Hyderabad lo okati undedi appatlo ..Sweekar/Upkar ani..vallaki spectrum concept anedi either teliyadu or ledu..they put everyone in two buckets ..

latest gaa Hyderabad lo emi unnayo no avidea
 

Maverick
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Posted on Thursday, October 26, 2017 - 11:48 am:       

Platy,

what kind of symptoms, how did they diagnose? having seen that kid in close, what did you notice?
Happy Vizag
 

Jalsa
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Posted on Thursday, October 26, 2017 - 11:46 am:       

Annai, AFAIK there's no one reason for this. What I think is could be genetic+environmental.

1. Awareness, environmental factors
2. Nope. Lot of kids are now being diagnosed. I was researching for facilities in India via lot of forums and found quite a few parents looking for help.
3. India lo AFAIK no proper treatment options. I mean, whole India lo hanful of BCBA supervisors unnaaru. And they supervise their centers in multiple cities. From a medical perspective, West better. Family help + social life antey desam emo mari.
4. Can't recollect the names I have researched. Bangalore/Pune lo decent ani chadivanu.
6. I don't know how to manage, but what i saw within my family when I visited desam was relatives were willing to help. Neighbor's kids were playing with my kid even though my kid was not responding properly. May not be the case everywhere.
 

Emc2
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Posted on Thursday, October 26, 2017 - 11:42 am:       

India lo lack of awareness,

US lo kuda 5 years nunchi baaga awareness vasthundi

Lot of research needs to be done, no cure
 

Anthamidhya
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Posted on Thursday, October 26, 2017 - 11:42 am:       

watch this video
https://www.ted.com/talks/steve_silberman_the_forgotten_hist ory_of_autism/up-next
I read his comprehensive book ok autism.
autism has always been there. Autistics have changed the world.

yeah, kalyan chakravaethy is good. key is for parents to accept the situation asap and do the needful. it's a lot to take, fe3ks like your world has become upside down. 2yrs later I don't feel so, Iwe are enjoying the process and challenge of raising an awesome kid.
 

Emc2
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Posted on Thursday, October 26, 2017 - 11:39 am:       

Mitochondrial mutation

Same like a cancer altering the cells

You cannot compare 7 generations concept

Stress pollution and other factors leads to ASD

Correct reason evaru cheppaleru

Early intervention is the only solution
 

Platypus
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Posted on Thursday, October 26, 2017 - 11:23 am:       

>>maa New Jersey #1 ee matter lo kooda .. 1 in 41


Kaaranam emitantaaru??
 

Kaisersooze
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Posted on Thursday, October 26, 2017 - 11:05 am:       


Platypus:




annai, ask them to try this....

http://www.chicagotribune.com/lifestyles/health/sc-fecal-tra nsplant-autism-health-0208-20170130-story.html

easy procedure...mother or father stool thesukoni colon lo nundi stool pass chestharu....its new therapy inka FDA regulate cheyaledhu...cheyaadu kuda...the science is gut microbiome plays an important role in our immune system....and all the bacteria babies get is from mother....your gut bacteria changes when you move from place to place and when you change your food habits...healthy folks vs others chusthae....folks with autoimmune disorders or growth disorders lack certain strains of bacteria....ee process tho they will induce good bacteria into to patient and let it grow....its still nascent but worth trying no side effects...emina vunna..oke 1 week AB vadithae motham flush avuthadhi....
 

Rajusk
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Posted on Thursday, October 26, 2017 - 10:46 am:       


Platypus:

ippudu 1 in 68 (US) ani undhi. Ee increase ki kaaranam, more awareness aa leka environmental factors like genetically modified food, fast food, pollution etc naa?




maa New Jersey #1 ee matter lo kooda .. 1 in 41

https://www.autismnj.org/prevalence-rates
 

Platypus
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Posted on Thursday, October 26, 2017 - 10:44 am:       

Kalyan Chakravarthy coordinates please
 

Vizagnumberone
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Posted on Thursday, October 26, 2017 - 10:40 am:       

Hyd lo ayyithe Kalyan chakravathy best e db lo maku anthamidya anna suggest chesaru us ayyithe the worst doctors varaku based on personal exp
Fan of chiru(movies)and pavan
 

Platypus
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Posted on Thursday, October 26, 2017 - 10:31 am:       

Intha varaku family lo evvariki ee situation raaledhu. Kaanee ippudu oka close relative vaalla kodukki preliminary diagnosis lo high chance of this ani cheppaaru. They are completely shattered. We all are.

Atu yedu tharaalu, itu yedu tharaalu - ekkadaa evariki ee issue ledhu. Elaa vacchindhi? Is it genetic or environmental factors? Naaku asalu idea ledhu. Asalu, evariki idea ledhu family lo. Prasthuthaaniki going through the motion of detecting what it is and whether it is high function/low function etc. Also getting a second/third opinion as well.

Konni questions - because DB lo kontha mandhi parents unnaaru kaabatti ee issue gurinchi telisina vaallu...

1. Statistics choosthe 70's lo 1 in 2000 kids - ippudu 1 in 68 (US) ani undhi. Ee increase ki kaaranam, more awareness aa leka environmental factors like genetically modified food, fast food, pollution etc naa?
2. India lo occurrence thakkuvaa? Leka again lack of awareness aa?
3. Would it help to be in India with the extended family or be in the west where there is more awareness? (vaallu open to relocating anywhere.)
4. Hyderabad lo best doctor/psychologist to talk to? Recommendations?
5. Babu 2.8 years ippudu. Already late chesaaru ani dobbulettaaru Rainbow hospital lo.
6. Finally, extended family (india lo) ni elaa manage cheyyaali? Discrimination kaakundaa? Mee experiences enti?

Last one week gaa complete gaa numb ayipoyindi naake mind. Can't imagine what parents go through in this case. :-(

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