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Calling Urumi

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Archive through August 17, 2015Nanigadu200  08-19-15  04:01 pmJalsa
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Urumi
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Posted on Saturday, August 22, 2015 - 01:00 pm:       


Mental_sachinodu:


Congrats :-) . also, Happy to know that the kid is making progress.
 

Urumi
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Posted on Saturday, August 22, 2015 - 12:58 pm:       


Asdf:

monkeyjoes


i used to. ippudu NJ lo chaala dooram. Now, i take him to Imagine that and Funtime Junction. His fav. places.
 

Asdf
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Posted on Saturday, August 22, 2015 - 11:53 am:       

jalsa, ishan and urumi
did you take your kid to monkeyjoes or any equivalent ? 2nd time charm, my kid loved it.

skipping trampoline for now. ordered the swing
 

Urumi
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Posted on Friday, August 21, 2015 - 07:38 pm:       


Ishan:


Veg juice ante em istaaru ?
 

Cinejeevi
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Posted on Friday, August 21, 2015 - 03:19 pm:       


Mental_sachinodu:




nice to know about your son and all the best for the in coming "lakshmi" :-):-)
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

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Posted on Friday, August 21, 2015 - 03:19 pm:       


Mental_sachinodu:

in the new school - his teachers are saying they are hardly noticing any difference between other kids and him when it comes to activities except communication among themselves. they say he is the happiest of his batch always smiling.




glad to hear that annay :-)
 

Mental_sachinodu
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Posted on Friday, August 21, 2015 - 03:17 pm:       


Cinejeevi:

Since parents are supporting the special kids like anything, how about their siblings if they have one/two?? Are they supportive?? If no siblings yet, r u planning to have one so that he/she will take care when u r tired?? I am just asking from emotional support point of view only...




In our case, we decided that we will have another one .

We are expecting a girl now - hoping that she would be a normal one. We took the decision when our son was still showing some disturbing signs. Fortunately in the last three months my son has improved quite a bit. From no speech to using small phrases. His interaction with others also changed. Until last four months or so he would rarely respond to his name or any sound if its not music. Now he responds to his name most times by looking in the direction of call. Said "amma" and "daddy" for the first time in the last month.

Does not seem to be interested when other kids around, but he started remembering other kids names when they are not around.

in the new school - his teachers are saying they are hardly noticing any difference between other kids and him when it comes to activities except communication among themselves. they say he is the happiest of his batch always smiling.
 

Ishan
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Posted on Friday, August 21, 2015 - 02:27 pm:       


Urumi:

little tikes bigger one, maa vaadiki ee madhya idi aanatam ledu. winter lo em chestaado ento.


thanks.No idea about the muscle tone and sensory issues, will read later.

@jalsa, have a safe and fun trip.
Don't text and drive !
 

Jalsa
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Posted on Friday, August 21, 2015 - 12:18 pm:       


Urumi:

@jalsa, family anta veltunnara ? have a safe trip andi. enjoy.



no, me and elder one.

Ishan, I bought little tikes 36" trampoline. Worked like wonders for her. She loves slide and swing at the park.
 

Asdf
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Posted on Friday, August 21, 2015 - 11:36 am:       


Urumi:




grass lo without shoes encourage cheste better ? spotting a snake is not big deal here, and too many bugs. have to try without shoes aithe
 

Asdf
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Posted on Friday, August 21, 2015 - 11:34 am:       


Ishan:

Intlo slide setup chesara?




nope. community child area lo vundedi or parks.


Ishan:

.maa vodu pettanide thinadu




same here. and he will stay hungry if we do not force feed. this is turning out the biggest concern now.


Urumi:

he has a big slide,trampoline,crash pad(made it with my preganancy pillow), rice bin, ball pit, basket ball hoop,abcd mat for sensory,tunnel,therapy ball arrange chessamu. throught the day, edo oka time lo kaasepu aadistune vuntaam. winter lo atleast 1-2 hrs..summer lo park.shoes teesesi nadipista park lo and grass meeda. goda la meeda edge lo nadipista.inkaa chaala hand made sensory stuff




wow, that is some setup. will start with swing and trampoline.
also, weather hot vunna kooda care seyakunda vundatam part of the problem?
usually does not drink water unless offered. sometimes he asks and drinks a lot, when is terribly thirsty.


Jalsa:



have a safe trip
 

Urumi
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Posted on Friday, August 21, 2015 - 11:03 am:       


Urumi:

below 2 vunnappudu, ippudu full aadtadu park lo


below 2 vunnappudu aadevadu kaadu.

mee kids toys to ela aadataru ?

@ishan, recent ga low muscle tone ki , sensory issues ki link vundani chadivaanu. further ga ekkuva research cheyyaledu. mee input koncham ivvanid.
 

Cinejeevi
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Posted on Friday, August 21, 2015 - 11:00 am:       


Jalsa:

Ok guys, I have to wrap up now and get ready for vacation.




Enjoy and all the best for your stamping :-)
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

Urumi
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Posted on Friday, August 21, 2015 - 11:00 am:       


Ishan:

if yes, edi teeskunnaru?


little tikes bigger one, maa vaadiki ee madhya idi aanatam ledu. winter lo em chestaado ento.

@jalsa, family anta veltunnara ? have a safe trip andi. enjoy.
 

Urumi
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Posted on Friday, August 21, 2015 - 10:57 am:       


Asdf:

, slide try chesaara? maa vadiki first lo bhayam. now he likes it.


same here an year go.sensory system organize chesukoleka problem adi.park ki teesukelte bayataki nadichesi parking lot lo car number plate lato aadevadu appudu.

tarwata maa basement lo mini gym/ot studio set up chessam andi. he has a big slide,trampoline,crash pad(made it with my preganancy pillow), rice bin, ball pit, basket ball hoop,abcd mat for sensory,tunnel,therapy ball arrange chessamu. throught the day, edo oka time lo kaasepu aadistune vuntaam. winter lo atleast 1-2 hrs..summer lo park.shoes teesesi nadipista park lo and grass meeda. goda la meeda edge lo nadipista.inkaa chaala hand made sensory stuff

last 1 yr lo sensory wise too much progress vundi. below 2 vunnappudu, ippudu full aadtadu park lo. may be like a 5,6 yr old kid :-)
 

Jalsa
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Posted on Friday, August 21, 2015 - 10:23 am:       

Ok guys, I have to wrap up now and get ready for vacation.
 

Jalsa
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Posted on Friday, August 21, 2015 - 10:22 am:       


Ishan:

@jalsa, Does your daughter eat by herself? independent feeding encourage chesthara? or meere pedathara...maa vodu pettanide thinadu...maa therapist lolli chesthundi ikkada



Memey peduthunnamu, but also teaching her to eat by herself. She can do it clumsilly with prompting.
 

Ishan
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Posted on Friday, August 21, 2015 - 10:19 am:       


Asdf:



also, slide try chesaara?


Intlo slide setup chesara? if yes, edi teeskunnaru? maa vodu really likes slides...parklo he really enjoys even the bigger ones.

@jalsa, Does your daughter eat by herself? independent feeding encourage chesthara? or meere pedathara...maa vodu pettanide thinadu...maa therapist lolli chesthundi ikkada
Don't text and drive !
 

Urumi
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Posted on Friday, August 21, 2015 - 09:32 am:       


Cinejeevi:

ee desam lo ilanti special kids ni koncham caring gaa choostaru annadi apohanaa??




andaru vundaru lendi. chaala mandi interest to ee field lo vuntaaru chaala takkuva percent vuntaaru anukunta.
 

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Posted on Friday, August 21, 2015 - 08:42 am:       


Urumi:

Mee daggarlo best feeding clinic lo appt teesukondi. Akkade ot, st, GI, nutritionist, Behavior therapist, allergist andaru vuntaaru. Oka team set cheyyandi. I




thank you sis.

also, slide try chesaara? maa vadiki first lo bhayam. now he likes it.

bore kottakunda edo oka activity vallu interesting ga feel ayyedi cheste chaala or there are some DONTs?
 

Jalsa
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Posted on Friday, August 21, 2015 - 08:05 am:       


Urumi:

hool team vaallu racial descrimination choopistunnaru aani. place ayye varaku careful ga vundatame better antundi. Admin side, ee race kid ni ee school lo place cheyyaali anni kooda alochistaaranta kontamandi.

schools lo ella vuntaarandi ? especially ee madhya konni schools reviews chadiva. godakesi nokkindanta oka aid kid ni. teacher reviews lo pettindi resign chessaka.



to a certain extent untundhi anukunta discrimination.
teachers are usually good. papa padindhi oka saari cheppakapothey pedhha godava chesaamu...teacher/principal talked to us to calm us down.
 

Cinejeevi
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Posted on Friday, August 21, 2015 - 07:58 am:       


Urumi:




ee desam lo ilanti special kids ni koncham caring gaa choostaru annadi apohanaa??
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

Urumi
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Posted on Friday, August 21, 2015 - 07:53 am:       


Jalsa:


ninna naa social worker cheptundi.. school team vaallu racial descrimination choopistunnaru aani. place ayye varaku careful ga vundatame better antundi. Admin side, ee race kid ni ee school lo place cheyyaali anni kooda alochistaaranta kontamandi.

schools lo ella vuntaarandi ? especially ee madhya konni schools reviews chadiva. godakesi nokkindanta oka aid kid ni. teacher reviews lo pettindi resign chessaka.

usual ga teachers elaa vuntrru ?
 

Jalsa
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Posted on Friday, August 21, 2015 - 07:37 am:       

manchi info unna theddu
 

Urumi
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Posted on Thursday, August 20, 2015 - 10:27 pm:       


Asdf:


Mee daggarlo best feeding clinic lo appt teesukondi. Akkade ot, st, GI, nutritionist, Behavior therapist, allergist andaru vuntaaru. Oka team set cheyyandi. Indian food or american food doesn't matter. Mee concerns anni cheppandi. They will help u.
 

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Posted on Thursday, August 20, 2015 - 10:03 pm:       


Urumi:




hmm, he treats that few items like white list and rejects everything else at the sight of it. okapudu annam lo onion or kotthimeera vaste spit chese vadu, its getting worse.

am getting concerned as this will lead to deficiencies. nutritionist ki ivanni telustaaya or vere specialist vuntaara?
 

Urumi
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Posted on Thursday, August 20, 2015 - 10:00 pm:       

Meeru cheppindi chooste sensory issue la ledu, behavioral issue anipistundi. I may be wrong. Konni saarlu stomach issues vunna , tinaru. Or hidden allergies vunna, vaalaki artham ayyi reject chestaaru. Further ga investigate cheyyandi.
 

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Posted on Thursday, August 20, 2015 - 09:53 pm:       


Urumi:

Nutritionist ni kalavandi. Vitamins emanna suggeet chestaaru.

Mee vadi food habits, tine vidhaanam, textures kaasta detailed ga cheppandi. Gaddi lo nadustaada ? Jello laanti stuff touch chestaada ?Notlo food kaaka emanna pedstaada?




India trip mundu he used to eat oats and lot of other stuff. ipudu 3-4 items tintunnadu :-( . nutritionist appt tiskovali.

he eats curd rice, rasam rice, bread ,chapati and dosa only. dosa/bread should be plain. Jello ante tinedaa? we did not try

walking in grass etc no issues. and apudapud notlo edi padithe adi pettukuntadu. but again, when he does that he teases us, and spits it.
 

Urumi
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Posted on Thursday, August 20, 2015 - 09:49 pm:       


Asdf:


Nutritionist ni kalavandi. Vitamins emanna suggeet chestaaru.

Mee vadi food habits, tine vidhaanam, textures kaasta detailed ga cheppandi. Gaddi lo nadustaada ? Jello laanti stuff touch chestaada ?Notlo food kaaka emanna pedstaada?
 

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Posted on Thursday, August 20, 2015 - 09:45 pm:       


Whyme:




asalu ee thalassemia gurinchi vinte ne bhayam esindi. ppl should start marrying as far as possible anipinchindi to minimize stuff like this
 

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Posted on Thursday, August 20, 2015 - 09:44 pm:       


Urumi:

both r very good. Meeku patience vunte second Di meere cheseyyachu. Joann's nunchi fabric techi. Amazon lo expensive vundi. Little tykes chair swing vundi, adi kooda choodandi okasaari. Ikea lo hammock.




thanks for the info. michaels lo we got few stuff, few days tarvata enthu poyindi.

food ki meeru cheppina sensory chewing di help aindaa?
 

Rgb
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Posted on Thursday, August 20, 2015 - 09:43 pm:       

Japan lo drug aprove cheyyalante drug has to be studied on people of Japanese race. Andhuke aa studies ekkuva. Other countries dont have this rule. So oka chota study chesthe chaalu. Ii madhya pharma companies are exploiting poor indian people and also taking advantage of lax standards in documenting studies including forging the results
 

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Posted on Thursday, August 20, 2015 - 09:40 pm:       


Asdf:

kid ki thalassemia minor ani seppaaru blood test cheste. doc said clearly its not what you think ani. driving ela chesano kooda ardham kaaledu.




Naaku beta thalassemia minor vundi.. USA ki vachinakothlo edo blood test lo doc cheppadu. Make sure you check your wife's as well ani.. If both there is a chance kid might have it..
My wife does not have that trait.. Our kids do not.. There is a chance their future gen will have that trait surface again
 

Urumi
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Posted on Thursday, August 20, 2015 - 09:39 pm:       


Asdf:


both r very good. Meeku patience vunte second Di meere cheseyyachu. Joann's nunchi fabric techi. Amazon lo expensive vundi. Little tykes chair swing vundi, adi kooda choodandi okasaari. Ikea lo hammock.
 

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Posted on Thursday, August 20, 2015 - 09:20 pm:       


Urumi:




sis
cahala information vundi akkada, thank you.

now am getting few doubts. picky eater ga vundatam valla, they do not get lot of vitamins and minerals. it also might be contributing to their developmental delay?
 

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Posted on Thursday, August 20, 2015 - 09:15 pm:       


Urumi:




thank you sis, chaduvtaanu.

idi kooda konali ani planning

http://www.amazon.com/gp/product/B00A32F73A?psc=1&redirect=t rue&ref_=ox_sc_act_title_4&smid=ATVPDKIKX0DER

inko option

http://www.amazon.com/gp/product/B00V1C660Y?psc=1&redirect=t rue&ref_=ox_sc_act_title_5&smid=A39Q8WZ70ZVX22
 

Urumi
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Posted on Thursday, August 20, 2015 - 08:52 pm:       


Asdf:


meeru ninna adigina swing related qn ki answer koncham ee two links lo dorukutundi. correct links inka search chesi istaanu. simple ga explain cheyyatam chaala kashtam adi.

http://www.sensory-processing-disorder.com/
https://en.wikipedia.org/wiki/Sensory_processing_disorder

vestibular input related stuff chadaavandi veetillo. koncham artham avutundi.
 

Urumi
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Posted on Thursday, August 20, 2015 - 08:49 pm:       


Anand_n:


autism has always been part of the human experience, It’s only recently,that we have become properly aware of it.

>> I agree with him 100%
 

Anand_n
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Posted on Thursday, August 20, 2015 - 08:33 pm:       

A good read for all parents in this thread ..

http://www.wired.com/2015/08/neurotribes-with-steve-silberma n/?mbid=social_fb

The foolish man seeks happiness in the distance; the wise grows it under his feet : James Oppenheim
 

Urumi
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Posted on Thursday, August 20, 2015 - 07:57 pm:       

Urine Test andi
 

Urumi
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Posted on Thursday, August 20, 2015 - 07:49 pm:       

First di baavundandi. Indaaka anni pics choodaledu. Ball pit laaga kooda use cheyyachu
 

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Posted on Thursday, August 20, 2015 - 07:40 pm:       


Urumi:

pyroluria




net lo symptoms choostunnanu. blood test tho diagnose avutunda?
 

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Posted on Thursday, August 20, 2015 - 07:39 pm:       


Urumi:

Purpose enti ? Ball pit ga use cheddamana ?




trampoline laga jumping ki. i meant this in the 2nd url

http://www.amazon.com/gp/product/B0064G8LLE?
 

Urumi
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Posted on Thursday, August 20, 2015 - 07:29 pm:       


Asdf:


Purpose enti ? Ball pit ga use cheddamana ?
Ivi patches istene teesukondi. Lekapote fast ga potay. Ekkadochota holes vuntay. Memu okati padeyyalci vachindi ball pit. Andukani ee saari, summer pools vuntay kada adi teesukoni, bslls nimpa Daanlo.
Trampoline seperate ga teesukunnam. Jumping ki aithe fast ga potay ivi rendu
 

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Posted on Thursday, August 20, 2015 - 07:01 pm:       

http://www.amazon.com/gp/product/B0064G8LLE?psc=1&redirect=t rue&ref_=ox_sc_act_title_3&smid=ATVPDKIKX0DER

http://www.amazon.com/gp/product/B00004NKJ0?psc=1&redirect=t rue&ref_=ox_sc_act_title_1&smid=ATVPDKIKX0DER

edi better?
 

Urumi
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Posted on Thursday, August 20, 2015 - 05:23 pm:       


Rajusk:


http://www.autism-products.com/Sensory_Pea_Pod_p/1325197.htm
 

Rajusk
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Posted on Thursday, August 20, 2015 - 05:18 pm:       


Urumi:

memu monna peapod konnaam




Ante enti?
 

Urumi
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Posted on Thursday, August 20, 2015 - 05:10 pm:       


Ishan:


swing fix cheyyataniki pedda holes aannaaru. akkarledu. memu chinna chinna holes 8 petti , 2 hooks petti fix chessamu. 3 types of swings swings use chestaam ade hooks to. idea kaavalante cheppandi. time vunnappudu pic teesi pedata.

memu monna peapod konnaam. baaga enjoy chestunnadu.
 

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Posted on Thursday, August 20, 2015 - 03:48 pm:       

naaku konni families telusu vallaki ASD unna kids unnaru.. reason close relatives lo/tho marriages chesukovatam..

anyway.. okkariki tappa andariki 2 kids unnaru.. 2nd kid ki raledu ee issue..
okariki 2nd kid ki vochindi ee issue..

okariki 3 kids.. first kid ki issue.. 2nd and 3rd ki emi issues levu..

just fyi..
 

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Posted on Thursday, August 20, 2015 - 03:34 pm:       


Ishan:

On the other hand, its important not to give up hope. There are many cases where highly non-verbal, low-functional autistic kids also gained full functionality and leading independent lives. With better therapies to come in future years, the recovery rates might improve dramatically. Do your best, believe in god...anthakanna manam chesedi emi ledu.




I totally agree andi.maa vaadu last few months lo chaala progress choopistunnadu.
Thanks to homeopathy. language improve aithe chaalu.ika pai vaadi daya.


Ishan:

But wifey says no lets focus all the energies on one.




2 weeks kritam varaku nenu ilaage anukunna. kaani okkate anipistundi. whether they can make progress or not anedi pakkana pedite, they need somebody to talk to or share their happiness ..naaku pilladito ee koncham baagokapoyina,intlo husband ki cheppukunta. ledante first thing maa amma ki call chesta. maa amma tarwata, naaku inka family vundi. i can always call them and get support from them. veellaki mana tarwata evaro okallu vundaali family members anevvalu.

he is diagnosed with pyroluria.adi purely genetic issue.50% autistic kids ki vuntundi anta. so, second kid ki vache chances ekkuva. em raasi vundo devudiki vadilesa :-)
 

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Posted on Thursday, August 20, 2015 - 02:00 pm:       

naa parichayasthullo okari first kid (girl) is special. Second kid (boy) is normal and age gap is about 3 years or so. when it is a chance it could be either way.

I asked that question only out of concern but not out of curiosity!!!

with parents aging (which is obvious) it is their duty/dharma to make sure their kids are safe after them anna context lo (even in general where the kids are not special but normal) adigaa.
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

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Posted on Thursday, August 20, 2015 - 01:38 pm:       


Ishan:

If you both are carriers, then there will be a 25% risk of hacing a thalassemia major baby. I suggest speak to an expert before making the decision.




yep, i realized that. testing inka cheyainchaledu. that is one of the reason, main reason aithe ASD
 

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Posted on Thursday, August 20, 2015 - 01:35 pm:       


Urumi:

memu poyinaaka evaru choostaaru vaadni ani


This question popped up in my mind right at the moment when the doctor diagnosed ASD. I want to have second one not only just for this reason but also as parents we deserve to have a normal kid. But wifey says no lets focus all the energies on one...choodali em avuthundo...i havent ruled out adoption either...you know there is 10% increased chance of 2nd baby having autism if your first kid is autistic.

On the other hand, its important not to give up hope. There are many cases where highly non-verbal, low-functional autistic kids also gained full functionality and leading independent lives. With better therapies to come in future years, the recovery rates might improve dramatically. Do your best, believe in god...anthakanna manam chesedi emi ledu.

Asdf:

thalassemia minor


Its mostly asymptomatic. But dont decide not to have 2nd one because of this. I suggest you speak to a genetic counselor. Both you and your wife should get tested to see if either or both are carriers. If you both are carriers, then there will be a 25% risk of hacing a thalassemia major baby. I suggest speak to an expert before making the decision.
Don't text and drive !
 

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Posted on Thursday, August 20, 2015 - 12:49 pm:       


Urumi:

Kid age enta. Andi ? Severe case aa.




i did not get. may be u want to quote someone else?
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

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Posted on Thursday, August 20, 2015 - 11:56 am:       


Cinejeevi:


Kid age enta. Andi ? Severe case aa.

With the help that we have now, i am very positive, that we all can teach basic life skills to our kids . Ear ly intervention is always good antaaru mari.
 

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Posted on Thursday, August 20, 2015 - 11:23 am:       


Cinejeevi:

aa sound vini ento anukunna.




naa situation , i was driving when doc told me. he said clearly, if you google that term, your head will explode ani.

desis have lot of genetic issues. in this case, he got that gene from either of us. if he got it from both, it would be disaster.
 

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Posted on Thursday, August 20, 2015 - 11:20 am:       


Urumi:

naakaithe vaadi age kid / chinnodni adopt chesukovaalani vundi atleast after couple of years. but i guess naa idea evaru support cheyyaremo



We thought a lot about it and decided against it as it would not be fair to that kid as we have to spend lots of time with the other two.
 

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Posted on Thursday, August 20, 2015 - 11:20 am:       


Asdf:

its iron deficiency . just name same anthe

or else i would not have been alive by now..




good to know. aa sound vini ento anukunna. dictionary lo kooda koncham ekkuva chesi chooinchaadu.

anta pedda maatalu enduku.. everything will be alright :-):-)
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

Jai_ycp
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Posted on Thursday, August 20, 2015 - 11:16 am:       

Its a tough choice. okavela inko kid vunna he might feel less cared for as your energy will be spent on the one that needs attention. My 2 cents.
the story of YCP and TDP in 2014 (AP)- http://goo.gl/zgrYmQ
http://goo.gl/gn6XL5
the story of TDP in 2014 (T) - http://goo.gl/nyu1Wu
 

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Posted on Thursday, August 20, 2015 - 11:14 am:       


Cinejeevi:




its iron deficiency . just name same anthe :-)

or else i would not have been alive by now...
 

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Posted on Thursday, August 20, 2015 - 11:12 am:       


Asdf:

thalassemia




:-(:-(
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

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Posted on Thursday, August 20, 2015 - 10:51 am:       


Urumi:



Jalsa:




:-(

kid ki thalassemia minor ani seppaaru blood test cheste. doc said clearly its not what you think ani. driving ela chesano kooda ardham kaaledu.

parents lo some condition vunte minor kakunda major vache chances vunani ani telsindi. did not wanna plan anything after that
 

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Posted on Thursday, August 20, 2015 - 10:34 am:       


Jalsa:

Hope he'll be okay.


he is ok now andi. severe stomach infection vachindi. ippudu fine.
 

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Posted on Thursday, August 20, 2015 - 09:58 am:       


Jalsa:

We decided against any more kids.


naakaithe vaadi age kid / chinnodni adopt chesukovaalani vundi atleast after couple of years. but i guess naa idea evaru support cheyyaremo
 

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Posted on Thursday, August 20, 2015 - 09:55 am:       


Urumi:

maa vaadi health assalu baaledu. appati nunchi mind lo ide tirgutundi. memu poyinaaka evaru choostaaru vaadni ani :-) last two days lo ee qn raayataniki kooda dhairyam chhaledu.



Sorry to hear. Hope he'll be okay.

This thought is ALWAYS on our mind. both kids ki issues kadhaa, so anything we do, even this India trip, we always think about what would happen ani.
 

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Posted on Thursday, August 20, 2015 - 09:55 am:       


Urumi:

ide qn nenu adugudam other parents ni anukunna. last 2 weeks lo , maa vaadi health assalu baaledu. appati nunchi mind lo ide tirgutundi. memu poyinaaka evaru choostaaru vaadni ani last two days lo ee qn raayataniki kooda dhairyam chhaledu.




sorry to hear and cannot read the post properly or tears after reading. I did not mean to hurt anyone in particular, but out of care and respect for those parents asked that question.

I know one case (my distant cousin who lives in NJ) has two sons. second one is having similar issue. aa inTlo tanokkattE lady. after certain age taking care of grown-up is not easy (especially boy). for him they have father and another elder boy.
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

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Posted on Thursday, August 20, 2015 - 09:52 am:       


Cinejeevi:

Since parents are supporting the special kids like anything, how about their siblings if they have one/two?? Are they supportive?? If no siblings yet, r u planning to have one so that he/she will take care when u r tired?? I am just asking from emotional support point of view only...



We decided against any more kids.
First 1 year lo 3 months NICU lo unnaru. taruvatha 1.5 years chinna papa hospital lo undindhi, and we literally spent a lot of time with her at the hospital, switching roles at home and hospital. appati nunchi, pedhha ammai (one with autism) meedha ekkuva spend cheyalsi vasthundhi.
We cannot have another kid. :-)
But to your question, my lil one really wants to play with her sister and looks very supportive (although both are just 4)
 

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Posted on Thursday, August 20, 2015 - 09:51 am:       


Cinejeevi:

If no siblings yet, r u planning to have one so that he/she will take care ??




ide qn nenu adugudam other parents ni anukunna. last 2 weeks lo , maa vaadi health assalu baaledu. appati nunchi mind lo ide tirgutundi. memu poyinaaka evaru choostaaru vaadni ani :-) last two days lo ee qn raayataniki kooda dhairyam chhaledu.
 

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Posted on Thursday, August 20, 2015 - 09:22 am:       

I have a gootle question and apologies upfront if it hurts or out of context.

Since parents are supporting the special kids like anything, how about their siblings if they have one/two?? Are they supportive?? If no siblings yet, r u planning to have one so that he/she will take care when u r tired?? I am just asking from emotional support point of view only...
similarity between beggars and SW engineers - When they meet after a while both ask same question "U r on which Platform now"??
 

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Posted on Thursday, August 20, 2015 - 07:19 am:       

Bump
 

Jalsa
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Posted on Wednesday, August 19, 2015 - 11:02 pm:       


Ishan:

Maree 1 in 28 endi baabu?



It is horrible. Autism is an horrible plague!!!! Not sure what causes it. And NJ lo intha high endhuko theleedhu. When I go to weekend OT sessions, I see quite a few Indian kids. Genetics anadaniki family lo evariki ledhu. Your reasoning of fetus might be true. It's scary that the root cause has not been identified!
 

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Posted on Wednesday, August 19, 2015 - 10:53 pm:       


Urumi:

Pdd nos ki autism difference koncham layman terms lo cheppara. Naakoncham confusing ga vundi.


Its a thin line. Even doctors get confused. PDD-NOS is called 'atypical autism' which means that though there is developmental delay, patients dont have all the symptoms of autism, for example repetitive behaviors are rare in NOS but common in autism.

Urumi:

Inka brsin lo left , right hemi spheres and dub channels - speech ki relation enti ?


To put it simply, left brain is responsible for language and logic (math skills). Right brain is for emotion, intuitiveness etc. In autistic kids, this distinction is decreased, sometimes its even reversed. So brainlo connections gajibiji gaa vuntayi.

Jalsa:

Highest autism rate in US mari. Anyway, I met a parent in ome of clinic sponsored ABA session who moved fr texas to NJ for this.


Maree 1 in 28 endi baabu? Alabama ki move kavadam better emo pillalni kanaalankunte.
Don't text and drive !
 

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Posted on Wednesday, August 19, 2015 - 09:46 pm:       


Ishan:

. In Texas, I don't think any public school offers ABA



Highest autism rate in US mari. Anyway, I met a parent in ome of clinic sponsored ABA session who moved fr texas to NJ for this.
 

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Posted on Wednesday, August 19, 2015 - 09:45 pm:       


Ishan:


Maa school district very good andi. Good schools vunnay. Heard mass and jersey are good. Doctors kooda manchollu vunnnaru.
Pdd nos ki autism difference koncham layman terms lo cheppara. Naakoncham confusing ga vundi.

Inka brsin lo left , right hemi spheres and dub channels - speech ki relation enti ?
 

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Posted on Wednesday, August 19, 2015 - 09:21 pm:       


Gandhiguevara:

ye age lo thelusthaayi like early signs laantivi?


Depending on the severity, you can see the symptoms as early as 6 months. But usually 1.5 years is the age a definitive diagnosis can be made.

Maverick:

is autism environment linked?


Its largely genetic, but yes there is environmental component. Certain chemicals can interfere with the brain development. I think main problem might be in the large scale food processing techniques they are using now a days. Some chemicals, not sure what they are, are impeding fetal development ani naa belief.

Urumi:


Its incredible that there are schools with ABA in your state. In Texas, I don't think any public school offers ABA.
Don't text and drive !
 

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Posted on Wednesday, August 19, 2015 - 07:33 pm:       


Gandhiguevara:

130 crores vunnam...mana meedha research takkuve anukuntaa




gagu aka mega fan, mana daggara kooda vunnay eppati nuncho. kaani awareness takkuva plus accept cheyyaru eevi anta tondaraga. idi varaku inta severity vundakapovachu. appudu spectrum lo lower side vunte, ippudu severity perugutundi next generations lo, ante. environemental factors ippudu situation worse chestunnay .
 

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Posted on Wednesday, August 19, 2015 - 07:22 pm:       

@nanigadu bro, ghee naaku vastundi. but, godaari sanna powder laa daanlo kalisipotundi. adi paniki raadu maaku. anand sis daaniuke solution cheppaaru.

@ishan, problem ABA hrs to ne andi main ga, inka OT services ..etc. IEP lo clear ga mention cheyyamani na godava.
vaallu at the time of joining, private school istadi antaaru. full day ABA program vunna schools lo ippudu room leu. after few months open avuddi anta. study team vere non ABA school ki pampinchu antadi. kudaradu ,nenu mention chesinavi anni istene veltaadu, ledante legal ga proceed avutaa aani cheppa and process initiate chesa. ivaala phone lo bargaining modalu pettindi. sasemira anna. so, ippudu EI services continue chesi, full day ABA school lo opening raagane akkadiki pampiddaam aani decide chessaru. adee nenu ok antene.
 

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Posted on Wednesday, August 19, 2015 - 04:21 pm:       


Ferrari:




nothing to panic. its all because they are not interested to talk. desam trip lo lot of ppl talk to them and they get excited.
 

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Posted on Wednesday, August 19, 2015 - 04:20 pm:       


Gandhiguevara:

yeti nijame? link yettu




scam ante scam ani kaadu. big companies use loopholes ani edo site lo soosinaan.

dorikithe ista
 

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Posted on Wednesday, August 19, 2015 - 04:18 pm:       

GMO - Genetically modified food kadha?
This isn't anything to do with organic or non-organic
 

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Posted on Wednesday, August 19, 2015 - 04:16 pm:       


Asdf:

instead he will show what wants or drag you there and show it.


ma annaya daughter kuda ilane chestundhi anta..she will complete 3 by next month..inkka maatalu sarigga raledhu..kindha posts anni chusthe bhayam estundhi..mammol ga aithe ABC's A for Apple..aa amma aaa aavu anni cheptundhi anta..i hope everything is ok..
 

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Posted on Wednesday, August 19, 2015 - 04:13 pm:       


Ishan:


is autism environment linked?
Happy Vizag
 

Gandhiguevara
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Posted on Wednesday, August 19, 2015 - 04:10 pm:       


Ishan:


ye age lo thelusthaayi like early signs laantivi?
 

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Posted on Wednesday, August 19, 2015 - 04:09 pm:       


Asdf:

its a scam ani ee amdhya telsindi.


yeti nijame? link yettu
 

Ishan
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Posted on Wednesday, August 19, 2015 - 04:07 pm:       


Rajusk:


entaa aa numbers..


That number is actually 3 years old. Now its 1 in 68 anukunta. Unfortunately most people are not aware of the seriousness of the situation, how exponentially the prevalence is rising. Even the US government is not spending much towards the research. Public awareness is very important, especially in desi junta...adedo exotic disease anukuntaaru and thats why I share info as much as possible. Indian Govt recognized autism only in 2001 anta.

http://timesofindia.indiatimes.com/city/ahmedabad/Autism-is- not-a-disease/articleshow/19333810.cms
Don't text and drive !
 

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Posted on Wednesday, August 19, 2015 - 04:06 pm:       


Gandhiguevara:

ainaa aaa USDA vaadi certification criteria entha strong gaa vundhoo




its a scam ani ee amdhya telsindi. that does not stop us from buying it anuko.

chicken matram local grocery store aina kooda, organic kakapothe taste theda kottedi
 

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Posted on Wednesday, August 19, 2015 - 04:05 pm:       

Nani vuncle....USDA tag lekundaa local produce ni nammadam kastam....ainaa aaa USDA vaadi certification criteria entha strong gaa vundhoo...gorrellaaga aaa tag sooddam ....konukkodam...

Costco lo chaala items vachaayi ippudu including snacks like Pita chips, pop corn and some other stuff
 

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Posted on Wednesday, August 19, 2015 - 04:02 pm:       

Asians lo only Japanese (money valla avvochu) ki genetic related jabbula meedha research documentation vundhi...130 crores vunnam...mana meedha research takkuve anukuntaa

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