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Urumi
Side Hero
Username: Urumi
Post Number: 3548
Registered: 12-2011
Posted From: 74.105.11.30
Rating: N/A
Votes: 0 (Vote!) | | Posted on Tuesday, May 19, 2015 - 08:07 pm: | ![]()
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Jalsa:
Naaku gurtu leka mimmalno adiga. Db lo kooda discuss chesinattu gutru |
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Jalsa
Legend
Username: Jalsa
Post Number: 31422
Registered: 02-2008
Posted From: 159.53.174.140
Rating: N/A
Votes: 0 (Vote!) | | Posted on Tuesday, May 19, 2015 - 10:51 am: | ![]()
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Urumi:tax related edo senate lo approve ayyindi annaaru. adi enti andi ?
?? okka saari remind cheyandi malli???
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Urumi
Side Hero
Username: Urumi
Post Number: 3529
Registered: 12-2011
Posted From: 74.105.11.30
Rating: N/A
Votes: 0 (Vote!) | | Posted on Tuesday, May 19, 2015 - 10:30 am: | ![]()
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Jalsa:
tax related edo senate lo approve ayyindi annaaru. adi enti andi ? |
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Jalsa
Legend
Username: Jalsa
Post Number: 31416
Registered: 02-2008
Posted From: 159.53.110.142
Rating: N/A
Votes: 0 (Vote!) | | Posted on Tuesday, May 19, 2015 - 09:24 am: | ![]()
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Some details about NJ Catastrophic Relief fund:
Who is Eligible for the Fund?
In any prior, consecutive, 12 month period, dating back to 1988, eligible expenses must exceed 10% of the family's income, plus 15% of any excess income over $100,000.
The child must have been 21 years or younger when the medical expenses were incurred.
The family must have lived in New Jersey for 3 months immediately prior to the date of application. Migrant workers may be eligible, temporary residents are not.
I talked to them early last year and they said it might take up to an year to reimburse.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Jalsa
Legend
Username: Jalsa
Post Number: 31415
Registered: 02-2008
Posted From: 69.126.211.48
Rating: N/A
Votes: 0 (Vote!) | | Posted on Tuesday, May 19, 2015 - 06:45 am: | ![]()
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bump
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Urumi
Side Hero
Username: Urumi
Post Number: 3528
Registered: 12-2011
Posted From: 74.105.11.30
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 07:11 pm: | ![]()
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Anand_n:
Sis,Just checked ur email. thank you. |
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Asdf
Side Hero
Username: Asdf
Post Number: 7854
Registered: 12-2014
Posted From: 205.157.66.4
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 05:30 pm: | ![]()
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Jalsa:Some of the clinics said they won't even take insurance and gave me a quote of 180-250$ per hour.
ikkada close to 150-200. they are minting money |
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Asdf
Side Hero
Username: Asdf
Post Number: 7853
Registered: 12-2014
Posted From: 205.157.66.4
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 05:29 pm: | ![]()
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Jalsa:Lot of states have it mandatory to cover ABA.
vaake annai. inko sari kanukkuntaanu. |
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Jalsa
Legend
Username: Jalsa
Post Number: 31414
Registered: 02-2008
Posted From: 159.53.46.142
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 05:29 pm: | ![]()
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Ishan:Obviously insurance companies dont like it because ABA is such an expensive therapy. I had real bad time in fighting with them last year for months together.
Same here.
Problem for me was, the insurance showed list of in-network therapists. I made atleast 50 calls. Almost all of them said, Yes I am in network, but my clinic is not ani. I was so frustrated, because, none of them would come by themselves to give therapy!!!! Luckily a little while later, I found one clinic that would do home based therapy! Now another clinic called me saying they got in-network recently. That's good news as I know the therapists in that clinic.
Some of the clinics said they won't even take insurance and gave me a quote of 180-250$ per hour.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Jalsa
Legend
Username: Jalsa
Post Number: 31413
Registered: 02-2008
Posted From: 159.53.110.142
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 05:25 pm: | ![]()
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Asdf:good to know annai. I will have to find out from my insurance, cover cheyaru ani cheppinatlu gurthu
Lot of states have it mandatory to cover ABA.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Asdf
Side Hero
Username: Asdf
Post Number: 7844
Registered: 12-2014
Posted From: 205.157.66.4
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 03:47 pm: | ![]()
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Ishan:Our insurance pays 100% after reaching Out of pocket max. In Texas, it is mandatory for insurance companies to pay for ABA, OT and ST. Obviously insurance companies dont like it because ABA is such an expensive therapy.
good to know annai. I will have to find out from my insurance, cover cheyaru ani cheppinatlu gurthu |
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Ishan
Side Hero
Username: Ishan
Post Number: 9802
Registered: 01-2009
Posted From: 98.201.144.116
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 03:44 pm: | ![]()
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Urumi:8 hrs ABA ante kid steess feel avvada andi ?and How much do you pay for this ? Problem lekapote share cheyyandi.
We considered that, but he didnt show any out of the ordinary stress levels. Just regular wear out after long day of school. Some times he comes out happily smiling, and some times tired, but nothing unusual. Some days he doesn't eat his lunch completely, so he gets exhausted sooner. Nevertheless, we thought he would be better off at therapy than at home during day time ani continue chesthunnam. Initially he used to go for 3 hrs, then 5 hrs and now 8 hrs. 3 hrs was way less, 5 hrs was optimum and 8 is slightly tiring, but he is holding up good so far.
Our insurance pays 100% after reaching Out of pocket max. In Texas, it is mandatory for insurance companies to pay for ABA, OT and ST. Obviously insurance companies dont like it because ABA is such an expensive therapy. I had real bad time in fighting with them last year for months together. This year I have much better policy for my son. So far so good. |
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Asdf
Side Hero
Username: Asdf
Post Number: 7841
Registered: 12-2014
Posted From: 205.157.66.4
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 03:34 pm: | ![]()
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Jalsa:before the kid turns 3, the EI guys will arrange meeting with public school district and school psychologist/OT/PT will come and evaluate your kid and determine the program.
aa time ki maa vaadu desam lo vunnaadu. ipudu evaluation pedithe malli school ki waiting list vastado emo... |
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Jalsa
Legend
Username: Jalsa
Post Number: 31406
Registered: 02-2008
Posted From: 159.53.110.142
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 03:17 pm: | ![]()
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Tweety:Jalsa maava, what kind of pre school your daughter is going?
is it called ASD pre-school?
Howmany students are there in that calss?
Since we were getting early intervention from 2 yrs of age, before the kid turns 3, the EI guys will arrange meeting with public school district and school psychologist/OT/PT will come and evaluate your kid and determine the program. There will be a special class for special needs kids. They are not telling me how many ASD kids are in that class no matter how many times I ask.
First lo class strength thakkuvey undedhi but looks like it went up.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Jalsa
Legend
Username: Jalsa
Post Number: 31405
Registered: 02-2008
Posted From: 159.53.110.142
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 03:14 pm: | ![]()
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Urumi:ow much do you pay for this ? Problem lekapote share cheyyandi.
Problem unna share cheyalsindhey 
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Jalsa
Legend
Username: Jalsa
Post Number: 31404
Registered: 02-2008
Posted From: 159.53.110.142
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 03:14 pm: | ![]()
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Urumi:8 hrs ABA ante kid steess feel avvada andi ?
First lo yes, but otherwise no. I used to think the same before we started 2 hrs ABA after coming from school. First lo she got tired very quickly, but now, we are planning to increase it to 2.5 hrs.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Tweety
Junior Artist
Username: Tweety
Post Number: 859
Registered: 04-2008
Posted From: 66.60.166.219
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 01:07 pm: | ![]()
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Jalsa maava, what kind of pre school your daughter is going?
is it called ASD pre-school?
Howmany students are there in that calss? |
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Anand_n
Hero
Username: Anand_n
Post Number: 16709
Registered: 02-2008
Posted From: 167.24.104.150
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 01:02 pm: | ![]()
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Urumi:
Check your email
The foolish man seeks happiness in the distance; the wise grows it under his feet : James Oppenheim |
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Urumi
Side Hero
Username: Urumi
Post Number: 3527
Registered: 12-2011
Posted From: 74.105.11.30
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 12:35 pm: | ![]()
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Analog:
food items vere thread vestunna sis.
watermelon juice padutundi. eppudanna istunna.
thanks for the link. konni amma pampistunnaru books. ivi kooda teesukomani chepta. neeku 'muddu paapa' ane book online dorikite cheppu. chaala baaguntay anta. chinna chinna paatalu. vidiga dorakatledu anta. |
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Analog
Side Hero
Username: Analog
Post Number: 3986
Registered: 05-2008
Posted From: 192.91.75.30
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 10:38 am: | ![]()
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Urumi:
watermelon juice try chesava?whole fruit waste avuthundi anukunte 1 quarter even small portions dorukuthayi....nachina nachakapoyina try feeding him few spoons every day..even if he spits its ok..gradually taste ki alavatu padipothadu
fruits lo vetiki allergies unnayi????..avacado and banana padithe smoothy try cheyi....most kids like this..creamy texture easy to swallow...a friend of mine adds cheerios to smoothy...konchem soak chesi smoothy lo vesi try cheyyochu....you can also mix probiotics in this...other fruits like berries organic frozen try cheyyochu for smoothies...they taste pretty gud....fresh fruits techi avi tinakapothe waste avuthayi anukunte idi best option
salmon fish lemon juice,salt,ginger garlic,dhaniya powder vesi few hours marinate chesi pan fry cheste smell undadu...
vemana sumathi padyalu, pothana bhagavatham lo konni easy poems unnayi..haya greeva stotram nerpinchochu esp 1st sloka...avkf.org has lot of telugu books ...you can order them online US ki kuda few weeks lo vachesthayi....i usually order them in india and ask my dad to ship it for me..if u want i can send list of some good books for kids.."ammaki jeje nanna ki jeje guruvu ki jeje" must read book..i didnt read the book yet..order chesa..expecting it next week
http://www.logili.com/books/multipul-writers/p-7488847-32545 134385-cat.html |
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Tilak
Megastar
Username: Tilak
Post Number: 28369
Registered: 02-2012
Posted From: 49.207.190.100
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 09:14 am: | ![]()
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Urumi:
Asdf:
Jalsa:
Ishan:
This thread made me really emotional and understand the frailties of an avg human life .. whatever prayers I do .. I will do those for these little wonders and their parents .. Hope you people find a little succor ..
I never knew autism ki inni issues untayani!
Hats off to each of you .. and if I forgot to quote anyone else .. humans ki love and patience boundless ani prove chesaru when it comes to their own kids ..
Narendra Modi, Pradhan Mantri, Bharata Ganarajya - www.pmindia.nic.in - www.narendramodi.in |
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Urumi
Side Hero
Username: Urumi
Post Number: 3526
Registered: 12-2011
Posted From: 74.105.11.30
Rating: N/A
Votes: 0 (Vote!) | | Posted on Monday, May 18, 2015 - 08:43 am: | ![]()
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Ishan:
8 hrs ABA ante kid steess feel avvada andi ?and How much do you pay for this ? Problem lekapote share cheyyandi. |
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Ishan
Side Hero
Username: Ishan
Post Number: 9801
Registered: 01-2009
Posted From: 98.201.144.116
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 11:13 pm: | ![]()
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Urumi:Prescription teesukomantaara bro ?
Enni shops tirigina allergen free aithe dorakledu
Private therapy ante school ki pampatam ledaa ? Koncham clear ga cheppandi.
Yes, probably you should ask for prescription. Also, ask the pharmacist if there are any allergen free formulations available at all.
No he is not going to school yet. We wanted to give him as much ABA as possible to get some basic interactive skills before sending him to school next year. We are planning for private special school. |
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Urumi
Side Hero
Username: Urumi
Post Number: 3525
Registered: 12-2011
Posted From: 74.105.11.30
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Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 09:53 pm: | ![]()
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Ishan:
Prescription teesukomantaara bro ?
Enni shops tirigina allergen free aithe dorakledu
Private therapy ante school ki pampatam ledaa ? Koncham clear ga cheppandi. |
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Ishan
Side Hero
Username: Ishan
Post Number: 9800
Registered: 01-2009
Posted From: 98.201.144.116
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Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 09:36 pm: | ![]()
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Jalsa:Is it at a pre-school or a private clinic?
My kid is going to pre-school full-day, I guess she gets only 3 hrs a day of ABA (discrete trial) there, with OT and Speech 1 hr/week each. and she gets 14 hrs of ABA at home after she comes back from school - 2 hrs a day. Thinking of increasing it to 2.5 hrs a day. She also gets 45 mins of OT (at a OT gym) on Saturday and Sunday?
Private therapy. We didnt want in home therapy because we wanted him to interact with other people at the therapy center. They do some group activities with other kids too. Of course in home therapy has it own advantages too.
Jalsa:
Yeah, fate atlaa raasuntey em chestam. Literally came back from death bed - thrice. She gives us the strength to continue.
Idhhariki issues valla we are not able to do much ourselves to either kid.
Hope it will be over soon. Endo mastaru....desam kaani desam lo better life ani vasthe ee unexpected lifeki esaru pette problems endo...adi pillalaki...desam lo at least parents brothers anna vuntaar emotional support ki...ikkada adi bhi vundadu. |
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Jalsa
Legend
Username: Jalsa
Post Number: 31400
Registered: 02-2008
Posted From: 69.126.211.48
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 08:15 pm: | ![]()
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Ishan:Damn it man. PHT in such young kid? such a distress. All I can say is just stay strong. Gather all the support you can.
Yeah, fate atlaa raasuntey em chestam. Literally came back from death bed - thrice. She gives us the strength to continue.
Idhhariki issues valla we are not able to do much ourselves to either kid.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Jalsa
Legend
Username: Jalsa
Post Number: 31399
Registered: 02-2008
Posted From: 69.126.211.48
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 08:13 pm: | ![]()
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Ishan:He is going full time 40 hrs per week/ 8 hr a day.
Is it at a pre-school or a private clinic?
My kid is going to pre-school full-day, I guess she gets only 3 hrs a day of ABA (discrete trial) there, with OT and Speech 1 hr/week each. and she gets 14 hrs of ABA at home after she comes back from school - 2 hrs a day. Thinking of increasing it to 2.5 hrs a day. She also gets 45 mins of OT (at a OT gym) on Saturday and Sunday?
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Ishan
Side Hero
Username: Ishan
Post Number: 9799
Registered: 01-2009
Posted From: 98.201.144.116
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 08:03 pm: | ![]()
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Jalsa:Adho pedhha katha annai. She has pulmonary hypertension. was in hospital for 19 months. Last year intiki vachindhi, with many ER visits/hospitalizations so far. Thank God she is not on spectrum. By God's grace she's a very very bright child but medically very fragile.
Damn it man. PHT in such young kid? such a distress. All I can say is just stay strong. Gather all the support you can. Glad that she is not under the spectrum.
Jalsa:
Between, how many hours of ABA per week does your son get?
He is going full time 40 hrs per week/ 8 hr a day. 1 hr of OT on saturdays.
@urumi, 0.5 mg should be good initially. Discuss with the pharmacist about the possible allergy to ingredients. They will give you best brand or better can formulate something specifically for your son. |
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Jalsa
Legend
Username: Jalsa
Post Number: 31396
Registered: 02-2008
Posted From: 69.126.211.48
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 05:45 pm: | ![]()
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Ishan:Tracheostomy? what happened? sorry to hear. Are your both daughters under spectrum?
Adho pedhha katha annai. She has pulmonary hypertension. was in hospital for 19 months. Last year intiki vachindhi, with many ER visits/hospitalizations so far. Thank God she is not on spectrum. By God's grace she's a very very bright child but medically very fragile.
Between, how many hours of ABA per week does your son get?
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Kuyyo_morro
Hero
Username: Kuyyo_morro
Post Number: 17963
Registered: 02-2011
Posted From: 172.56.26.199
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 05:16 pm: | ![]()
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To Urimi
I am sorry if you took it the wrong way. Ipads and other gadets are meant to be for kids over 5.
Rom mode on now. |
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Sipayi
Moderator
Username: Sipayi
Post Number: 164
Registered: 10-2012
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 04:31 pm: | ![]()
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Kuyyo_morro:
neeku devudu common sense anedi lekunda enduku chesado ardam kadu naku.. aavida padutunna kastalu thread lo cheptu unte escaping ani anadaniki norela vachindi 
inko post ee thread lo este one week ban cheste. get out of this thread. |
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Anand_n
Hero
Username: Anand_n
Post Number: 16702
Registered: 02-2008
Posted From: 72.179.190.228
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 03:48 pm: | ![]()
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Urumi:
Whichever you feel more comfortable with ..
The foolish man seeks happiness in the distance; the wise grows it under his feet : James Oppenheim |
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Urumi
Side Hero
Username: Urumi
Post Number: 3524
Registered: 12-2011
Posted From: 74.105.11.30
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 03:46 pm: | ![]()
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Anand_n:
Thanks so much sis. Email cheyyamantaara ? Or ikkada pettana ? |
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Urumi
Side Hero
Username: Urumi
Post Number: 3523
Registered: 12-2011
Posted From: 74.105.11.30
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Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 03:41 pm: | ![]()
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Kuyyo_morro:
Please get out of the thread. TIA |
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Vidhata
Junior Artist
Username: Vidhata
Post Number: 894
Registered: 03-2009
Posted From: 106.51.149.75
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 03:23 pm: | ![]()
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Kuyyo_morro:Escapsim for parenting by giving ipad.
hmmm alochinchi veyyi bro
vella effort mundu naa lanti valla di 0.01% kuda ledu
hope every one comes out of it very very soon |
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Anand_n
Hero
Username: Anand_n
Post Number: 16701
Registered: 02-2008
Posted From: 72.179.190.228
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Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 03:22 pm: | ![]()
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Urumi:
Allergies list pettandi - and also what kind of food textures he tolerates.. I can definitely help with formulating recipes within those constraints ..
The foolish man seeks happiness in the distance; the wise grows it under his feet : James Oppenheim |
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Kuyyo_morro
Hero
Username: Kuyyo_morro
Post Number: 17962
Registered: 02-2011
Posted From: 172.56.26.199
Rating: N/A
Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 03:13 pm: | ![]()
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Urumi:
we dont give ipad. No tv cable too. Dont like kids spending time on gadgets. Escapsim for parenting by giving ipad. |
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Ishan
Side Hero
Username: Ishan
Post Number: 9798
Registered: 01-2009
Posted From: 98.201.144.116
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Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 03:09 pm: | ![]()
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Urumi:severe GI issues vinnay. Pain to raatri poota vila vila laadatadu. Ipudippude pain ekkado point chestunnadu. 90% food items allergies. Nenu pette food vaadiki nachadu. Vaadiki akali vesina verevi prttalenu. Anytype of milk padadu.
My son had GERD reflux problem when he was 1 yr old. He actually lost few pounds quickly and we were really worried. We did barium swallow radiograph test to find it out. But he out grew on his own. Stomach developmental delay vuntundi okkosaari in ASD kids, but they out grow if it eventually. We gave him smoothies with blue berries, badam powder, banana and honey etc. He used to like it and gained weight immediately. Try different combos. I know its difficult to find recipes with allergies, but keep trying. Regarding verbal thing, Verbal ASD kids recover quickly compared to non-verbal kids ani general opinion.
Urumi:
Melatonin ee brand better?? Any suggestions?
We use generic tablets, no specific brand.
Urumi:
Mee kid focus ela vuntundi ? Any suggestions to improve his focus on things ?
Focus has improved after ABA. He is better than last year. He can do many things, but he is just not interested or motivated to do. Istam vunte cheppindi chesthadu, istam lekunte he messes up. OT lo kooda anthe. Therapist choopinchina activities first lo chesthadu but then quickly gets demotivated. Consistency thakkuva, but he is slowly getting better.
Jalsa:Gummy bear vitamin chewables aa? My kid doesn't chew at all...and Omega3, B12 ippudey endhuku ani wait chestunna - same as you I guess.
We've attended one 8 week clinic. More than therapy, the parents who came there exchanged ideas. One parent told me the day her son gets B-12 shot/tablet, he talks a lot and doesn't sleep well.
We're using Z-vibe to try stimulate her oral area.
We crush the tablet and mix with water and give the powder to him. B-12 gurinchi vinna kaani never tried. Dont want to try too many things.
Jalsa:
Same here bro. She used to repeat what we used to say till 18 months of age and from then on everything gone. Till date haven't heard them say "dada".
Her sister used to talk a lot, but ever since she got her tracheostomy, she forgot how to talk. Only thing she says is "mamma". But, thankfully, she is cognitively very active and very fast learning. Hoping she'll talk soon.
Same story here. My son used to say several words until 2.5 yrs. Then slowly all gone. The only time he called me 'dada' was on his aksharabhyasam day in the temple, and thats it never after that.
Tracheostomy? what happened? sorry to hear. Are your both daughters under spectrum? |
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Urumi
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Username: Urumi
Post Number: 3522
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@ km, ipad tappa inkoti nachadu |
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Urumi
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Username: Urumi
Post Number: 3521
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Jalsa:
Sleep soundly allergen free na bro . Naaku ekkada info kanapadakedu
Mee paapa ki mg supplement enduku ichharu bro? I am little surprised
&ishan, 0.5 mg ivvanandi. L theanine use cheyamandi melatonin intereat lekapote |
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Jalsa
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Username: Jalsa
Post Number: 31394
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Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 10:00 am: | ![]()
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Kuyyo_morro:TV lo they have to watch some cartoons for a few days/weeks.
Idhey jaragatledhu. I tried tom&Jerry, mickey mouse, dora, caillou etc she doesn't watch at all. All she likes are baby einstein videos and anything in song format.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Kuyyo_morro
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Username: Kuyyo_morro
Post Number: 17955
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Jalsa:Yes, we've been trying to get her used to some toy. we tried 2-3 so far, nothing worked. Steel spoon seems to be her toy, LOL.
TV lo they have to watch some cartoons for a few days/weeks. Once they start liking the cartoon character, you get the same toy.
We did the same and it worked like crazy. We have like 10 of them now due to purchases whenever we went out. Now the stupid azz mickymouse toys are all over the house and in car. |
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Jalsa
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Username: Jalsa
Post Number: 31393
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Kuyyo_morro:You make your kid friends with a toy like mikky mouse etc. He will start sleeping with Micky, you can be free.
This is a common thing with most kids.
Yes, we've been trying to get her used to some toy. we tried 2-3 so far, nothing worked. Steel spoon seems to be her toy, LOL.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Kuyyo_morro
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Username: Kuyyo_morro
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Urumi:
You make your kid friends with a toy like mikky mouse etc. He will start sleeping with Micky, you can be free.
This is a common thing with most kids. |
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Jalsa
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Username: Jalsa
Post Number: 31391
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Urumi:Melatonin ee brand better?? Any suggestions?
We are using "Sleep Soundly" liquid.
Ishan:Regular multivitamins anthe. Omega3 anukunnam kaani endukule physically he is doing great ani lite teeskunnam.
Gummy bear vitamin chewables aa? My kid doesn't chew at all...and Omega3, B12 ippudey endhuku ani wait chestunna - same as you I guess.
We've attended one 8 week clinic. More than therapy, the parents who came there exchanged ideas. One parent told me the day her son gets B-12 shot/tablet, he talks a lot and doesn't sleep well.
We're using Z-vibe to try stimulate her oral area.
Ishan:maa vodu putti 4.5 years ayyindi still nanna or amma anipinchukune adrustam ledu maaku . Total non-verbal.
Same here bro. She used to repeat what we used to say till 18 months of age and from then on everything gone. Till date haven't heard them say "dada".
Her sister used to talk a lot, but ever since she got her tracheostomy, she forgot how to talk. Only thing she says is "mamma". But, thankfully, she is cognitively very active and very fast learning. Hoping she'll talk soon.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Asdf
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Post Number: 7746
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Votes: 0 (Vote!) | | Posted on Sunday, May 17, 2015 - 08:27 am: | ![]()
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Urumi: hoopla kidz, Mher goose,super simple songs, little baby bum, chuchu tv, busy beavers, cvs, magic ox tv, appu series ... Namili paReasadu already In both english and telugu.
wow! aa age ki ee range lo ante super. he is blessed |
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Rajusk
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Username: Rajusk
Post Number: 37510
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Urumi:Hospitals lo veediki american idol ani peru pettaru
He is probably destined to become one...God bless |
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Urumi
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Username: Urumi
Post Number: 3520
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@ ishan bro, he just scripts. Function al kaadu 90%. Ee interaction antaa music, numbers, letters, uzzles, colors, shapes , books latone. Amma ani ee madhye anatam start chessadu . Intaku mundu scripting ee. Adi kooda ekkuva ipad kosam. Inlock cheyyamani teesukostaadu. Nanna script chestasdu. Rhymes base chesukuni sppeech functionsl cheyyataniki try chestunna.
Appude lucky anakandi severe GI issues vinnay. Pain to raatri poota vila vila laadatadu. Ipudippude pain ekkado point chestunnadu. 90% food items allergies. Nenu pette food vaadiki nachadu. Vaadiki akali vesina verevi prttalenu. Anytype of milk padadu. Aakali veste neellu pattina rojule ekkuva  . Nenu food tintaaniki naake asahyam vestadi. Aakali veste silent ga vuntaadu. Severe sensory issues and feeding issues. Rojulo 5 to 6 hrs feeding ke saripotundi.
Onega3 oils last month ee start chessanu. Kaasta weight gain avutunnaadu. B12 supplemts meeda mee opinion enti ?doc avi kooda start cheyyamandi 1 tsp.Copper zinc ratio baalekapote sensory issues ekkuva andi foc. Blood work result kosam choostunna.
Melatonin ee brand better?? Any suggestions?
Mee kid focus ela vuntundi ? Any suggestions to improve his focus on things ?
@asdf bro, hoopla kidz, Mher goose,super simple songs, little baby bum, chuchu tv, busy beavers, cvs, magic ox tv, appu series ... Namili paReasadu already In both english and telugu. Baby babble video mottam cheppestasdu, ippudIppude artham chedukotaanKi trying. Hospitals lo veediki american idol ani peru pettaru, vellinappudalla u take a break for few min ani aadistaatu staff.
Water chaala ishtam. Immunity power kaasta improve ayyaka teesukeltamani plan. |
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Ishan
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Username: Ishan
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Jalsa:Are you using any supplements? Our doc suggested magnesium, calcium.
Nothing special bro. Regular multivitamins anthe. Omega3 anukunnam kaani endukule physically he is doing great ani lite teeskunnam.
Urumi:Last week e doc Start cheyyamandi.
Did she say anything about dose? start with low dose and increase slowly.
Urumi:Chakkaga paadatadu. Aa notiki ika moota vundadu. Slokalu, bhajanalu, rhymes, Cinema songs, IKa flow nadustadi.Kottaga spanish songs kooda paadutunnadu
Lucky you, maa vodu putti 4.5 years ayyindi still nanna or amma anipinchukune adrustam ledu maaku . Total non-verbal. Based on things you wrote here, he might have a mild degree of OCD which is not that uncommon in ASD. Did your ped said anything about it? |
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Asdf
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Username: Asdf
Post Number: 7731
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Votes: 0 (Vote!) | | Posted on Saturday, May 16, 2015 - 08:32 pm: | ![]()
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Urumi: Chakkaga paadatadu. Aa notiki ika moota vundadu. Slokalu, bhajanalu, rhymes, Cinema songs, IKa flow nadustadi.Kottaga spanish songs kooda paadutunnadu
super. maa vaadu repeat chesedi kooda pedda ledu, ipudu India vellaaka he learnt a lot.
Urumi:Manchi melodies or chants, padyyalu audio, video links edanna vunte ivvandi evaranna or playlists. Or edanna music related websites .
appu series
mother goose club
cvs rhymes etc meeku telise vuntaayi.
catchy songs ante justin bieber, one direction etc try cheyandi.
my kid loves "roar-katy perry" and "happy -pharrel williams" |
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Aarkay
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Username: Aarkay
Post Number: 38
Registered: 04-2013
Posted From: 99.229.121.180
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Votes: 0 (Vote!) | | Posted on Saturday, May 16, 2015 - 08:27 pm: | ![]()
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Urumi:Tune tappu paadina, lyrics tappu ayina lechi koorchuni correct chestaadu. Dad. Paadina nachadu.
Vaarni.. Sankarabharanam sankara saastry gaari taluuka anukunta! raagam/sruthi emaatram teda vachichinaa "Saradaa" type lo arustaadaa!! :--) Tough cookie.
My friend's son(4.5Y old) sings to himself , gets tired and then falls asleep. I saw him once... Its not just humming/singing in a low voice.. He literally screams the song and plays music/beats as well.. And it's daily business. |
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Sasibabu
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Username: Sasibabu
Post Number: 34030
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Votes: 0 (Vote!) | | Posted on Saturday, May 16, 2015 - 07:35 pm: | ![]()
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kalla emmata neellu vachesaayi ee thread chadhuvuthaante ....
CC - Chillara Chithukaagithaalu |
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Urumi
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Aarkay:
DrivE ki teesukeltune vunta bro. Anni saarlu work avadu. Record cheste kudaradu, paadalcinde. Ee song paadalo cheppi noti meeda velu pedataadu. Madhylo aapi Na Velu pedataadu.Tune tappu paadina, lyrics tappu ayina lechi koorchuni correct chestaadu. Dad. Paadina nachadu. Amma paadalcinde.Nenu paadatam aapite ika gontu savaristaadu artHa raatri poota. Chakkaga paadatadu. Aa notiki ika moota vundadu. Slokalu, bhajanalu, rhymes, Cinema songs, IKa flow nadustadi.Kottaga spanish songs kooda paadutunnadu
Any tune catch chestaadu. Manchi melodies or chants, padyyalu audio, video links edanna vunte ivvandi evaranna or playlists. Or edanna music related websites . |
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Asdf
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Post Number: 7730
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Urumi:@asdf bro, anni try chessnu.
Basic ga afternoon nap odd hrs lo nidra potaadu. Night time teesukuntaadu ika. Mrng 6:45-7 kalla leputaa. Ayinaa ide paristiti.
you are putting lot of effort sis.
increasing play time and waking up early are the only ones i can think of.
inka water istam aithe swimming in the evening may relax him.
my kid loves water, but hearing issues vache chance vundi ani bhayapadi tisku poledu. |
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Aarkay
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Username: Aarkay
Post Number: 37
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Urumi:continuous ga paadali ledante edo okati cheppaali. nidra poyinanta sepu meeda padukovaalcinde
you are doing a great job.
About singing, how about recording yourself and play it for him. You can get some rest.
For my son(3y old), I have to chant "Sai Ram" for at least 45 min. But because of "punyam and purushardham", I just do it.
Have you tried taking him for long drives in the night? That may help. That's how, my daughter used to sleep.. |
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Urumi
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Votes: 0 (Vote!) | | Posted on Saturday, May 16, 2015 - 06:14 pm: | ![]()
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@asdf bro, anni try chessnu.
Basic ga afternoon nap odd hrs lo nidra potaadu. Night time teesukuntaadu ika. Mrng 6:45-7 kalla leputaa. Ayinaa ide paristiti.
@ishan bro, melatonin eppudu use cheyyaledu andi. Last week e doc Start cheyyamandi. Ee madhya molar teeth problem to daily 4,5 hrs maatrame nidea potunnadu. Migilina hrs Torture ee. MelatOnin ika start cheyyali. He is 2 and half yrs old
@girls, thank you for uour prayers
@Ot annai, early intervEntion nunchi 15 hrs weekly service vastundi. Bayata inka few hrs ippistunnamu. Remote job ee choosukovali . |
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Abcdefghij
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not sure all the things mentioned below are autisim related.
sleep/speech desi kids worry kakandi...just matter of time it will get settled dont overdose them with medicines and therapy's (but follow doctor but dont panic and give medicines) or may be i dont know what i am saying or what u r going through...
i know its easy to say but ee medicines kuda manchivi kavu ...
take help from parents...take help from friends...or send them/go to india for couple months speech/sleep matuku change vostadi... if you cannot take stress here...
all who left jobs for kids try part time jobs in your network...or remote jobs not that it is easy but away from thinking about kid all the time...
http://gallery.greatandhra.com/upload/8563/images/_211398452008.jpg |
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Vasu
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Votes: 0 (Vote!) | | Posted on Saturday, May 16, 2015 - 11:20 am: | ![]()
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Onlytruth:na vaipu nunchi meeku insurance related costs varaku are you on best possible plan in ur state or not... laantivi research chesi pedatanu each state ki few hours padutundhi
please email me if u want
 |
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Jalsa
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Username: Jalsa
Post Number: 31389
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Ishan:
Are you using any supplements? Our doc suggested magnesium, calcium.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Anand_n
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God bless all the kids with a fast recovery and all the parents with the strength to cope with the stress and strain ...sad to see the number of affected families but glad you are able to share the travails and find support from other parents in the DB..if there is anything we can do to help ease your situation , do let us know..
The foolish man seeks happiness in the distance; the wise grows it under his feet : James Oppenheim |
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Ishan
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Username: Ishan
Post Number: 9796
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 08:13 pm: | ![]()
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Urumi:
Have you tried Melatonin? Its pretty safe medicine and thats why you get OTC. But talk to your pediatrician before using it. It really helps in coordinating sleep cycles. We use it for our son some times. But make sure you talk to ped before using it. How old is your son? It will get better, have hope. I used to wake up most of the night and my sleep cycle got disturbed at that time. Luckily my boss was very flexible and didnt have much problems work wise. But boy was that stressful. But it will get better, trust me. |
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Onlytruth
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Username: Onlytruth
Post Number: 166042
Registered: 01-2007
Posted From: 104.182.130.135
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 07:58 pm: | ![]()
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URUMI:
Affordable aa paada . Andukega bro ee confusion. Okka salary to chaala kashtam Ga vundi. Meeku telisindega regular Er visits, outside therapies frequent doc visits Expenses.
Private schoolmi pamppalante nenu malli job start cheyyali, which is not easy.
Somerset hills, rockaway school Baagunnay.
ma friend son ki undhi, dadapu weekly 50 hrs intiki vachi therapy istharu...ataniki copay chala takkuva in the sense affordable.....mari meeku ER visits antunnaru ga avi ekkuva avutunnayemo
if u need to do job...mee network lo pani aithe sari..otherwise db nw thru try cheyandi..easy ga place autaru
plus if at all u have flexitbility to do job leaving kid at care....then do the job....kastha diversion untundhi stress nunchi |
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Onlytruth
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Username: Onlytruth
Post Number: 166041
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 07:43 pm: | ![]()
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na vaipu nunchi meeku insurance related costs varaku are you on best possible plan in ur state or not... laantivi research chesi pedatanu each state ki few hours padutundhi
please email me if u want |
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Onlytruth
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Username: Onlytruth
Post Number: 166040
Registered: 01-2007
Posted From: 104.182.130.135
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 07:28 pm: | ![]()
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meeru padutunna aa mental physical stress chaduvutaa unte....demudaa ...meeku ela dhairyam cheppalo kuda ardham kavadam ledhu;
manchi jaragali ani manaspoorthiga wishing for all of you !
ekkuva mandhi korukunte jarugutundhi antaru
next time temple ki velinnappudu meeku manchi kavali ani korukuntaa |
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Analog
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Username: Analog
Post Number: 3985
Registered: 05-2008
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 06:34 pm: | ![]()
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urumi:
asalu chaduthunte manasu melipettinattu ayyindi hats off to you patience...take care of your health first...appude vadini support cheyyagalav... few days nunchi Ee thread effect emi tochatledu....all DB ladies did hanuman chalisa parayan wishing speedy recovery for all kids... |
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Jalsa
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Username: Jalsa
Post Number: 31388
Registered: 02-2008
Posted From: 69.126.211.48
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 06:12 pm: | ![]()
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Urumi:
Same to same maa ammai ki...she used to take 2 hrs to fall asleep and wake up at 1.30 - 2.00 am and stay up till 6...mothham schedule mess up ayyedhi...once she started going to school it got a lot better.
You should try melatonin, it's harmless.
Only when the tide goes out do you discover who's been swimming naked - Warren Buffett |
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Asdf
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Post Number: 7693
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 05:06 pm: | ![]()
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Urumi:
you are keeping him busy with various things, nice.
couple of things i did , when the did not sleep by 11 PM.
increased the time he walks/cycles, and made him wake up early in the morning. they may get irritated with the routine change, so have to be careful. |
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Vjawarrior
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Username: Vjawarrior
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 04:55 pm: | ![]()
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Urumi:
Enta tired ayyina , nidra pattadu vaadiki. Calm acvaledu easy ga. Morning nunchi ipad lo vinnavi, tv lo choosinavi, therapist lu cheppinavi, nenu paadinavi anni repeat chesukuntaadu.music hrs and hrs vinnaka appudu cakm avutaadu.sensory input organize chesukuni calm avatam raatam ledu inka. Eventual ga better avutaadu anukuntunna.
mam...just hats offf...asalu antha opika, patience ela untaayi andi meeku....I wish fast improvemeent for ur kids... |
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Urumi
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Username: Urumi
Post Number: 3517
Registered: 12-2011
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 04:54 pm: | ![]()
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Donvusko:
mee vadiki baaga istamaina bomma edaina untey..>>>>>> ipad, iphone...lol |
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Urumi
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Username: Urumi
Post Number: 3516
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 04:52 pm: | ![]()
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Asdf:
Every day 2 hrs park lo aadista. Hyper active. Maa ille oka sensory gym la tayyar chesaam..Naaku maree opika lekapote, naa indian dresses konni kinda padesi vaati meeda nadipista. Texture input kosam. Qigong massage 2 times chesta daily..inka list goes on..
Enta tired ayyina , nidra pattadu vaadiki. Calm acvaledu easy ga. Morning nunchi ipad lo vinnavi, tv lo choosinavi, therapist lu cheppinavi, nenu paadinavi anni repeat chesukuntaadu.music hrs and hrs vinnaka appudu cakm avutaadu.sensory input organize chesukuni calm avatam raatam ledu inka. Eventual ga better avutaadu anukuntunna. |
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Donvusko
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Username: Donvusko
Post Number: 287
Registered: 03-2014
Posted From: 159.14.241.249
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 04:39 pm: | ![]()
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Urumi:
mee vadiki baaga istamaina bomma edaina untey..daani alavaatu cheyyandi bed time lo. make sure you make him take it to bed. (if he does not have one, introduce one based on his interests). Idi Anchor item anna maata (cuurently aa role meekichaadu), Slowly dependancy taggutundi |
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Asdf
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Username: Asdf
Post Number: 7687
Registered: 12-2014
Posted From: 205.157.66.4
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 04:20 pm: | ![]()
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Urumi:
sis
thanks for your inputs. i think i had my own interpretation of the sensory term.
sorry to hear about the sleeping issues.
oka 2 weeks maa vaadu 3-4 am ki leche vadu every day. that itself set migraine for me.
does your kid play a lot? if so, nidra easy ga padtundi kada. did you try trike or some physical activity ? |
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Urumi
Side Hero
Username: Urumi
Post Number: 3515
Registered: 12-2011
Posted From: 74.105.11.30
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Votes: 0 (Vote!) | | Posted on Friday, May 15, 2015 - 03:57 pm: | ![]()
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jalsa/ishan,good to know kids ki sleeping issues improve ayyindi ante. nenu desperately aa time kossam wait chestunna.
maa vaadu chukkalu choopistaadu nakku. falling asleep is a big problem. night 2,3 hrs ,afternoon 1 hr min. teesukuntaadu padukune mundu. vaditone vundaali, continuous ga paadali ledante edo okati cheppaali. nidra poyinanta sepu meeda padukovaalcinde. inch kadilina voorukodu. biginchi padukuntaadu. konni days food, snanam em vundadu alaa padukotaame vaadito. eppudanna too tired anipinchi, nidra puchataaniki dad daggaraki vellamani istaa. okka second vundadu parigettuku vachestaadu amma anukunta. good thing entante padukunte levadu. kaani nenu kadala koodadu. konni konni rojulu pichekkutadi em paadalo artham ayyi chavadu. routine ga okate cheppina vinadu. kotta kottavi cheppali. mundu avi update chesukovaalanna time kaavaliga. youtube lo konni songs, chants ear phones pettukuni batti kodata konni saarlu. |
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